Help child with rare disorder visit a clinic!

Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for dup15q syndrome. Symptoms of this rare genetic disorder include autism, seizures and developmental delays. Every two years we hold a conference for affected families to provide education on the latest treatments for dup15q and to create a sense of hope and community that is often difficult for our 1,000 registered families to find locally due to the rarity of the disorder.

Dup15q Alliance has facilitated the creation of 16 dup15q clinics in major medical centers across the United States. These clinics are at the forefront of evaluation and treatment for the myriad symptoms that can occur in those with dup15q syndrome. For example, some children have very difficult to control seizures and the clinic staff work to develop the most effective drug protocols for seizures in dup15q syndrome. Because it is such a rare disorder, local doctors often do not have any experience or knowledge on treatments specific to dup15q syndrome.

We are very thankful that you have chosen to help our clinics. Together we can make a real difference in the lives of those affected by dup15q syndrome!!

Links:

• Dup15q clinics and LADDER Learning Network