Mar 22, 2021

Crisis Support - One More Nurse in Southampton

#OneMoreNurse
#OneMoreNurse

Dear Friend,

For those that have donated and supported us over the recent months we are more than grateful. Please spread the word on the importance of our nurses and specialist network specifically in the current situation of crisis. And now the news that everyone is wating for. We have a new nurse working for us in Southampton covering the Wessex region. Welcome Tracey Kenyon to the team of Specialist Neurofibromatosis Nurses 

Tracey initially trained as an adult and paediatric nurse and Health Visitor. After acquiring a range of experience in paediatric nursing she moved into Health Visiting before moving into child development and disability services, initially as a Specialist Health Visitor and latterly as a Nurse Consultant.

Since then, Tracey has been involved in teaching and working for the DWP, but COVID and working from home, has made her realise she wants to return to working with people, the NF community and is now based at Wessex Clinical Genetics Service - Southampton.

As you know Nerve Tumours UK funds a unique Specialist Support Network for the 26,500 plus, children and adults, diagnosed with Neurofibromatosis (NF), one of the most common neuro-genetic conditions, that causes tumours to grow on nerve endings, and with many associated medical issues. A predominantly community-based service, offering both medical and non-medical advice and support, not just in clinics, but in schools, in employment, navigating the welfare system, and acting as advocates in tribunal and legal cases. These Specialists are highly qualified medical professionals and therapists and link with the many other professionals involved in the care of anyone with NF.

We are a "one-stop-shop" for people with NF and each member of our Network currently reaches out to between 500-3500 families per year, so thousands of families affected by Neurofibromatosis have a better quality of life because of this medical, practical and emotional support. New referrals come along each week, yet without our Specialist Support Network, there is no such for these patients elsewhere. We anticipate that for each person with NF that we help, we also help on average 8 members of their wider network, thus helping hundreds of thousands.

Families affected by NF contact the team for a wide range of reasons as it is a very complex and varied condition. People are often both vulnerable and often isolated, and are immensely distressed by the current situation, as some of their complications make them more susceptible to catching Covid-19. NF is not well understood by most of the medical profession, most GPs will have only a handful of patients on their list, so their experience is likely to be limited and non-medical professionals may have little or no knowledge of the condition. Our team will link individuals to other resources thus helping to achieve some sense of control in a situation that feels potentially threatening and unsafe.

Therefore, over the past months, we have had no choice but to continue operating on a business as usual basis as best we can, running up all usual core costs, whilst our income streams have been totally depleted. Both of the vacancies that we planned to fill in 2020 now have a nurse in place. This is not where we want to stop as there are too many regions in the UK without access to the specialist service and our planning has already started. Stay tuned for further positive news over the next months and if you can support us. We will continue with our aim to make every day better for those that have the illness.  We hope for your continued support as the network is growing and your donations helped us to be able to do so. 

Links:

Nov 19, 2020

Crisis Support - One More Nurse in Sheffield

#OneMoreNurse Appeal
#OneMoreNurse Appeal

Dear Friend,

For those that have donated and supported us over the recent months we are more than grateful. Please spread the word on the importance of our nurses and specialist network specifically in the current situation of crisis. And now the news that everyone is wating for. We have a new nurse working for us in Sheffield covering the the South Yorkshire region and welcome Clare Dhillon to the team of Specialist Neurofibromatosis Nurses 

As you know Nerve Tumours UK funds a unique Specialist Support Network for the 26,500 plus, children and adults, diagnosed with Neurofibromatosis (NF), one of the most common neuro-genetic conditions, that causes tumours to grow on nerve endings, and with many associated medical issues. A predominantly community-based service, offering both medical and non-medical advice and support, not just in clinics, but in schools, in employment, navigating the welfare system, and acting as advocates in tribunal and legal cases. These Specialists are highly qualified medical professionals and therapists and link with the many other professionals involved in the care of anyone with NF.

We are a “one-stop-shop” for people with NF and each member of our Network currently reaches out to between 500-3500 families per year, so thousands of families affected by Neurofibromatosis have a better quality of life because of this medical, practical and emotional support. New referrals come along each week, yet without our Specialist Support Network, there is no such for these patients elsewhere. We anticipate that for each person with NF that we help, we also help on average 8 members of their wider network, thus helping hundreds of thousands.

Families affected by NF contact the team for a wide range of reasons as it is a very complex and varied condition. People are often both vulnerable and often isolated, and are immensely distressed by the current situation, as some of their complications make them more susceptible to catching Covid-19. NF is not well understood by most of the medical profession, most GPs will have only a handful of patients on their list, so their experience is likely to be limited and non-medical professionals may have little or no knowledge of the condition. Our team will link individuals to other resources thus helping to achieve some sense of control in a situation that feels potentially threatening and unsafe.

Therefore, over the past months, we have had no choice but to continue operating on a business as usual basis as best we can, running up all usual core costs, whilst our income streams have been totally depleted. On of the two vacancies that we planned to fill this year is now already working so stay tuned over the next weeks for further positive announcemnts. We will continue with our aim to make every day better for those that have the illness.  We hope for your continued support as the network is growing and your donations helped us to be able to do so. 

Links:

Jul 17, 2020

We need your support in the current crisis

Specialist Neurofibromatosis Nurses UK
Specialist Neurofibromatosis Nurses UK

Dear Supporter,

For those that have donated and supported us over the recent months we are more than grateful. Please spread the word on the importance of our nurses and specialist network specifically in the current situation of crisis. 

As you know Nerve Tumours UK funds a unique Specialist Support Network for the 26,500 plus, children and adults, diagnosed with Neurofibromatosis (NF), one of the most common neuro-genetic conditions, that causes tumours to grow on nerve endings, and with many associated medical issues. A predominantly community-based service, offering both medical and non-medical advice and support, not just in clinics, but in schools, in employment, navigating the welfare system, and acting as advocates in tribunal and legal cases. These Specialists are highly qualified medical professionals and therapists and link with the many other professionals involved in the care of anyone with NF.

We are a “one-stop-shop” for people with NF and each member of our Network currently reaches out to between 500-3500 families per year, so thousands of families affected by Neurofibromatosis have a better quality of life because of this medical, practical and emotional support. New referrals come along each week, yet without our Specialist Support Network, there is no such support for these patients elsewhere. We anticipate that for each person with NF that we help, we also help on average 8 members of their wider network, thus helping hundreds of thousands.

Families affected by NF contact the team for a wide range of reasons as it is a very complex and varied condition. People are often both vulnerable and often isolated, and are immensely distressed by the current situation, as some of their complications make them more susceptible to catching Covid-19. NF is not well understood by most of the medical profession, most GPs will have only a handful of patients on their list, so their experience is likely to be limited and non-medical professionals may have little or no knowledge of the condition. Our team will link individuals to other resources thus helping to achieve some sense of control in a situation that feels potentially threatening and unsafe.

Therefore, over the past months, we have had no choice but to continue operating on a business as usual basis as best we can, running up all usual core costs, whilst our income streams have been totally depleted. This year we had planned to fill two vacancies and introduce two new posts, but given the current financial climate, we have had to put these plans on hold.

We are now asking for your help to get back on track, please. No matter how small the donation, every pound helps. As always, all monies received via this platform will be restricted to fund new regional posts. We will keep you updated over the next months on progression and our planned fulilment in regards to the vacant positions and possibile new aditions to the specialist Neurofibromatosis nurses team with the aim to make every day better for those that have the illness.  

 
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