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 Health  India Project #20786

Care beyond cure for Cancer Patients in Hyderabad

by PAIN RELIEF AND PALLIATIVE CARE SOCIETY
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Care beyond cure for Cancer Patients in Hyderabad
Hospice patient getting his last shave
Hospice patient getting his last shave

Pain Relief and Palliative Care Society

Annual Report FY2018-19 ( 1st April 2018 to 31st March 2019)

 

It is indeed a pleasure to chronicle this extraordinary journey of Pain Relief and Palliative Care Society year after year. Every year is equally momentous and significant with goal posts getting shifted further and further. The year 2018-19 has been no exception.

The year saw consolidation in all the existing programs even while the members of the society were busy implementing the District Palliative Care Centres program in eight districts of Telangana State. The society can proudly declare that it has successfully established Palliative Care Centres in 8 District/Area/Teaching hospitals spread across the state from Adilabad to Khammam. This work involved daily coordination with District Collectors, Medical Superintendants and Civil contractors apart from recruiting and training 112 staff consisting of Doctors, Nurses, Physiotherapists Ayammas and others. All the 8 centres became fully functional and found wide spread patronage with hundreds of patients visiting them every day. The centres were finally handed over to the District Medical Authorities on                        31st March 2019. It is indeed a feather in the cap of the society to have successfully completed such a monumental and gigantic task and that too entirely on a voluntary basis.

Meanwhile, all the other programs went on smoothly and seamlessly with Room 34 of MNJ Government Cancer Hospital serving as the nerve centre. In a nutshell the society is presently running the following programs:

1. 21 Bed Kumudini Devi Hospice in Kukatpally where on an average 60 patients get admitted every month.

2.   Home care program in the city of Hyderabad and surrounding areas with 5 vans caring for 300 plus patients on any given day averaging between 18-20 visits/day.

3.  A unique Pediatric Palliative Care program embedded in the Oncology unit of MNJ Cancer Hospital looking after children’s’ need and support while undergoing cancer treatment which is now going to be extended to the neighbouring Niloufer children’s hospital to care for non-cancer palliative care needs.

4. Supporting activities of Department of Pain and Palliative Medicine in MNJ Government Cancer Hospital.

5. Training, education and advocacy in the field of Palliative Care. Conducting six weeks certificate course in pain and palliative medicine/nursing in association with MNJ Cancer Hospital.

6. Supporting Home care program in Vishakapatnam being run by Age Care Foundation.

7. Conducting a virtual training program under the ECHO umbrella in which participants from both national and international locations join and undergo continuing medical education in niche subjects like pediatric palliative care etc.

8. A unique oral cancer early detection project is also underway in partnership with Two Worlds Cancer Collaboration using the latest medical equipment called Velscope to detect oral cancers in the rural set ups.

The society has on its rolls a dedicated, committed and well trained staff consisting of              10 Doctors, 22 nurses, 6 social workers and 30 other supporting staff rolling out all the above programs. The fact that all the society’s services are being offered entirely free of cost is a matter of great pride to all of us and also a tribute to the generosity of our institutional and individual donors both big and small.

In keeping with our past trends of ever expanding the palliative care services even while running the existing services, the society signed an MOU with Government General Hospital, Kurnool to start a Palliative Care centre which was inaugurated on 18th May 2019. While the entire infrastructure for the centre is provided by the Hospital, the salaries of the staff are being borne by PRPCS. The centre in Kurnool consists of an 8 bed in-patient facility in the hospital premises and home care program covering the city of Kurnool and surrounding areas along with out-patient services. Presently there are no palliative and end of life care facility in Kurnool and its surrounding areas and hence we expect this centre which will be the first of its kind in the state of Andhra Pradesh to play a major role in not only taking care of the needs of those suffering from end stage diseases like cancer but also be a role model for Government Hospitals in other districts to emulate.

