Help child with rare disorder visit a clinic!

by Dup15q Alliance Vetted since 2014
Help child with rare disorder visit a clinic!


We have facilitated the establishment of 9 dup15q clinics around the United States. Our goal is for each of our 900 families be able to visit a clinic to receive the best medical care available for their children with this rare disorder. Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome. Symptoms of this rare genetic disorder include autism, seizures and developmental delays.

total goal
monthly donors


Dup15q syndrome is a rare genetic disorder caused by a duplication of chromosome 15q11.2-13.1. Individuals with this disorder often have autism, seizures and global developmental delays. Parents have a difficult time finding information and medical care specific to dup15q due to it's rarity. Dup15q Alliance provides education and support for those affected by dup15q and encourages research and targeted treatments.


Dup15q clinics provide comprehensive health care for individuals with dup15q syndrome. Physicians in all the clinics collaborate to create the best evaluation and treatment protocols. Children with dup15q syndrome often have a difficult time with even small changes to their routine. Medical visits can be very traumatic. Staff at the dup15q clinics work to maximize the results while minimizing the disruption to the lives of these developmentally-disabled children.

Long-Term Impact

With focused evaluation and treatment of individuals with dup15q syndrome, more will be learned about this rare disorder. We will improve the lives now of those dealing with dup15q now with more effective therapies and diagnostic tools. Our hope is that clinicians and bench scientists will one day be able to create targeted treatments for dup15q syndrome.


Dup15q Alliance's website

Organization Information

Dup15q Alliance

Location: Highland Park, IL - USA
Facebook: Facebook Page
Twitter: @dup15q
Project Leader:
Dup15q Alliance
Fayetteville, NY United States
$2,444 raised of $5,000 goal
25 donations
$2,556 to go
Donate Now Add Project to Favorites

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence


Woman Holding a Gift Card
Gift Cards

Young Girl with a Bicycle

Sign up for the GlobalGiving Newsletter

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.