Health  India Project #20786

Care beyond cure for Cancer Patients in Hyderabad

by PAIN RELIEF AND PALLIATIVE CARE SOCIETY Vetted since 2015 Site Visit Verified
Home care in the community
Home care in the community

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

 ANNUAL REPORT 2017-18

The year has been one more year of growth and consolidation on all fronts for the society. Perhaps the most significant achievement has been the signing of the Memorandum of Understanding with the Commissioner of Health, Government of Telangana for starting of Palliative Care Centres in 8 districts. This is probably the single biggest achievement in mainstreaming Palliative Care services within the overall Government health system. The fact that Pain Relief and Palliative Care Society was chosen as the agency for delivering Palliative Care services speaks volumes of the credibility and quality of our various programmes being run in the city of Hyderabad

Other major landmarks achieved during the year are listed below.

1. Home Care - A new home care van exclusively meant for children in the age group 0 to 18 was started on 1st February 2018. With this, we now have 5 home Care vans in the city catering to about 250 patients at any given point of time. 

Reddy Labs Foundation and Nimmagadda Trust joined the list of partners in the home care programme promising to support one van each. The other three vans are being supported by Roshni Trust, United Care Development Services, and Hyderabad Pain and Palliative Care Trust, respectively. The family of Late. Smt. V. Lalitha Kumari continues to be a major supporter of the programme.

 A senior doctor and a physiotherapist have been recruited for the Homecare programme in addition to the doctor already available. The homecare team now consists of 2 doctors, 5 nurses, 5 social workers, 5 drivers, and 1 physiotherapist.

2. Kumudini Devi Hospice: The lease with Sivananda Rehabilitation Home, SRH, which was expiring in April 2018 was extended for a further period of 5 years bringing much needed stability in the hospice programme. A senior doctor was recruited to head the hospice. Extensive refurbishing work was done in the hospice with help from M/s Deloitte to give the premises a neat and clean appearance. New furniture was purchased to replace the old furniture borrowed from SRH. A housekeeping manager and a pharmacist were recruited to streamline the services. The 24-bed Hospice has a staff of 25 members to look after the 60-plus patients admitted in a month. Apart from free medical care and medicines, patients and their caregivers are also provided with free food and accommodation. A Tata Winger ambulance is available for transportation of patients and their families free of cost to their respective homes in the event of death. The total number of patients admitted in the hospice during the year was 717.

With consistent support from our major donors like Value Labs Foundation, Ocean Sparkle Ltd, Infor India Pvt Ltd, M/s Karvy and Estates of Narandas Lakhani, Sri. Pankaj Dara and family, and many other donors, both big and small, a degree of financial stability has been achieved in the running of the hospice. The senior doctor has bought about a significant improvement in the patient care services being given at the hospice

3. Pediatric Palliative Care Program (0-18 years) - This unique pediatric palliative care program is now headed by a senior Pediatric Palliative Care specialist supported by a staff consisting of 2 nurses, a social worker, and a play therapist. The staff is fully integrated with the doctors and nurses of the 100-bed Pediatric Oncology Ward in the Government MNJ Cancer Hospital, and provide palliative care to all the in-patients right from the time of the diagnosis and home care to provide continuum of care. 

4. Palliative Care Centres in the Districts – An MOU was signed with the Commissioner of Health and Family Welfare, Government of Telangana, for setting up Palliative Care Centres in the Districts/Area hospitals. In the first phase, 8 such centres are being set up in Rangareddy, Mahbubnagar, Yadadri, Siddipet, Khammam, Warangal, Kamareddy, and Adilabad districts. The first 4 have already started functioning and the remaining are in the process. Each centre consists of 8/10 in-patient bed facility in the premises of the Area/District hospital and a home care program covering patients in their houses in a radius of 25-30 kms from the hospital. This program is being entirely funded by the Government of Telangana and aims to provide palliative/end-of-life care to patients living in rural communities who are unable to reach Hyderabad for their treatment and care. The program eventually aims to cover all the 31 districts of the Telangana state and will be the first of its kind in the country to provide palliative care and end-of-life care to the entire population of the state. United Care Development Services is also participating in the program as a partner. PRPCS will recruit and train the staff consisting of a Doctor, 5 nurses, a physiotherapist, 2 multipurpose health workers apart from the supporting staff. PRPCS will also supervise day-to-day functioning of the centres. This constitutes a major challenge which we are confident of meeting and making it a success, which will be showcased as an example for other states who want to develop similar palliative care services in rural communities. 