PERFORMANCE STATISTICS: FY2018-19

Kumudini Devi Hospice:

No. of admissions – 741

Male- 346

Female- 359

Children- 36

 

Home Care Program:

Total Number of Registrations- 574

New visits- 571

Review visits – 3136

Total visits- 3692

 

Pediatric Palliative Care Program:

New patients- 306

Patients Review - 6057

Total – 6363

 

Supporting Department of Pain and Palliative Care, MNJ Government Cancer Hospital

New Patients - 4238

Review patients – 17621

 

Behind these figures and statistics lie extraordinary stories of hope, courage, love and compassion. These are not mere patients but are mortal beings who will not go back to their previous lives and have to deal with the ultimate reality of life ending in the near future. To care for such patients calls for qualities which are rarely found among most of us. No words can effectively describe and capture the dedication and selfless service of our staff of Doctors, Nurses, Social workers, Physiotherapists and so many others who work tirelessly and reach out to the patient and their caregivers for providing both care, comfort and dignity in the last stages of their lives.

Statement of Annual Expenditure- Program Wise

  1. Kumudini Devi Hospice- Rs. 64,59,345
  2. Home Care Program-Rs. 50,70,351
  3. Pediatric Palliative Program- Rs. 12,90,401
  4. Vizag Home care – Rs. 14,72,718
  5. Supporting Department of Palliative Care in MNJ Cancer Hospital- Rs. 11,13,243
  6. ECHO Project- Rs. 3,87,500
  7. Oral Cancer Screening Project – Rs. 4,10,000
  8. Palliative Care Central Monitoring Team support- Rs. 14,55,283

Total Expenditure – Rs. 1,76,58,841

All the above achievements would not have been possible but for the consistent financial support being received from our major partners Two Worlds Cancer Collaboration, Value Labs, Roshni Trust, HPPC Trust, United Care Development Services, Dr. Reddy’s Foundation, Viruj Pharmaceuticals, Ocean Sparkle Ltd, Delta Technologies, GlobalGiving, Helpage India, Infor India, Fernandez Hospital, Estate of Narandas Lakhani, Unicorn Natural Products Ltd, Deloitte, Karvy, BHEL, Family of Late. Smt. V. Lalitha Kumari, Family of Justice Sri. Jagannadha Rao, Sri. Pankaj Dara, Sri. S. Kamalakar Sharma, Sri. Vijay Kumar, Sri. Ramananda Swamy, Robinhood team, Family of Smt. Suneetha and countless other individual donors, both big and small. A special mention of Sivananda Rehabilitation Home and MNJ Cancer Hospital who have provided the infrastructure and space for running the hospice and home care programs respectively.

It is said that if you embark on doing selfless work which helps the poor and the sick and the needy, the universe extends its unstinted support. The story of Pain Relief and Palliative Care Society provides ample proof to this saying. The fact that we are providing all our services entirely free-of-cost is nothing short of a miracle of which all of us are truly proud!

‘The woods are lovely, dark and deep,
But I have promises to keep,
And miles to go before I sleep,’-
Robert Frost

This aptly sums up the journey of Pain Relief and Palliative Care Society

Caregivers meeting at the hospice
Caregivers meeting at the hospice
Play therapy for children in MNJ Cancer Hospital
Play therapy for children in MNJ Cancer Hospital
Recreation  for hospice patients
Recreation for hospice patients
Hand holding a destitute patient
Hand holding a destitute patient
Home care visit
Home care visit
Home care visit in Kurnool
Home care visit in Kurnool
Kurnool palliative care centre inauguration
Kurnool palliative care centre inauguration
Partners meet January 2019
Partners meet January 2019
Home care in the community
Home care in the community

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

 ANNUAL REPORT 2017-18

The year has been one more year of growth and consolidation on all fronts for the society. Perhaps the most significant achievement has been the signing of the Memorandum of Understanding with the Commissioner of Health, Government of Telangana for starting of Palliative Care Centres in 8 districts. This is probably the single biggest achievement in mainstreaming Palliative Care services within the overall Government health system. The fact that Pain Relief and Palliative Care Society was chosen as the agency for delivering Palliative Care services speaks volumes of the credibility and quality of our various programmes being run in the city of Hyderabad

Other major landmarks achieved during the year are listed below.

1. Home Care - A new home care van exclusively meant for children in the age group 0 to 18 was started on 1st February 2018. With this, we now have 5 home Care vans in the city catering to about 250 patients at any given point of time. 

Reddy Labs Foundation and Nimmagadda Trust joined the list of partners in the home care programme promising to support one van each. The other three vans are being supported by Roshni Trust, United Care Development Services, and Hyderabad Pain and Palliative Care Trust, respectively. The family of Late. Smt. V. Lalitha Kumari continues to be a major supporter of the programme.

