Larisa is an accountant and a mom of two boys. She has been living in Stavropol in southwestern Russia her whole life, and she enjoyed her happy marriage and the great outdoor nearby.
Unfortunately, in 2019 she had a severe bleeding and had to be hospitalized. Blood tests revealed serious issues with her blood, and Larisa was diagnosed with acquired idiopathic aplastic anemia, a rare blood disorder resulting from bone marrow failure to produce blood cells. Larisa began treatment immediately, but it did not help her, and she has been relying on monthly blood transfusions ever since. However, ongoing transfusions too can cause serious health issues. The only remaining treatment is bone marrow transplant from a donor.
No matching donors were found among Larisa's relatives or in the Russian donor registry. Her only hope is to find an unrelated donor in an international donor registry. The cost of the search is 23 thousand euros - an astronomical amount for Larisa's family. Her husband is a driver, and he is the only provider at this time. The family was able to come up with 6,000 euros, but needs help raising the rest of the money.
We would love to help Larisa and other patients like her! This year, we were able to support 5 cancer patients with the total payments to the donor regsitry of over $32,000. We hope that with your help we can increase this number and save even more lives!
Thank you so much for your kind support! Keep an eye on the Giving Tuesday - an annual event celebrating charitable community, its volunteers, donors and supporters. This year it will occur on November 30th and all your donations to our project will receive a proportional match from GlobalGiving's total bonus fund of $1 million. We would love for you to mark your calendars and show us your support on that day.
Each of the patients we support has a story to tell, and every experience is unique. It is our priviledge to be able to witness these moving stories and provide help whenever possible. We hope that by sharing these stories with you we let you see the world through the eyes of someone who faces a terminal illness - and finds strength to live a normal life.
One of the most inspring patients we have seen is 21-year-old Yegor from Moscow. In January, he had the third recurrence of acute leukemia. The first time he got sick he was 15, and his treatment lasted almost 2.5 years. Yegor was in remission for only eight months, but in that time he was able to accomplish a lot - he graduated from high school, passed a driving test and got his driving license, and enrolled into Sechenov Moscow First State University to study medicine.
When Yegor relapsed in August 2018, the doctors searched extensively for a compatible bone marrow donor in Russian and foreign registries, but none was found. In December of that year, Yegor received a transplant from his father who was a 50% match, but he relapsed just months after. The next transplant was from his mother who was a 70% match. Through these challenging times, Yegor continued his college studies - mostly remotely, but also in person when he was able to attend.
After the third relapse, Yegor was able to achieve remission thanks to recently approved innovative therapy with CAR T-cells. However, to strengthen the remission he still needs to undergo bone marrow transplant from a donor. Fortunately, there are now potentially matching unrelated donors available in the registry in Germany. While the family was able to raise money for the initial deposit, they are struggling to cover the whole bill after exhausting their financial resources over the years of Yegor's illness.
Yegor's calm determination to live his life on his own terms regards of what obstacles come his way is very impressive, especially for someone so young. Still, for Yegor and many other blood cancer patients, bone marrow transplants are often the only curative treatments for blood cancers. Finding a matching donor withourt delay will allow these patients to return to normal lives and achieve their dreams. But they can't do it on their own - and we are so grateful for your support!
Your support will help Alina return to normal life!
By Marina | Project Leader
Alina is a young woman from a village in Samara region. Since childhood she has been very active and great at sports. Many times she took first prizes in competitions. After she graduated from school she studied to become a chef. But in 2014 while she was in her second year of college, she was constantly sick with what seemed like flu - fevers, fatigue, nose and gum bleeds, and fainting spells. Alina was hospitalized in the regional hospital for two months, but she did not get any better. Then she was transferred to Hematology unit of regional University hospital and that's where she was diagnosed with acquired idiopathic aplastic anemia - a type of blood disorder in which bone marrow stops producing enough blood cells.
Alina began relying on blood transfusions and immunosuppressive therapy, but two years later her condition worsened once again. She developed paroxysmal nocturnal hemoglobinuria - a blood disease in which red blood cells are destroyed. In addition, frequent blood transfusion led to iron overload in her blood. Alina's condition continued to deteriorate over time and in late 2019 she was referred to St. Peterburg for bone marrow transplant - the only potential cure in her situation.
It took a long time - over a year - to find a matching donor for Alina. Finally, in February 2021 a donor was found in Israel. Alina was scheduled for pre-transplant therapy to be followed by transplantation. Unfortunately, her father passed away, and her family is unable to afford the full cost of bone marrow donor search. Thanks to your support, we will be able to make a deposit of 5000 euros to help Alina access the lifesaving treatment as soon as possible.
We are very grateful for your support despite the pandemic and all the challenges it has brought on! Thank you for being with us and stay safe!
Project reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.
If you donate to this project or have donated to this project, you can recieve an email when this project posts a report. You can also subscribe for reports without donating.
Give the gift of stability in a time of instability. Set up an automatic, monthly gift now and get matched at 100%—because the COVID-19 pandemic has hurt us all, and it will take all of us to overcome it. Terms and conditions apply.
Monthly giving is as easy, safe, and as inexpensive as a Netflix subscription. Start a monthly donation to Advita Fund USA today and get matched at 100%. Terms and conditions apply.