Myles Did you know? One Dup15q Alliance Family Myles

Dup15q Alliance

Org #17750
Vetted since 2014
1994
year founded
$11,546
raised on GlobalGiving
4
years fundraising
1
projects funded

Mission

Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for dup15q syndrome.

Project Leaders
Dup15q Alliance
Dup15q Alliance
Team
Vanessa Vogel-Farley
Organization Information
P.O. Box 1669
Highland Park, IL 60035
United States
855-387-1572

Bridge Registry   BRIDGE# 6580624503
Organization Information
P.O. Box 1669
Highland Park, IL 60035
United States
855-387-1572

Bridge Registry   BRIDGE# 6580624503

Project Reports

Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work.

Dec 12, 2018
Thank you for supporting Miles for Myles
Challenge Dup15q syndrome is a rare genetic disorder caused by a duplication of chromosome 15q11-13. Individuals with this disorder often have autism, seizures and global developmental delays. Parents...
Dec 12, 2018
Thank you for sending a family to Conference for
  Hi GlobalGiving donors! One dup15q mom tells it best: Three whole days dedicated to this condition, which my son had been diagnosed just one month prior? A month that shook us to our core, not...
Dec 12, 2018
Thank you for helping a child visit a clinic!
Dup15q Alliance has facilitated the creation of nine dup15q clinics in major medical centers across the United States. These clinics are at the forefront of evaluation and treatment for the myriad...
 
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