 A senior doctor and a physiotherapist have been recruited for the Homecare programme in addition to the doctor already available. The homecare team now consists of 2 doctors, 5 nurses, 5 social workers, 5 drivers, and 1 physiotherapist.

2. Kumudini Devi Hospice: The lease with Sivananda Rehabilitation Home, SRH, which was expiring in April 2018 was extended for a further period of 5 years bringing much needed stability in the hospice programme. A senior doctor was recruited to head the hospice. Extensive refurbishing work was done in the hospice with help from M/s Deloitte to give the premises a neat and clean appearance. New furniture was purchased to replace the old furniture borrowed from SRH. A housekeeping manager and a pharmacist were recruited to streamline the services. The 24-bed Hospice has a staff of 25 members to look after the 60-plus patients admitted in a month. Apart from free medical care and medicines, patients and their caregivers are also provided with free food and accommodation. A Tata Winger ambulance is available for transportation of patients and their families free of cost to their respective homes in the event of death. The total number of patients admitted in the hospice during the year was 717.

With consistent support from our major donors like Value Labs Foundation, Ocean Sparkle Ltd, Infor India Pvt Ltd, M/s Karvy and Estates of Narandas Lakhani, Sri. Pankaj Dara and family, and many other donors, both big and small, a degree of financial stability has been achieved in the running of the hospice. The senior doctor has bought about a significant improvement in the patient care services being given at the hospice

3. Pediatric Palliative Care Program (0-18 years) - This unique pediatric palliative care program is now headed by a senior Pediatric Palliative Care specialist supported by a staff consisting of 2 nurses, a social worker, and a play therapist. The staff is fully integrated with the doctors and nurses of the 100-bed Pediatric Oncology Ward in the Government MNJ Cancer Hospital, and provide palliative care to all the in-patients right from the time of the diagnosis and home care to provide continuum of care. 

4. Palliative Care Centres in the Districts – An MOU was signed with the Commissioner of Health and Family Welfare, Government of Telangana, for setting up Palliative Care Centres in the Districts/Area hospitals. In the first phase, 8 such centres are being set up in Rangareddy, Mahbubnagar, Yadadri, Siddipet, Khammam, Warangal, Kamareddy, and Adilabad districts. The first 4 have already started functioning and the remaining are in the process. Each centre consists of 8/10 in-patient bed facility in the premises of the Area/District hospital and a home care program covering patients in their houses in a radius of 25-30 kms from the hospital. This program is being entirely funded by the Government of Telangana and aims to provide palliative/end-of-life care to patients living in rural communities who are unable to reach Hyderabad for their treatment and care. The program eventually aims to cover all the 31 districts of the Telangana state and will be the first of its kind in the country to provide palliative care and end-of-life care to the entire population of the state. United Care Development Services is also participating in the program as a partner. PRPCS will recruit and train the staff consisting of a Doctor, 5 nurses, a physiotherapist, 2 multipurpose health workers apart from the supporting staff. PRPCS will also supervise day-to-day functioning of the centres. This constitutes a major challenge which we are confident of meeting and making it a success, which will be showcased as an example for other states who want to develop similar palliative care services in rural communities. 

5. Palliative Care in Ananthapur - As a first step in initiating the scope of delivery of palliative care in the state of Andhra Pradesh, PRPCS has signed an MOU with Government General Hospital, Ananthapuramu, and started an out-patient palliative care clinic and supported by home care service. The team consists of a full-time doctor, 3 nurses, and 1 social worker. It is planned to start a 10-bed in-patient facility in the hospital premises in the future to provide intensive care round the clock.

In addition to all the programs, PPRCS is also working in close collaboration with Two Worlds Cancer Collaboration for early detection and screening oral cancers using the latest technology in a rural setup. This project conceived by the BCCA, Canada, and aims to establish the feasibility of screening rural population across the communities. The project is intended to screen about 1000-plus patients in Chevella Mandal, RR District. Another initiative has also commenced with help from Two Worlds Cancer Collaboration for running an online virtual training program, ECHO. The hub for the program has been established in Kumudini Devi Hospice in Kukatpally, Hyderabad, where presently online pediatric palliative care classes are conducted once in 2 weeks with participants from 20 different centres in India and abroad.

