Help child with rare disorder visit a clinic!

Next week, leaders from our dup15q clinics will come together to strategize and discuss the latest treatments for dup15q syndrome. They will also have the opportunity to meet four hundred family members who will be attending our family conference at the same time. It gives the families great hope to see how many professionals have dedicated their careers to advancing the science of chromosome 15q duplications. This would not be possible without the support you have given to our clinics! Thank you!!

Dup15q Alliance has facilitated the creation of nine dup15q clinics in major medical centers across the United States. These clinics are at the forefront of evaluation and treatment for the myriad symptoms that can occur in those with dup15q syndrome. For example, some children have very difficult to control seizures and the clinic staffs work to develop the most effective drug protocols for seizures in dup15q syndrome. Because it is such a rare disorder, local doctors often do not have any experience or knowledge on treatments specific to dup15q syndrome.

We are very thankful that you have chosen to help our clinics. Together we can make a real difference in the lives of those affected by dup15q syndrome!!