Give HK Cleft Lip and Palate Families a Smile

by Hong Kong Association for Cleft Lip and Palate
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Give HK Cleft Lip and Palate Families a Smile
Zoom Workshops for Dental Hygiene
Zoom Workshops for Dental Hygiene

Providing information of Craniofacial Centers Abroad

 

For cleft anomalies, medicine is not required.  Instead, the patients need to undergo a few surgeries including primary lip and palate repairs, alveolar bone graft, jaw surgeries and secondary lip & nose revisions.  Besides, the patients may also need speech therapy, regular dental care, ENT follow-ups and orthodontics. 

 

The treatment of cleft lip and palate is complicated which involves several specialties and there are two phases of treatment, i.e. namely the primary and the secondary one, which altogether lasts for more than twenty years, starting from infancy to adulthood.  Thus the patients have to attend incessant follow up consultations then they can receive the entire course of treatment.

 

However, since mid of the year 2020, quite a number of our member families are planning for migration to other countries in a short span of time.  To migrate to an utterly new place, the parents have to struggle with living places, language, schools, jobs, integration into the society...

 

To give a hand to these parents and to ensure that CLP children receive continuous treatment in the new living place, HKACLP provides to the parents, contact details of the Craniofacial Centers of the most popular countries for migration, namely the United Kingdom, Australia, Canada, and the United States so that they can seek for the right hospitals to continue their CLP children’s cleft treatment without a break or delay.

 

 

Zoom Workshops for Dental Hygiene

 

CLP patients may have dental problems liked misplaced teeth, missing teeth, and extra teeth erupting behind normal teeth.  Their teeth are generally hypoplastic and of unideal quality, making the teeth more likely to decay.  As cleft lip and palate can make oral hygiene more difficult, there is an increased rate of cavities. In addition, insufficient growth of upper jaw may result in underbite which in turn can affect the patient's speech.  Therefore,dental dygiene is very important to CLP children.

 

HKACLP and the students of HKU Higher Diploma in Dental Hygiene organized Dental Hygiene Zoom Workshops for the children who are participating HKACLP’s Early Orthodontic Treatment Project, having orthodontics at Chai Wan Baptist Church Dental Clinic.  Through the workshops, we hope to guide CLP children the correct ways of maintain their dental hygiene so that their orthodontic treatment may not be forced to stop due to gum inflammation, periodontal disease, dental decay…And most of all, they can enjoy health teeth during their life time.

 

 

Adults’ Consultation for Secondary Treatment

 

As the patients are growing up, their secondary cleft lip and nose facial problems, such asymmetric & collapsed nostrils, insufficient longitude & latitude of upper lip etc. are more apparent which make them feel embarrassed and find it difficult to integrate into the society.  They are desperately in need for secondary revision surgeries to improve lip & nose function & appearance, speech, eating and social life.  

 

Since every patient's cleft condition is unique, HKACLP gives suggestions for different treatments on individual cases so as to help the patients seek for due surgical revisions.  Besides, the association provides information on pre-surgery preparation, post-operative care as well as follow-up treatments details helping the patients to have full rehabilitation.

Links:

Share on Twitter Share on Facebook
Ice breaking Game_Youths Adventure Trip
Ice breaking Game_Youths Adventure Trip

Adventure Trip for Youths

The "Adventure Trip for Youths", co-organized by the Rotary Club of Causeway Bay Hong Kong (RCCB) and the Association (HKACLP), was postponed several times due to the COVID 19 epidemic, and finally was held on 11 April successfully.

Contents of the Day Camp included a life orientation workshop, group games and high rope activity. In the AM session that day, the instructor, Gary Sir, delivered a presentation of life planning, which aimed to inspire the young members to find the goals of life and to make career planning for themselves.  After lunch, there were group games for ice breaking, practicing social skills and building of team work.  Then, they had high-rope activity which not only offer excitement, but also give chance to the youths to challenge themselves physically as well as to develop their problem-solving skills.

This activity is fun and wholesome to the youths with cleft anomalies.  HKACLP will seek for cooperation with other organizations to organize activities of the like in the future.

 

 Parent's Sharing with Primary Students

In 2021, we cooperate again with JEMS Character Academy that fosters and builds foundations of good character in children, by arranging our parent/patient to share the treatment of cleft lip and palate, as well as HKACLP's services. 

Through the parent’s/patient’s sharing, the students may know more about cleft anomalies, their difficulties and feelings, and the ways they cope with challenges. In return, the students will send cards they drawn and make some small donations to HKACLP.  Since outbreak of COVID epidemic, the personal sharing are shifted to video conferences. 

On 23 and 24 April, our volunteer parent Mrs. Almus Lau provided three sessions of sharing to JEMS students who listened carefully to Mrs. Lau’s sharing and asked questions enthusiastically.  

HKACLP takes every opportunity to enhance members of the public’s understanding about the congenital cleft anomalies, the patient’s life story and the parents’ feelings so as to promote social inclusion and harmony.

