Changing the World One Bedside at a Time

In November 2025, in recognition of the International Day of Care and Support, the International Association for Hospice and Palliative Care (IAHPC), in collaboration with representatives from the World Health Organization (WHO) Department of Mental Health and Healthy Ageing, organized a free webinar on Palliative Care for Persons with Dementia. The purpose of the webinar was to introduce the WHO caregiver support tools—particularly the iSupport program—to the global palliative care community. The session was recorded and is available at no cost as an educational resource for professionals and caregivers supporting individuals living with dementia.

The IAHPC webinar was designed for clinical practitioners—especially those working in palliative care and mental health—as well as formal and informal caregivers, nursing home administrators, WHO country and regional offices, media representatives, and members of the public interested in evidence-based approaches to dementia care and palliative care integration.

Anyone with internet access can view the webinar recording in this page. Participants in the live session, as well as those who watch the recording, gain insights into:

• The global framework that commits Member States to provide palliative care for older persons, including those living with dementia, supporting advocacy efforts with national governments

• Practical guidance on how to use the WHO iSupport tools for family caregivers of people with dementia

• The Compassionate Communities movement and its relevance to dementia and palliative care

• How family caregivers can recognize and respond to the palliative care needs of their loved ones living with dementia

The webinar also features strategies and personal reflections to support caregivers in providing compassionate, culturally appropriate, and practical dementia care across countries and settings of all resource levels.

iSupport is a self-help skills and training program developed by WHO for caregivers of people living with dementia. It aims to reduce caregiver stress, strengthen knowledge, and improve quality of life, while supporting caregivers in delivering more effective and compassionate care. The program is available online at www.isupportfordementia.org and as a downloadable PDF manual, ensuring access in settings with limited internet connectivity. iSupport includes five core modules—Introduction to Dementia; Being a Caregiver; Caring for Me; Providing Everyday Care; and Dealing with Behavior Changes—and features concise readings, practical examples, and interactive exercises with immediate feedback.

Links:

• IAHPC - WHO Webinar for caregivers of persons with dementia

Bhutan had no palliative care activity until 2016 when two nurse-lecturers from its medical university travelled to Kerala, India, to attend six weeks of hands-on training at Pallium India. On their return, they advocated for palliative care among relevant stakeholders, which resulted in a few additional nurses being sent to Kerala for training. The following year, a Cancer Control and Palliative Care Workshop held in the capital, Thimphu, sensitized Bhutanese healthcare professionals on the principles of palliative care. In 2018, Jigme Dorji Wangchuck National Referral Hospital (JDWNRH) established the country's first palliative care service: home care for patients with advanced cancer living in Thimphu.

Education & training were key
Going the extra mile: A driver and palliative care nurses Denkar and Ambika carry supplies from the nearest road, through the woods, to a patient’s home. Photo used with permission.
Education and training were crucial factors in developing palliative care. In 2018, a team from the Asia Pacific Hospice Palliative Care Network (APHN) began an annual training program on palliative care modules for Bhutanese healthcare professionals. When it was disrupted by COVID-19, the home care team continued to enhance their knowledge and skills through virtual collaborations and self-directed learning.

Locally designed care is important
While attending to the increasing demand for home palliative care, the handful of team members along with other JDWNRH professionals developed a local training module in collaboration with the Institute of Palliative Medicine (IPM) in Calicut, Kerala.

By 2020, PhD research had reported complex palliative care needs in Bhutan and emphasized an urgent need for culturally and spiritually appropriate services.4-7 Other studies highlighted achievements and challenges faced by the home care service.

Huge response by healthcare providers
In 2023, the two online certificate courses, for pediatric and adult palliative care, (six 75-minute sessions) each drew more than 200 healthcare professionals from across the country. These programs were supported by Two Worlds Cancer Collaboration, Hyderabad Centre for Palliative Care, Australasian Palliative Link International, and Pallium India. The finding of the pre/post-tests of the pediatric session is encouraging.10

The impact of a trained physician
In early 2024, the nation's first palliative care physician, trained at the National Cancer Centre in Singapore, joined the home care team. Simultaneously, palliative care services expanded to in-patient consultations and an outpatient clinic at the national referral hospital. On average, 18 patient consults occur every month. The presence of a palliative care physician has contributed significantly to the expansion and formalization of services, enhancing both accessibility and integration of palliative care within the hospital system.

Today's home care team
Today, the home care team comprises five dedicated nurses and a palliative care physician supported by a nurse anesthesiologist, physiotherapist, and geriatrician. Unique to Bhutan is the integration of traditional medicine with the national health system. Drungtsho, a traditional physician, is a member of the palliative care team.