The Rwanda Down Syndrome Organisation has found a partner who will offer them a free office space from the beginning of January. This is a great step forwards for the organisation, allowing them to reallocate funds towards expanding their activities supporting people with Down syndrome in the country. We are supporting them to plan strategically for how best to do this over the next year.
The Down's Syndrome Foundation of Zambia have recently moved their office to Lusaka, the capital city of Zambia. This will allow them to develop their links with government and other organisations working in Zambia. They have been developing a partnership with the Ministry of Health and are hoping to sign a Memorandum of Understanding soon.
In Uganda we have made progress with arranging treatment for two children with Down syndrome with serious heart conditions. This was very urgent as in Uganda some children with Down syndrome die each year as they cannot access heart surgery. We are working to develop longer term solutions to the problem of children with Down syndrome being unable to access heart surgery.
2017 has been a great year for our organisations in Africa – they have made great progress in a number of areas including health, education and self-advocacy. Thank you for helping us to make this happen, we are optimistic that next year we will progress even further!
Dec 20, 2017
The project has finished successfully!
By Nathan Rowe - Capacity Development Officer
Baby with Down syndrome
This project is finished! Sociedad Peruana de Sindrome Down (SPSD) did a fantastic job implementing it, reaching even more families than planned and receiving excellent feedback from parents who participated in the project. We would like to express our gratitude to everyone who donated and made this project happen, thank you all!
SPSD produced and distributed information kits to 150 families with babies with Down syndrome, with each kit including: a bag with the SPSD logo; leaflets with information about Down syndrome and the rights of people with disabilities; a small book called "Your baby with Down syndrome has been born"; and other materials with information about early development and medical issues associated with Down syndrome. The picture below shows one of the kits.
The meetings were able to reach 49 families in total, 9 more families than planned. Feedback from parents after the meetings was very positive, with key messages including not feeling alone anymore and feeling more secure and confident as parents. A highlight for many parents was meeting young people with Down syndrome, which was described as completely changing their perception of what life for their baby could look like.
Thank you again to everyone who donated this project and helped to make it a great success! You have made a big difference to the lives of young children with Down syndrome in Peru!
Oct 5, 2017
DSi's work in Rwanda, Algeria and Uganda
By Roxanne Harley - Fundraising, Communication and Events Manager
Children with Down syndrome in Algeria
The Rwanda Down Syndrome Organisation is still making progress, continuing its work reaching out to people with Down syndrome and their families. The organisation is currently working on a website, which will enable them to promote their work across the country.
We have been reaching out to organisations working to support people with Down syndrome in new countries across the continent. One of these is the Down Syndrome Association of Tlemcen, an organisation based in Algeria. We have provided them with support and information on how to adapt teaching methods for children with Down syndrome, and also on supported employment as a method to support adults with Down syndrome to find work.
In Uganda we have been working with the Uganda Down’s Syndrome Association to support access to critical heart surgery for young children with Down syndrome. Some babies and young children with Down syndrome have serious heart conditions which require costly and complex surgery, which is out of reach of many families in Uganda. This is a very pressing issue as children have died in the past year without surgery, but we are identifying partners that can support these operations and save lives.
All this work has been made possible by the generosity of everyone who has donated to the campaign. We are very grateful to everybody who has donated and will carry on using all money raised to support people with Down syndrome across Africa.