5. Palliative Care in Ananthapur - As a first step in initiating the scope of delivery of palliative care in the state of Andhra Pradesh, PRPCS has signed an MOU with Government General Hospital, Ananthapuramu, and started an out-patient palliative care clinic and supported by home care service. The team consists of a full-time doctor, 3 nurses, and 1 social worker. It is planned to start a 10-bed in-patient facility in the hospital premises in the future to provide intensive care round the clock.

In addition to all the programs, PPRCS is also working in close collaboration with Two Worlds Cancer Collaboration for early detection and screening oral cancers using the latest technology in a rural setup. This project conceived by the BCCA, Canada, and aims to establish the feasibility of screening rural population across the communities. The project is intended to screen about 1000-plus patients in Chevella Mandal, RR District. Another initiative has also commenced with help from Two Worlds Cancer Collaboration for running an online virtual training program, ECHO. The hub for the program has been established in Kumudini Devi Hospice in Kukatpally, Hyderabad, where presently online pediatric palliative care classes are conducted once in 2 weeks with participants from 20 different centres in India and abroad.

 

PERFORMANCE STATISTICS

Kumudini Devi Hospice:

No. of admissions – 717

Male- 349

Female- 318

Children- 56

Home Care Program:

Total Number of Registrations-550

New visits- 495

Review visits –2534

Bereavement visits- 91

Total visits- 3120

Pediatric Palliative Care Program:

New patients- 418

Review patients- 6157

Total patients- 6575

Behind the figures and statistics lies an extraordinary story of hope, courage, love and compassion. These are not mere patients but are mortal beings who will not go back to their normal lives and have to deal with the ultimate reality of life ending in the near future. To care for such patients calls for qualities which are rarely found among most of us. No words can effectively describe and capture the dedication and selfless service of our staff of Doctors, nurses, social workers and others who work tirelessly and reach out to the patient and their caregivers for providing both care and comfort in the last stages of their lives.

All the above achievements would not have been possible but for the consistent financial support being received from our major partners Two Worlds Cancer Collaboration, Value Labs, Roshni Trust, Hyderabad Pain and Palliative Care Trust, United Care Development Services, Ocean Sparkle Ltd, Infor India Pvt. Ltd, M/s Karvy, Estate of Narandas Lakhani, Deloitte, and countless other donors, both big and small.

It is said that if you embark on doing good, then the universe supports you. The story of PRPCS provides ample proof to this saying. The fact that we are providing all our services entirely free-of-cost is nothing short of a miracle of which we are really proud!

Psycho social support
Psycho social support
Doctor visit in the community
Doctor visit in the community
Hospice Centre
Hospice Centre
Nursing aide care
Nursing aide care

Links:

1st Palliative care centre in the community
1st Palliative care centre in the community

At the outset, on behalf of Pain Relief and Palliative Care Society, kindly accept our heartfelt gratitude for extending support your invaluable support to our activities. 

COMMUNITY OUTREACH PROGRAM- The Chevella Mandal Community Based Palliative Care Program

Most chronically ill people prefer to spend most of their time at home and they are in desperate need of accessible medical care to help them cope with chronic and life limiting illness. An integrated and well-designed community based palliative care program is the only realistic model for achieving significant coverage and continuity of services for the terminally ill. We provide continuity of care by a group of dedicated volunteers in Chevella Mandal is located in the Ranga Reddy district of Andhra Pradesh. Regular visits by a team of palliative care physicians, nurses and physiotherapists extend care beyond the hospital setting.

