Pediatric AIDS Treatment Support

Promoting healthy childhoods through community partnerships
Jun 12, 2012

Show Your Support to a PATS Advisor and Hero

Dear PATS Supporters,

I'm currently in China, about to go visit the PATS sites in Anhui and Henan. On May 15, just before I come back to the states, I'm going to Hangzhou to visit PATS senior adviser Dr. Wang LiyaoHe is a 72 year old retired sociology professor from Hangzhou. He has been involved in AOS (AIDS Orphan Salvation Association of China) and PATS since 2004, and has served as PATS's senior adviser ever since. He has been crucial to our work in liasing between AOS and PATS. He frequently visited Fuyang  once ever 2-3 months and personally knows all of the PATS children and oversees their care, helps to educate their parents, and train our community health workers.

 

I think everyone who's interacted with him can agree that in a country with 1 billion plus people, Dr. Wang is one of a kind. Unfortunately, of late he's been fighting metastasized pancreatic cancer, and will soon begin chemotherapy.
I think it would mean so much to him to know how much the PATS community supports and appreciates him.

 

Please show your support in honor of him by donating whatever you can to PATS.  We will relay the message that our GlobalGiving supporters are behind him and the organization he has been helping to sheperd all these years.

 

Sincerely,
Jialan Wang
PATS Board Member
Jun 6, 2012

Update from Field Visit in May, 2012

Me, with Mr. and Mrs. Wang
Me, with Mr. and Mrs. Wang

I recently returned from a field visit to our operations in Henan and Fuyang in May. PATS’s work is progressing smoothly, and I observed visible improvements in the children’s health and well-being.

Xinxing, a 9 year old boy in Henan, has gotten much healthier since he switched to 2nd line drugs this year. He sang a popular song “Xuexi Lei Feng” and read aloud from a book we bought for him when we visited. Xueqiang, a 10-year-old boy in Fuyang, is probably most improved of all. Xueqiang had poor adherence due to a fluctuating home situation when I visited last year, but he has had nearly perfect adherence during all of PATS’s home visits this year, and his family plans to send him to school in the fall after a long hiatus.

But my most memorable experience was visiting longtime PATS senior advisor Wang Liyao at his home in Hangzhou. Mr. Wang is a 72-year-old retired professor originally from Anhui, and he has been with PATS and our local partner AOS since the very beginning in 2003. He was diagnosed with metastatic cancer of the pancreas in March of this year, and is currently undergoing chemotherapy.

During my visit on May 15 he spent quite a bit of time relating to me his vision for improving our measurement of drug adherence, showing that PATS is on his mind despite his illness and treatment.  A few words from Mr. Wang to the PATS community:

“Fortune is not unfair to me. It bestowed misfortune on me, but meanwhile, it gives me so much happiness and joy. Thank you, to the PATS community, for all of your heartfelt wishes, warm letters, and emails. Your words moisten my heart just like the rain and dew, enlighten my life just like sunshine.”

If you would like to donate in honor of Mr. Wang and send him a personal message of support, please choose “Make this donation in honor of someone” to the right of this report, and email your message to me at jialanw@gmail.com so I can forward it to Mr. Wang.

Warm Regards,

Jialan Wang
PATS Board Member

---

Video messages from Mr. Wang, that I recorded on May 15:
English: https://vimeo.com/43052942
Chinese: https://vimeo.com/43013597

You can read more about Mr. Wang, PATS's unsung hero, in our last newsletter:
http://patskids.org/sites/default/files/April%202012.pdf

And see him in action on video from our site visit last year:
http://vimeo.com/album/1750034

Apr 16, 2012

Sponsor a Child Spotlight: Yao

Yao Yao
Yao Yao

Hi Everyone,

We hope you are all enjoying the splendors of the spring season.  In this newsletter we wanted to highlight one of our children who is open for sponsorship through generous donors like you.  Sponsoring a child provides for all of their needs throughout the year, and is a great way to keep engaged with one particular child.  

Yao Yao lives in the countryside in Funan, Anhui with his parents, both of whom are HIV-positive. Yao is like any other sever year old boy - he loves to play with his friends and never uses his indoor voice! Although life in rural China is difficult, Yao’s brother was able to secure employment as a migrant worker and began sending the family a small stipend. About 10 months ago, our workers noticed that Yao’s arms were bruised. Assuming that the bruises resulted from normal kids’ play, the issue was set aside for the time being. When the bruises persisted, our workers repeatedly asked Yao’s parents to bring him to the doctor. Yao was quickly diagnosed with a dangerously low platelet count and hospitalized for 13 days for the first of two rounds of treatment, for which his parents had to borrow money to pay out of pocket.

While his health improved significantly, Yao is waiting to receive a second round of treatment and unfortunately, his family does not have the necessary funds. Our workers are now working with the family to see if the treatment can be financed by the government. Yao’s mom has been so worried that she lost 12 pounds in one month. Our workers have listened to her concerns intently and encouraged her to take care of herself so she will have enough strength to continue to care for Yao. 

This example illustrates the complexities of  providing care to children living with HIV/AIDS. In reality, care extends much beyond a pill counting chart. It requires attention to detail like noticing bruises on a child’s arm, patience to listen to the parents’ worries with empathy and problem-solving skills to help the parents resolve challenges. The family situation is completely different for each child and, in turn, our workers tailor their approach to ensure that each PATS child gets the care and support they need and deserve.

To help PATS in our endeavor to provide children like Yao with a brighter future, please consider sponsorship.  Visit www.patskids.org for more information.  

Check out the many other ways to engage with PATS:

Thanks for your continued support!

 

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