Sep 6, 2019

September One More Nurse Update

Due to your overwhelming generosity and support, the total funds that we have raised from the OneMoreNurse Campaign through GlobalGiving over the last few years, have exceeded our initial target,Our regionally based Specialist
Neurofibromatosis (NF) Nurses currently support nearly 1300 children, with a rate of new referrals of approximately 15 per
month. Of this cohort, circa 1200 of them are in the school system. We are also aware that there are still large swathes
of the UK that do not have regionally based Specialist NF Nurses. Three more will come on board in the next year, but many more are required. If you live in such an area our two Specialist NF Nurses, who operate the National Helpline are still able to help and with your donations you do have a massive impact on running this Helpline

We will announce further details when we have a confirmed start date, but we are hoping it will be before the end of this year.

Thank you all for your commitment and donations.

Links:

Jun 13, 2019

June 2019: One More Nurse Update

England Map
England Map
Due to your overwhelming generosity and support, the total funds that we have raised from the OneMoreNurse Campaign through GlobalGiving over the last few years, have exceeded our initial target, and so we have been able to set plans in motion to launch an additional new post in Sheffield. 

The Specialist NF Nurse, responsible for supporting those in the region diagnosed with NF type 1, NF Type 2 and Schwannomatosis, will be based in The Sheffield Children's Hospital and will cover................. 

We will announce further details when we have a confirmed start date, but we are hoping it will be before the end of this year.

Thank you all for your commitment and donations.

The Nerve Tumours UK Team

Links:

Mar 13, 2019

March 2019

Thank you all for your donations over the last year we have in total received £2,160.50

 

Neurofibromatosis is a genetic condition which can be life-limiting and impairs the quality of life. 

Some people inherit the condition, others are affected by a random mutation. Nerve tumours can affect any ethnicity, class or sex, and there are currently over 26,000 people in the UK who have one of the neurofibromatoses.

Our Specialists provide crucial medical and emotional support to patients with neurofibromatoses. 

But whether you have access to one is a postcode lottery – there are large areas of the country with no provision of support. We need at least five more NF nurses so let’s make a start and help thousands more people and you significantly helped us on the way to achieve our goal!
Please continue supporting us! 

Links:

 
WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.