One More Nurse

by Nerve Tumours UK
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One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse
One More Nurse

Summary

Neurofibromatosis ((NF) is one of the most common neuro-genetic conditions. It can be life-limiting and destroys the quality of life. Our community-based specialist nurses provide vital support and advice, both medical and non-medical to patients, their carers, and their families. However, we do not have enough funds to cover the whole of The UK with regionally based nurses at present.

$56,087
total goal
$54,502
remaining
13
donors
1
monthly donor
1
year

Challenge

People diagnosed with NF can be vulnerable / isolated and are immensely distressed by the pandemic. Some of their complications make them more susceptible to catching Covid-19. NF is not well understood by most of the medical profession. GP's or Non-medical professionals may have little or no knowledge at all. Demand for our services increased dramatically, further escalation is anticipated post lockdown due to an increase in loneliness and poverty having an effect on general and mental health.

Solution

We need to expand our Specialist Support Network to reach all parts of the UK. We currently have seven regionally based nurses, but we anticipate we need ten more, each costing approx. 15k per annum. Help us to fund more nurses, so that everyone diagnosed with Neurofibromatosis in the UK has access to the services of a regionally based specialist nurse, and the chance of a better quality of life.

Long-Term Impact

NF manifests itself in many ways and has many associated conditions, therefore impacting on many areas of people's lives, not just health. The specialist nurses take a lead role in liaison and advocacy with health, education and social services to support quality and continuity of care for those affected by NF. They help people to learn to live with their diagnosis and to equip them with the knowledge of when, where and how to seek help. The patient can enjoy a better quality of life, every day.

Resources

https:/​/​nervetumours.org.uk/​
Nerve Tumours UK

Organization Information

Nerve Tumours UK

Location: London - United Kingdom
Website:
Facebook: Facebook Page
Twitter: @NerveTumoursUK
Project Leader:
Markus Bell
London, United Kingdom
$1,585 raised of $56,087 goal
 
13 donations
$54,502 to go
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