For the first time in the country and the State, health authorities started taking concrete measures to decentralise and provide palliative care facilities in districts. In this direction, a few days ago, the State government launched a five-bed palliative care facility at the Govt Area Hospital in Chevella, Rangareddy district, to look after terminally ill patients. It was inaugurated by Hon'ble Minister Sri. Laxma Reddy, Dept of Health & Family Welfare on 13th October 2017.  

Seven more similar facilities will be set up before March, 2019, in various parts of the Telangana State This is for the first time that authorities here have managed to tap into the financial funding, which is available through National Programme for Palliative Care (NPPC).

Keeping in mind the difficulties that such patients have to face, authorities are collaborating with Pain Relief and Palliative Care Society (PRPCS) to start 10-bed palliative care facilities in Area Hospitals across the State.As far as public health institutions are concerned in Hyderabad, so far the palliative care for both the Telugu-speaking States is confined to MNJ Institute of Oncology & Regional Cancer Centre.  End-stage cancer patients from TS and AP have to come to MNJ Cancer Hospital to access palliative care facilities and get opioid medications like morphine, fentanyl and methadone. 

Palliative care facility at Chevella, which is managed by PRPCS, will provide in-patient, daycare and home care services to all 52 villages of Chevella mandal in Rangareddy district through an outreach programme.

“This is for the first time in the country that such treatment facilities are available for patients in villages. There are a lot of challenges but things are changing rapidly because the Centre and States have started acknowledging palliative care as a big issue,”

Other on Activities of Pain Relief and Palliative Care Society 

HOME BASED PALLIATIVE CARE PROGRAM- Supporting Patients and Families Where They Want to Be

The “Life at Your Doorstep” program provides a comprehensive home care program, 24 hour/7 days a week to patients and families struggling with advanced and terminal illness in the city of Hyderabad and Secunderabad. This program is the only home based palliative service in the entire city of Hyderabad - a city of 12 million people. The dedicated home care team not only attends to physical problems such as severe pain, breathlessness, malignant wounds, and confusion, but provides skilled psychosocial and spiritual support. Educating and preparing the family for expected changes at the end of life is another key role of the trained team.

Palliative Care for Children 

MNJ Institute of Oncology has a unique pain relief and pediatric palliative care program for the special needs of the children which is one of its kind in India supported by Pain Relief and Palliative Care Society. We support children with cancer and their families in their battle to overcome the illness by providing the emotional support, counseling, ‘food for survival’, travelling expenses, special school for children, rehabilitation and recreational activities.

 KUMUDINI DEVI HOSPICE AND PALLIATIVE CARE CENTRE- Living well and dying better

We have a full-fledged Hospice. It is a 24 bedded in-patient facility.  This hospice is provides a state of the art care for people living with advanced life-limiting illnesses such as cancer and other chronic diseases.

 In the hospice, palliative care is being provided free of cost to adults and children. At a conservative estimate, the institute is providing direct palliative care to 1000 inpatients per year, i.e. those who need inpatient care for difficult pain and other symptom management and an end – of-life-care. This centre is one of the training centers and research center for palliative care in India.

Kindly appreciate that any attempt to objectively quantify the work we do, namely providing palliative and end of life care to terminally ill patients is a difficult process as there is no measure what so ever as to how well a patient dies.

We shall soon share the annual report of PRPCS. 

Awareness camp in the villages
Awareness camp in the villages
Home visit
Home visit
Patient care
Patient care
Play therapy for children with cancer
Play therapy for children with cancer
Inauguration- 1st Palliative care centre, Chevella
Inauguration- 1st Palliative care centre, Chevella

Links:

Caregivers meeting at Hospice
Caregivers meeting at Hospice

Pain Relief and Palliative Care Society's goal is to provide palliative and end of life care to patients suffering from end stages of cancer and similar life limiting diseases by efficient running of our 24 bed hospice, a home based palliative care program in the city of Hyderabad and environs, a dedicated pediatric palliativ care program and the community outreach program in the rural setup. We have succeeded in our endeavor.  On an average about 65 patients per month are being admitted and treated in the hospice. On any given day 200 live patients are being enrolled in home care. Pediatric palliative care program caters to about 15-20 children with cancer at MNJ Governmnet cancer hosptial. We are catering to 190 patients with variuos incurable diseases in the community by visiting them thrice a week by the palliative care team.

