Apply to Join

Invisible Illness Data for Millions Worldwide

by Human Health Project
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Invisible Illness Data for Millions Worldwide
Dec 19, 2016

Invisible Illness Data for Millions Worldwide - Q4 2016 Quarterly Report

Many thanks for donating to HHP's "Invisible Illness Data for Millions Worldwide" crowdfunding campaign. With your help, we were successful in raising over $5,000 and in becoming a permanent member of GlobalGiving.

With the money raised, we are:

  • Conducting research to create 5 surveys, one for each of the Invisible conditions: Crohn’s disease, Chronic fatigue syndrome (CFS), Lupus, Lyme disease, Fibromyalgia
  • Collecting information to determine the data needs of people dealing with each of these conditions
  • Recruiting focus group participants from whom we will learn more about their data needs 
  • Recruiting advocates and moderators for the HHP community site to which we will add each of these conditions in the phase 2 program
  • Recruiting product and marketing team members
  • Recruiting User Experience expert(s) to work on the display of information collected in preparation for the phase 2 program

The HHP team has learned a lot from everyone who participated in our initial research, and we will continue to improve our research methods.
As one of our survey respondents commented, “This is the first complete survey that I have found.” It is these comments that motivate us, and give meaning to what we do.

We will continue to create the most comprehensive data collection tools to learn about the needs of individuals with invisible illnesses. We hope you will continue to support our mission to help those seeking accurate and objective information about their health conditions.

For people struggling with invisible illnesses, it often seems like no one understands. Thank you for understanding.

For more information about how HHP is helping to make a difference in the lives of people around the world, we invite you to visit our website at

Please also subscribe to our newsletter to be kept up to date on our progress.

The crowdfunding campaign is still open for donations, would you consider making another donation?

Yours sincerely,
Phil Harrington


About Project Reports

Project Reports on GlobalGiving are posted directly to by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

Human Health Project

Location: Los Angeles, CA - USA
Facebook: Facebook Page
Twitter: @HHPx
Project Leader:
Phil Harrington
Los Angeles, CA United States

Funded Project!

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.

Still want to help?

Support another project run by Human Health Project that needs your help, such as:

Find a Project

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence


Woman Holding a Gift Card
Gift Cards

Young Girl with a Bicycle

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.