  

Orthodontic Treatment Subsidy for Cleft Lip and Palate Youths

The second phase of orthodontic treatment can help cleft lip and palate patients to further correct their “underbite” problem before completion of jawbone development.

The association has recently successfully applied for charitable fund to subsidize young people with cleft lip and palate from the grassroots and CSSA families to receive private orthodontic treatment, so that they can receive orthodontic treatment with more flexibility in time and venue, and at the same time reduce part of the parents' burden.

Objectives of the Programme:

1) Young patients may choose the treatment provided by private doctors with profound experience in cleft lip and palate orthodontics;

2) Young patients may receive timely and patient-oriented orthodontic treatment;

3) Due orthodontic treatment can help to reduce the young patients’ underbite problem, improving their eating, speaking and appearance.  And more importantly, the complexity of their future jaw surgery may be alleviated, or may even avoid, so that they may recover more easily and quickly.

HKACLP holds regular briefing sessions to explain how to participate in the treatment program, how to apply for subsidy, how patients should cooperate during orthodontic treatment, and follow-up treatment in the future.

High-rope activity_Youths Adventure Trip
High-rope activity_Youths Adventure Trip
Parent's sharing with JEMS students
Parent's sharing with JEMS students
Orthodontic Treatment Subsidy for CLP Youths
Orthodontic Treatment Subsidy for CLP Youths

Links:

Share on Twitter Share on Facebook
Donation of COVID protection materials
Donation of COVID protection materials

Distribution of COVID Prevention Materials

Standing shoulder to shoulder with the members to fight against the epidemic, HKACLP gathers COVID prevention materials from various donors and distributes them to the families of limited means with a hope that could relieve their needs and help to keep them away from the threat of the coronavirus. 

 

Prenatal Feeding Training Workshop

Under the situation of COVID-19, public hospitals have implemented special infection control measures, and thus the discharge of newborn cleft lip and palate babies who have feeding problems are much delayed inevitably.  It is because after birth the babies will be kept in nursery for 3-4 weeks to make sure that the mothers know how to feed them.  During that period, the mothers are allowed to visit their babies and to learn feeding from the speech therapists/occupational therapists once a week. 

In view of this, HKACLP arranges for the pregnant mother ‘Prenatal Feeding Training Workshop’, in which our experienced parents will give pregnant mothers the guidance and practice on feeding cleft lip and palate babies.  We hope that through this Prenatal Feeding Training Workshop the pregnant mothers can get hold the feeding skills before childbirth so as to avoid prolong hospitalization of their new born affected babies.

  

Oral Myofunctional Therapy On-line Workshop

The oral muscles of cleft lip and palate children, such as facial muscles, lips and tongue, will develop as they grow up and get more chewing experience.  During eating, the children's jawbone, lips and tongue movements must co-ordinate in order to chew food effectively.  Moreover, as young children learn to speak, the flexibility and coordination of the oral muscles is also very important.  Oral muscle dysfunction not only affects chewing, but also severely affects the speech, resulting in mispronunciation.  In the most serious cases, some children cannot even close the mouth due to failure to control the oral muscle that may result in crowded and irregular arrangement of teeth, affecting the growth of jaw bone and the appearance.

Upper jaw of a cleft lip and palate child will grow slower than the lower jaw because surgical repair for cleft palate may hurt part of the palatal muscle and thus the development will be affected.  In addition, the scar tissue on the palate lacks elasticity that forms a pulling force that hinders the growth of the upper jawbone, resulting in underbite and dented midface.  Therefore, correct oral muscle function exercise is very important for their oral and facial development! Through multiple studies by foreign experts, it has been proved that if children with proper oral muscle exercise can help their jaw bones grow, they can improve their occlusion, chewing, speech, communications and even social interaction.

In view of this, HKACLP holds regular ‘Oral Myofunctional Therapy Workshops’  for different age groups of cleft lip and palate children.  During COVID pandemic, the workshop will be presented in the form of on-line lecture.

Prenatal Feeding Training Workshop 1
Prenatal Feeding Training Workshop 1
Prenatal Feeding Training Workshop 2
Prenatal Feeding Training Workshop 2

Links:

Share on Twitter Share on Facebook
Infection Prevention for Resident Speech Therapy
Infection Prevention for Resident Speech Therapy

Infection Prevention Measures for Resident Speech Therapy Service 

To prevent Coronavirus, our resident speech therapy had been stopped for 6 months and then re-started in the format of on-line sessions.  As local new cases came down steadily since August, HKACLP resumes resident speech therapy service for cleft lip and palate children by taking infection prevention measures such as installation of separation screen, application of masks, keeping hand hygiene & physical distancing, frequent toys and equipment cleaning so as to keep safe both the therapist and the students.

 

 

Charity Cleft Lip & Palate Treatment Project

Secondary Cleft Lip and Palate Deformities 

After primary surgical repair of cleft lip and cleft palate, a CLP patient may present as growing up with secondary deformities such as collapsed and asymmetric nostrils, insufficient and asymmetric upper lip etc. Besides, due to cleft palate, a majority of patients may have their mid face and upper jaw underdeveloped, resulting in underbite, plus the lower lip tends to evert forward which results in undesirable appearance, low self-esteem, speech problems, bite problems etc.  Therefore, Secondary Treatments are very important to CLP patients.