Some of your successes and challenges

Palliative care and end of life care is one of the most challenging fields in medical science. Unlike normal medical treatment provided in various facilities where the treatment is given with a hope of curing the ailment, palliative care is provided for those patients for whom there is no further curative treatment. It is extremely difficult to quantify and measure the outcome of such care. The philosophy of palliative care, centers around providing a holistic concept of care which also varies from patient to patient depending on various factors like progression of disease, literacy level, socio-economic conditions, family dynamics etc and includes psychosocial support, rehabilitation along with medical care.

Our team consisting of trained doctors, nurses, social workers, counselors and other staff have, over the years, mastered the technique of breaking through the barriers of the patients and their caregivers and helping them to cope with the disease and consequences there on at various palliative care delivery. The successes can best me measured by the feedback which we receive from the care givers and the patients.

An example that best illustrates the success of your program(s) and services.

 There are stories- a plenty- which poignantly describe the kind of service provided by our Hospice. One such story is:

 An emaciated female aged about 40 years was brought to the Government Cancer Hospital, Hyderabad and abandoned in the premises. The patient who was semi-clad with bones sticking out and half conscious was referred to our hospice for treatment and care. She was transported in our ambulance to the hospice where the doctor and nurses washed and cleaned her, including removal of maggots from her wound around the breast.  She was properly clothed and fed. It appeared that, she was an advanced stage cancer patient (of the breast) who was deprived of  proper treatment and neglected by her family. After a week of loving care, proper diet and medical treatment, the patient recovered from her traumatic condition and was able to provide details of her family.  Our staff then traced out the family and obtained an affidavit from them which authorized us to look after till the end and also perform the funeral rights in the event of her death. She spent about two months in our hospice where she was given quality end of life care and finally passed of peacefully, without pain, and most importantly in dignity. Her funeral rights were also performed by our hospice staff, again, with full respect and dignity to the departed soul.

This story exemplifies the kind of service we are provide for the poor populace who cannot afford to get quality palliative and end of life care under the prevalent health care system.

Abandoned patient
Abandoned patient

Links:

Adoloscent patient in Hospice
Adoloscent patient in Hospice

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

ANNUAL REPORT 2016-17

It is said that a long journey begins with a small step. The journey which started with the first step in June 2007 has indeed come a very long way. From very humble beginnings of supporting the Department of Pain & Palliative care in MNJ Institute of Oncology & Regional Cancer Centre, Pain Relief and Palliative Care Society (PRPCS) is today running four full-fledged palliative care programs catering to patients suffering from life limiting diseases like advanced stages of cancer and providing quality end of life care. The society provides all its services entirely free of cost without charging a penny which is nothing short of a miracle unfolding in front of our eyes! 

Activities Report

Kumudini Devi Hospice, Kukatpally

The year saw considerable upgrading of this 24 bed facility. The open verandah’s and pathways were covered and the flooring was upgraded both inside and outside the premises. The entire premises were colored with a pleasing color scheme providing a homely atmosphere for the patients. A full-fledged trained palliative care doctor, a nursing specialist in palliative care, a senior counselor/ social worker and a qualified physiotherapist have been added to the work force. Each shift is manned with by a doctor, 2 nurses and 2 ayammas. In addition we have also trained and recruited two nursing aides to assist the patients. The small Maruti 5 seater ambulance has been replaced with a large 9 seater Tata Winger ambulance for shuttling of patients between the hospital and hospice and transporting patient’s bodies in the event of death to their respective homes. Hospice has cared for 368 male patients, 323 femlae patients and 57 children. 

