Logan is an 11 year old boy living with cystic fibrosis and has had a particularly rough year. He was referred to us by his CF Center Social Worker who let us know that he has been hospitalized 4 times in quick succession and the family was facing extreme financial difficulties as well as a move to a new city. Logan’s parents made the decision that many parents of children with Cystic Fibrosis do and were depending on only one income so that one parent could take care of all the many hours of treatments, doctor appointments, missed school and hospital stays that constitute living with this disease.
Out of desperation and in an attempt to bring in more money, Logan’s father accepted a job for better pay in a city far from home. The cost of moving expenses coupled with 4 hospital stays became too much to bear and the family was in a critical position.
We are so grateful that our supporters continue to make donations to the Extended Hospital Stay Fund so that we can help families like this. We were able to cover the rent and utilities for the month of May so that they could take a breath and get settled in to their new home and new CF Center/hospital.
This grant was made possible in part by our friend Douglas Forsyth and the fundraising he is doing in honor of his young friend Connor, a 5 year old with Cystic Fibrosis. Douglas is riding his bicycle 3400 miles from Portland, OR to New York City beginning in July. Please support his efforts and thank him for his generosity by visiting his Go Fund Me Page to make a donation and following his Facebook Page. Thank you Douglas and everyone who is helping with Cycling America for CF! Your efforts are making a real difference in this family’s life.
Logan’s parents write “Our family took a huge pay cut so that my husband could attend a 2 week job training for his new position and at the exact same time, we were hit with another long hospital stay, the 4th this year. Without help from Claire’s Place Foundation, we would not have had the money to cover our rent and make the move needed to start a better life. Knowing that it was taken care of took a huge burden off of our shoulders and allowed us to focus on Logan. We feel blessed! Thank you all“
Teaming up with WT Farley to Help a Family in Need
Recently we were contacted by a family looking for assistance in acquiring a portable oxygen concentrator or POC for their teen, Caleb, who had become oxygen dependent due to cystic fibrosis. This family went through a divorce and the mother, a now single parent with 3 children, was unable to find the support she needed in acquiring such an expensive device through her insurance. Most of the time, insurance carriers will provide oxygen tanks for individuals with low income but tanks are very cumbersome and make it difficult for the patient, especially young and fairly active patients, to get out and enjoy their life.
This was a challenge we were willing to take on, especially given the fact that our Founder’s primary message is one of positivity and resilience.
We were lucky to find WT Farley, Inc., a local medical supply company serving the industry for over 45 years and known for offering Innovative, Truly Relevant and Reliable service for patients needing medical supplies including medical gas, accessories and equipment. Not only were they helpful and knowledgeable, they were also inspired to donate the equipment to this family, what a blessing!
Working together, we were able to secure a brand new Inogen One G3 oxygen concentrator plus an over the shoulder carry bag for Caleb. The Inogen One G3 is compact and lightweight making it easy for him to continue his active teen lifestyle.
Caleb’s mother writes “Caleb is so grateful for his new Inogen One G3 concentrator that allows him more freedom to leave the house! Thank you to Claire’s Place Foundation and WT Farley, Inc.“