 

PERFORMANCE STATISTICS

Kumudini Devi Hospice:

No. of admissions – 717

Male- 349

Female- 318

Children- 56

Home Care Program:

Total Number of Registrations-550

New visits- 495

Review visits –2534

Bereavement visits- 91

Total visits- 3120

Pediatric Palliative Care Program:

New patients- 418

Review patients- 6157

Total patients- 6575

Behind the figures and statistics lies an extraordinary story of hope, courage, love and compassion. These are not mere patients but are mortal beings who will not go back to their normal lives and have to deal with the ultimate reality of life ending in the near future. To care for such patients calls for qualities which are rarely found among most of us. No words can effectively describe and capture the dedication and selfless service of our staff of Doctors, nurses, social workers and others who work tirelessly and reach out to the patient and their caregivers for providing both care and comfort in the last stages of their lives.

All the above achievements would not have been possible but for the consistent financial support being received from our major partners Two Worlds Cancer Collaboration, Value Labs, Roshni Trust, Hyderabad Pain and Palliative Care Trust, United Care Development Services, Ocean Sparkle Ltd, Infor India Pvt. Ltd, M/s Karvy, Estate of Narandas Lakhani, Deloitte, and countless other donors, both big and small.

It is said that if you embark on doing good, then the universe supports you. The story of PRPCS provides ample proof to this saying. The fact that we are providing all our services entirely free-of-cost is nothing short of a miracle of which we are really proud!

Psycho social support
Psycho social support
Doctor visit in the community
Doctor visit in the community
Hospice Centre
Hospice Centre
Nursing aide care
Nursing aide care

Links:

1st Palliative care centre in the community
1st Palliative care centre in the community

At the outset, on behalf of Pain Relief and Palliative Care Society, kindly accept our heartfelt gratitude for extending support your invaluable support to our activities. 

COMMUNITY OUTREACH PROGRAM- The Chevella Mandal Community Based Palliative Care Program

Most chronically ill people prefer to spend most of their time at home and they are in desperate need of accessible medical care to help them cope with chronic and life limiting illness. An integrated and well-designed community based palliative care program is the only realistic model for achieving significant coverage and continuity of services for the terminally ill. We provide continuity of care by a group of dedicated volunteers in Chevella Mandal is located in the Ranga Reddy district of Andhra Pradesh. Regular visits by a team of palliative care physicians, nurses and physiotherapists extend care beyond the hospital setting.

For the first time in the country and the State, health authorities started taking concrete measures to decentralise and provide palliative care facilities in districts. In this direction, a few days ago, the State government launched a five-bed palliative care facility at the Govt Area Hospital in Chevella, Rangareddy district, to look after terminally ill patients. It was inaugurated by Hon'ble Minister Sri. Laxma Reddy, Dept of Health & Family Welfare on 13th October 2017.  

Seven more similar facilities will be set up before March, 2019, in various parts of the Telangana State This is for the first time that authorities here have managed to tap into the financial funding, which is available through National Programme for Palliative Care (NPPC).

Keeping in mind the difficulties that such patients have to face, authorities are collaborating with Pain Relief and Palliative Care Society (PRPCS) to start 10-bed palliative care facilities in Area Hospitals across the State.As far as public health institutions are concerned in Hyderabad, so far the palliative care for both the Telugu-speaking States is confined to MNJ Institute of Oncology & Regional Cancer Centre.  End-stage cancer patients from TS and AP have to come to MNJ Cancer Hospital to access palliative care facilities and get opioid medications like morphine, fentanyl and methadone. 

Palliative care facility at Chevella, which is managed by PRPCS, will provide in-patient, daycare and home care services to all 52 villages of Chevella mandal in Rangareddy district through an outreach programme.