 

Charity Cleft Lip and Palate Treatment Project

Since the closure of the Plastic & Reconstructive Department of Princess Margaret Hospital in the year 2006 due to budget cut of the authority concerned, HKACLP has been receiving quite a number of ‘Seeking for Help’ cases, including those patients waiting too long for treatments, patients in mid-twenties but not rendered any secondary treatment due to disconnected Primary and Secondary Treatment at certain public hospitals, adult patients who missed their treatment in due course… Among these patients, most of them came from families of fairly limited means.

In view of these, HKACLP sought help from the Evangel Hospital, a non-profit making community hospital.  Thus the ‘Charity Treatment Project for Cleft Lip and Palate Patients’ was launched in the year 2012 jointly by “Hong Kong Multidisciplinary & Holistic Centre for Cleft Lip and Palate” of Evangel Hospital and HKACLP.  The project aims to provide early treatments to the adult patients to help correct their secondary cleft problems and facial difference so that they will not miss their golden age of life.  Eligible patients may receive orthodontic treatment, orthognathic surgery, lip & nose reconstructive surgery and ENT treatment at half of the fees.

 

Let Love Continue - Cleft Lip and Palate Treatment Fund 

The Fund is established in the same year as the Charity Treatment Project was launched.  By then, a Mrs. Yiu’s baby boy born with Pierre Robin Sequence who had his palate repaired twice at a public hospital but completely split apart, so Mrs. Yiu turned to HKACLP for help.  The baby was thus accepted for joining the Charity Treatment Project.  He had his palate repaired successfully by the surgeons of this Charity Treatment Project.  Mrs. Yiu, apart from extending her deepest gratitude to the team, donated the 50% discounted fee amounting $40,000 to HKACLP as a token of thanks on 5 November 2012.  Thus Let Love Continue - Cleft Lip and Palate Treatment Fund was established to offer subsidy (up to 25% of the treatment expenses) to the patients from CSSA and grass-roots families who are eligible for joining the Charity Treatment Project.

Patient after lip & nose reconstructive surgery
Patient after lip & nose reconstructive surgery

Links:

Share on Twitter Share on Facebook

Donation of Protection Masks & Sanitizing Products

Due to Coronavirus Pandemic, HKACLP temporarily closed its service centre and stopped almost all services since February 2020.  As local transmission numbers have come down since May 2020, Government’s tightened measures gradually relaxes and thus the association’s operation resumes to normal.

In the initial stage of Coronavirus outbreak, there was also severe shortage of facial mask and sanitizing products, causing the prices to rise to an unaffordable level for many low-income families.  In lack of hygienic supplies, some of our members have to use a mask repeatedly for days and their safety is at risk. 

Thanks to Social Welfare Department, Jockey Club Charity Trust, Alliance of Patients’ Organizations, some Caring Organizations and Companies…for donating some surgical masks and household cleaners to the Association. These antiviral products are subsequently distributed to our members and volunteers to relieve their urgent needs.  On behalf of the beneficiaries, we would like to express our gratitude to all donors for their care and concern to the needy!

 

Whatsapp & Telephone Contacts

In the past few months when HKACLP staff members and volunteers were confined to work from home, our support to the families with cleft lip and palate patients has never stopped.  Through Whatsapp and telephone conversations, we keep contact with the parents and patients for sharing experiences and coping strategies, helping them to reduce their distress and anxiety.

  

Construction of New Website

HKACLP is a patient organisation that does not have regular subvention of any kinds.  Though the old website was quite outdated, the association has been deferring the plan of constructing new website once again due to limited resources. Grateful that a caring company offered help to us without charging a fee.  Therefore, when HKACLP’s services came to a halt during the global crisis, HKACLP took the time to establish its new website.

 

The new website is launched just in time to promote HKACLP’s Gold Flag Donation for 4 July Flag Day and there are some new payment methods to facilitate the people's donations.  Now, with the improved SEO approach, it is more easily for the parents & patients to find HKACLP on internet, and they can make real-time communications with our staff through live chat function.  Moreover, it is more convenient for the website visitors to share HKACLP's information & activities to their families & friends through the social media buttons on the web page.

Links:

Share on Twitter Share on Facebook
 

About Project Reports

Project Reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you will get an e-mail when this project posts a report. You can also subscribe for reports via e-mail without donating.

Get Reports via Email

We'll only email you new reports and updates about this project.

Organization Information

Hong Kong Association for Cleft Lip and Palate

Location: NA - Hong Kong SAR
Website:
Facebook: Facebook Page
Project Leader:
Hong Kong Association for Cleft Lip and Palate
NA, NA Hong Kong SAR
$4,333 raised of $10,000 goal
 
46 donations
$5,667 to go
Donate Now
lock
Donating through GlobalGiving is safe, secure, and easy with many payment options to choose from. View other ways to donate

Hong Kong Association for Cleft Lip and Palate has earned this recognition on GlobalGiving:

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.