Human Health Project (HHP) compiles real-world survey data, evidence-based research, online clinical trials and community sharing of information. "Invisible illness" is an umbrella term that encompasses a broad spectrum of illnesses that do not have any obvious symptoms and are often difficult to diagnose. HHP will provide data, research, and a community forum to individuals with invisible illnesses to empower them with better information to make informed health decisions.
Millions of people worldwide are affected by invisible illnesses. For individuals with illnesses such as lupus, fibromyalgia, and many others, it is often difficult to know who to trust and how to navigate through a myriad of online health resources. Credible and evidence-based data is not always available to the public for both conventional and alternative treatments, and very little research funding is available. This project will provide research and data for the invisible illness community.
HHP will conduct research on several invisible illnesses, including lupus, CFS, and others to find solutions for millions of people worldwide. This includes data on symptoms, causes, treatments, side effects, and outcomes. Additional in-depth analysis of data and external research will also be developed to provide condition community organizations the data they need to lobby for changes in policy and legislation. HHP's community forum will provide a place to share information.
This project will reduce the time it takes for individuals with invisible illnesses to find appropriate treatments based on evidence-based research. It will also provide a source of data for condition communities to lobby for long-term legislative changes regarding patient care and services. The HHP community site will enable individuals to ask questions and share information about their health concerns while receiving support and encouragement from one another.