“This is for the first time in the country that such treatment facilities are available for patients in villages. There are a lot of challenges but things are changing rapidly because the Centre and States have started acknowledging palliative care as a big issue,”

Other on Activities of Pain Relief and Palliative Care Society 

HOME BASED PALLIATIVE CARE PROGRAM- Supporting Patients and Families Where They Want to Be

The “Life at Your Doorstep” program provides a comprehensive home care program, 24 hour/7 days a week to patients and families struggling with advanced and terminal illness in the city of Hyderabad and Secunderabad. This program is the only home based palliative service in the entire city of Hyderabad - a city of 12 million people. The dedicated home care team not only attends to physical problems such as severe pain, breathlessness, malignant wounds, and confusion, but provides skilled psychosocial and spiritual support. Educating and preparing the family for expected changes at the end of life is another key role of the trained team.

Palliative Care for Children 

MNJ Institute of Oncology has a unique pain relief and pediatric palliative care program for the special needs of the children which is one of its kind in India supported by Pain Relief and Palliative Care Society. We support children with cancer and their families in their battle to overcome the illness by providing the emotional support, counseling, ‘food for survival’, travelling expenses, special school for children, rehabilitation and recreational activities.

 KUMUDINI DEVI HOSPICE AND PALLIATIVE CARE CENTRE- Living well and dying better

We have a full-fledged Hospice. It is a 24 bedded in-patient facility.  This hospice is provides a state of the art care for people living with advanced life-limiting illnesses such as cancer and other chronic diseases.

 In the hospice, palliative care is being provided free of cost to adults and children. At a conservative estimate, the institute is providing direct palliative care to 1000 inpatients per year, i.e. those who need inpatient care for difficult pain and other symptom management and an end – of-life-care. This centre is one of the training centers and research center for palliative care in India.

Kindly appreciate that any attempt to objectively quantify the work we do, namely providing palliative and end of life care to terminally ill patients is a difficult process as there is no measure what so ever as to how well a patient dies.

We shall soon share the annual report of PRPCS. 

Awareness camp in the villages
Awareness camp in the villages
Home visit
Home visit
Patient care
Patient care
Play therapy for children with cancer
Play therapy for children with cancer
Inauguration- 1st Palliative care centre, Chevella
Inauguration- 1st Palliative care centre, Chevella

Links:

Caregivers meeting at Hospice
Caregivers meeting at Hospice

Pain Relief and Palliative Care Society's goal is to provide palliative and end of life care to patients suffering from end stages of cancer and similar life limiting diseases by efficient running of our 24 bed hospice, a home based palliative care program in the city of Hyderabad and environs, a dedicated pediatric palliativ care program and the community outreach program in the rural setup. We have succeeded in our endeavor.  On an average about 65 patients per month are being admitted and treated in the hospice. On any given day 200 live patients are being enrolled in home care. Pediatric palliative care program caters to about 15-20 children with cancer at MNJ Governmnet cancer hosptial. We are catering to 190 patients with variuos incurable diseases in the community by visiting them thrice a week by the palliative care team.

Some of your successes and challenges

Palliative care and end of life care is one of the most challenging fields in medical science. Unlike normal medical treatment provided in various facilities where the treatment is given with a hope of curing the ailment, palliative care is provided for those patients for whom there is no further curative treatment. It is extremely difficult to quantify and measure the outcome of such care. The philosophy of palliative care, centers around providing a holistic concept of care which also varies from patient to patient depending on various factors like progression of disease, literacy level, socio-economic conditions, family dynamics etc and includes psychosocial support, rehabilitation along with medical care.

Our team consisting of trained doctors, nurses, social workers, counselors and other staff have, over the years, mastered the technique of breaking through the barriers of the patients and their caregivers and helping them to cope with the disease and consequences there on at various palliative care delivery. The successes can best me measured by the feedback which we receive from the care givers and the patients.

An example that best illustrates the success of your program(s) and services.

 There are stories- a plenty- which poignantly describe the kind of service provided by our Hospice. One such story is:

 An emaciated female aged about 40 years was brought to the Government Cancer Hospital, Hyderabad and abandoned in the premises. The patient who was semi-clad with bones sticking out and half conscious was referred to our hospice for treatment and care. She was transported in our ambulance to the hospice where the doctor and nurses washed and cleaned her, including removal of maggots from her wound around the breast.  She was properly clothed and fed. It appeared that, she was an advanced stage cancer patient (of the breast) who was deprived of  proper treatment and neglected by her family. After a week of loving care, proper diet and medical treatment, the patient recovered from her traumatic condition and was able to provide details of her family.  Our staff then traced out the family and obtained an affidavit from them which authorized us to look after till the end and also perform the funeral rights in the event of her death. She spent about two months in our hospice where she was given quality end of life care and finally passed of peacefully, without pain, and most importantly in dignity. Her funeral rights were also performed by our hospice staff, again, with full respect and dignity to the departed soul.

