By TK Ng | Adminstration Officer
Newly introduced Session 4 for Newborn Affected Babies Care Taking Course
Even after undergoing lip and palate repair surgery, children with cleft anomalies require parental attention in many areas as they grow. The association introduced in mid-March Session 4 for Newborn Affected Babies Care Taking Courseto enhance parents' knowledge of child care during their development, preventing endless treatments and potential complications, and ensuring the best possible care and easier recovery for their children. Session 4 covers: details of follow-up multidisciplinary treatment, minor surgical revision for lip and nose asymmetry, food leakage from palatal holes, speech problem & nasal speech, poor oral motor skills, hearing problems, otitis media and ear effusion, dental problem & oral hygiene, school preparation, child psychological development, the effectiveness of nasal splints, alveolar bone graft and repair of oronasal fistula, early orthodontic treatment, youth orthodontic treatment subsidy program, secondary lip & nose revision, and jawbone correction surgery, etc.
Schooling Preparation for Children with Cleft Lip and Palate Seminar
Children with cleft lip and palate need to prepare before starting school, including psychological adaptation, speech therapy, school communication etc. This seminar, hold in mid-May by Mrs. Chik, an experienced kindergarten teacher and also mother of a cleft lip and palate boy, reminded parents to pay attention to the facial differences after lip repair, speech clarity, and peer pressure. She explained how to strengthen a child's school readiness, confidence, communication, and social skills; how to choose a suitable kindergarten; assists parents in understanding school interview techniques and details; and provides common interview questions to help children attending interviews with ease. She also offered suggestions on communicating with teachers and preventing bullying.
Prenatal & Postpartum Support for Pregnant Mothers
The mothers having unborn babies with cleft anomalies may give birth at different hospitals scattered across Hong Kong Island, Kowloon, and the New Territories. They often feel lost and helpless after the child's birth for facing the child’s physical abnormalities, feeding difficulties and the long period of cleft treatment.
As the only patient organization in Hong Kong supporting families of children with cleft lip and palate, we ensure pregnant mothers receive support early, after their initial contact with the association before delivery, the association assigns experienced volunteer parents on a "one volunteer per family" basis, providing comprehensive, 24/7 assistance. The experienced volunteer parents' tasks include:
• Sharing experiences, feelings, and strategies for coping with treatment with new parents;
• Reducing new parents' loneliness, confusion, distress, frustration, and anxiety;
• Improving new parents' skills in caring for their children to meet the challenges;
• Increasing new parents' understanding of cleft lip and palate to seek appropriate treatment; and
• Encouraging new parents to actively support their children in facing treatment.
These volunteer parents have cared for children with clefts for many years, they are true experts in raising affected children. Their experience is very useful and valuable for new parents who may feel at ease and reassured during the long treatment journey.
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By TK Ng | Adminstration Officer
By TK Ng | Adminstration Officer
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