This story exemplifies the kind of service we are provide for the poor populace who cannot afford to get quality palliative and end of life care under the prevalent health care system.

Abandoned patient
Abandoned patient

Links:

Adoloscent patient in Hospice
Adoloscent patient in Hospice

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

ANNUAL REPORT 2016-17

It is said that a long journey begins with a small step. The journey which started with the first step in June 2007 has indeed come a very long way. From very humble beginnings of supporting the Department of Pain & Palliative care in MNJ Institute of Oncology & Regional Cancer Centre, Pain Relief and Palliative Care Society (PRPCS) is today running four full-fledged palliative care programs catering to patients suffering from life limiting diseases like advanced stages of cancer and providing quality end of life care. The society provides all its services entirely free of cost without charging a penny which is nothing short of a miracle unfolding in front of our eyes! 

Activities Report

Kumudini Devi Hospice, Kukatpally

The year saw considerable upgrading of this 24 bed facility. The open verandah’s and pathways were covered and the flooring was upgraded both inside and outside the premises. The entire premises were colored with a pleasing color scheme providing a homely atmosphere for the patients. A full-fledged trained palliative care doctor, a nursing specialist in palliative care, a senior counselor/ social worker and a qualified physiotherapist have been added to the work force. Each shift is manned with by a doctor, 2 nurses and 2 ayammas. In addition we have also trained and recruited two nursing aides to assist the patients. The small Maruti 5 seater ambulance has been replaced with a large 9 seater Tata Winger ambulance for shuttling of patients between the hospital and hospice and transporting patient’s bodies in the event of death to their respective homes. Hospice has cared for 368 male patients, 323 femlae patients and 57 children. 

Most of the patients are referred to the hospice from the out-patient service of Department of Pain & Palliative Medicine of MNJ Institute of Oncology, while a few come from other corporate hospitals after reading about us on social media. Holistic care is being provided at the hospice which includes medical care, counseling support, food for the patients and their care givers, recreational, rehabilitation facilities and lastly transportation facilities for the dead body in the event of death. An atmosphere of total serenity has been created to ensure that the last days of our patients are spent comfortably and peacefully without pain and most importantly in dignity

Home based Palliative Care, “Life At Your Doorstep”

This is a unique program where our team consisting of a doctor, a nurse and a counselor visit the houses of patients and provide palliative care at their doorsteps. We have four vans covering the four corners of Hyderabad city and outskirts up to a radius of 30 kms. This program essentially caters to patients who live in and around Hyderabad and wish to remain at their homes. However, whenever the condition of the patient deteriorates requiring round the clock care, our home care teams move such patients to the hospice. At any given point of time there are about 160-180 patients distributed between the four vans. The program consists of providing medical care, supportive care, rehabilitation, counseling and occasionally even food for survival to our patients. Home care has seen 417 new patients and 2348 review visits under life at your home care. 

Community based Palliative Care in Chevella Mandal

This is yet another unique program wherein palliative care/ end of life care are being provided in an entirely rural setup. Patients living with life limiting illnesses in a cluster of 30 villages located about 70-75 kms from Hyderabad are provided care. The community program caters to end stage cancer patients and also to patients suffering from wide range of life-limiting diseases like Paralysis, Stroke, Quadriplegia, Renal Failure, Juvenile Diabetes, Cerebral Palsy, Muscular Dystrophy etc.  There are two full time village coordinators from the local community who work on our behalf in the villages. Their role includes identifying patients needing palliative care after a meticulous house to house survey, ensuring continuous follow up, creating community awareness and goodwill in the community. Once identified, such patients are visited at regular intervals by our team of doctors, nurses and physiotherapist who provide the necessary care and guidance. Given the taboos in a typical rural setup, most of these patients are in a state of severe neglect and hence need extensive psychosocial support for both the patient and the care givers. The entire treatment and care including medicines is given free of cost. Other aspects of rehabilitation support like providing nutritional support, providing food for survival, providing calipers for children who are physically handicapped, providing care givers for abandoned patients are also an integral part of this rural program.

Pediatric Palliative Care Program (0-18 years)

Pediatric Palliative Care Program in MNJ Institute of Oncology & Regional Cancer Centre and supported by PRPCS is unique and one of its kind in India. The pediatric palliative care team consists of dedicated palliative care specialist, senior pediatric palliative care nurse, a social worker and other supporting team consisting of play therapists, physiotherapists, occupational therapists and volunteers. Every effort is made to keep the child pain free and to incorporate palliative care into the treatment of the child right from the time of diagnosis. For such of those patients whose treatment has ended, the program provides palliative support to the patients and family members at their homes till the end and extending to bereavement support. Dealing with young children with cancer is a huge challenge and requires specialized skills and training. Our program has cared for 381 new children with cancer and 2763 reveiew patietns with cancer. 

The above statistics does not tell our whole story. Unlike conventional medical care where success is measured by the percentage of patients getting cured, palliative care is a field where it is very difficult to assess and measure outcomes.  The objective of our programs is to ensure a peaceful and dignified death to end stage cancer patients by providing them with state of the art palliative care. A measure of index of the successful implementation of the programs is the feedback which we receive from the care givers of the patients who have experienced the care and treatment which we have provided for their loved ones in the last stages of their life. We therefore encourage all our patients and their caregivers to give a constant feedback which is evaluated by us. 

Our finances:

The cost incurred for running each of the above programs in FY2016-17 is as under:

  1. Kumudini Devi Hospice                               Rs. 63,70,000
  2. Home Care Program (4 vans)                      Rs. 24,37,000
  3. Community Outreach Program                    Rs. 6,66,000
  4. Pediatric Palliative Care program                 Rs. 6,71,000

Total                                                                   Rs. 101, 44,000

The society employees a total staff of 44 members consisting of Doctors, Nurses, Physiotherapist, Social Workers/Counselors, Drivers, Cooks, Ayammas, Security guard etc working across the different programs. Salaries account for about 70% of the expenditure followed by medicines, petrol, food and utilities like electricity, water, waste disposal, laundry.

As already mentioned our programs are probably among the few full-fledged palliative care/end of life care programs offered entirely free of cost. We do not charge even a penny for our services and hence are totally dependent on mobilizing donations, grants to meet the expenditure.

We are indebted to our partners, major donors and other individual donors who have consistently supported us. 

Our Partners

Two Worlds Cancer Collaboration-Canada

Roshini Trust

Sivananda Rehabilitation Home

Hyderabad Pain and Palliative Care Trust

Major Donors

Value Labs Foundation

Ocean Sparkle

Karvy Group

Nvidia Foundation

Infor India

Narandas Lakhani Estate

Family of Late Smt. Lalitha Kumari

And numerous other individual donors both big

As with all charitable institutions we recognize the need to constantly look for new donors and sponsors. In order to become totally self reliant we are in the process of building up a reserve fund to dip into whenever the need arises in future.  

Upcoming Project

We are very pleased to state that one of our nursing aides working in the hospice who hails from Chevella village has donated a piece of land measuring 150 square yards to PRPCS for building of a small 6 bed hospice. We hope to complete this project during the current year and establish the hospice which will be among the first few rural hospices in the country and amenable for replicating in other similar rural setup’s across the country.

Thank you!!

Art and craft work for kids in peads ward
Art and craft work for kids in peads ward
Care givers meeting in Hospice
Care givers meeting in Hospice
Doctor visit in Community program
Doctor visit in Community program
Home visit for abandoned patient
Home visit for abandoned patient
Kids visit to zoo as last wish
Kids visit to zoo as last wish
Memorial Day in Hospice
Memorial Day in Hospice
Physio visit in Chevella
Physio visit in Chevella
Pyschosocial support in Home care
Pyschosocial support in Home care
Story telling
Story telling
Renovated relaxation area in Hospice
Renovated relaxation area in Hospice
 

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Organization Information

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

Location: HYDERABAD, TELANGANA - India
Website:
Facebook: Facebook Page
Project Leader:
Pain Relief and Palliative Care Society
HYDERABAD, Telangana India
$40,764 raised of $100,000 goal
 
311 donations
$59,236 to go
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