Most of the patients are referred to the hospice from the out-patient service of Department of Pain & Palliative Medicine of MNJ Institute of Oncology, while a few come from other corporate hospitals after reading about us on social media. Holistic care is being provided at the hospice which includes medical care, counseling support, food for the patients and their care givers, recreational, rehabilitation facilities and lastly transportation facilities for the dead body in the event of death. An atmosphere of total serenity has been created to ensure that the last days of our patients are spent comfortably and peacefully without pain and most importantly in dignity

Home based Palliative Care, “Life At Your Doorstep”

This is a unique program where our team consisting of a doctor, a nurse and a counselor visit the houses of patients and provide palliative care at their doorsteps. We have four vans covering the four corners of Hyderabad city and outskirts up to a radius of 30 kms. This program essentially caters to patients who live in and around Hyderabad and wish to remain at their homes. However, whenever the condition of the patient deteriorates requiring round the clock care, our home care teams move such patients to the hospice. At any given point of time there are about 160-180 patients distributed between the four vans. The program consists of providing medical care, supportive care, rehabilitation, counseling and occasionally even food for survival to our patients. Home care has seen 417 new patients and 2348 review visits under life at your home care. 

Community based Palliative Care in Chevella Mandal

This is yet another unique program wherein palliative care/ end of life care are being provided in an entirely rural setup. Patients living with life limiting illnesses in a cluster of 30 villages located about 70-75 kms from Hyderabad are provided care. The community program caters to end stage cancer patients and also to patients suffering from wide range of life-limiting diseases like Paralysis, Stroke, Quadriplegia, Renal Failure, Juvenile Diabetes, Cerebral Palsy, Muscular Dystrophy etc.  There are two full time village coordinators from the local community who work on our behalf in the villages. Their role includes identifying patients needing palliative care after a meticulous house to house survey, ensuring continuous follow up, creating community awareness and goodwill in the community. Once identified, such patients are visited at regular intervals by our team of doctors, nurses and physiotherapist who provide the necessary care and guidance. Given the taboos in a typical rural setup, most of these patients are in a state of severe neglect and hence need extensive psychosocial support for both the patient and the care givers. The entire treatment and care including medicines is given free of cost. Other aspects of rehabilitation support like providing nutritional support, providing food for survival, providing calipers for children who are physically handicapped, providing care givers for abandoned patients are also an integral part of this rural program.

Pediatric Palliative Care Program (0-18 years)

Pediatric Palliative Care Program in MNJ Institute of Oncology & Regional Cancer Centre and supported by PRPCS is unique and one of its kind in India. The pediatric palliative care team consists of dedicated palliative care specialist, senior pediatric palliative care nurse, a social worker and other supporting team consisting of play therapists, physiotherapists, occupational therapists and volunteers. Every effort is made to keep the child pain free and to incorporate palliative care into the treatment of the child right from the time of diagnosis. For such of those patients whose treatment has ended, the program provides palliative support to the patients and family members at their homes till the end and extending to bereavement support. Dealing with young children with cancer is a huge challenge and requires specialized skills and training. Our program has cared for 381 new children with cancer and 2763 reveiew patietns with cancer. 

The above statistics does not tell our whole story. Unlike conventional medical care where success is measured by the percentage of patients getting cured, palliative care is a field where it is very difficult to assess and measure outcomes.  The objective of our programs is to ensure a peaceful and dignified death to end stage cancer patients by providing them with state of the art palliative care. A measure of index of the successful implementation of the programs is the feedback which we receive from the care givers of the patients who have experienced the care and treatment which we have provided for their loved ones in the last stages of their life. We therefore encourage all our patients and their caregivers to give a constant feedback which is evaluated by us. 

Our finances:

The cost incurred for running each of the above programs in FY2016-17 is as under:

  1. Kumudini Devi Hospice                               Rs. 63,70,000
  2. Home Care Program (4 vans)                      Rs. 24,37,000
  3. Community Outreach Program                    Rs. 6,66,000
  4. Pediatric Palliative Care program                 Rs. 6,71,000

Total                                                                   Rs. 101, 44,000

The society employees a total staff of 44 members consisting of Doctors, Nurses, Physiotherapist, Social Workers/Counselors, Drivers, Cooks, Ayammas, Security guard etc working across the different programs. Salaries account for about 70% of the expenditure followed by medicines, petrol, food and utilities like electricity, water, waste disposal, laundry.

As already mentioned our programs are probably among the few full-fledged palliative care/end of life care programs offered entirely free of cost. We do not charge even a penny for our services and hence are totally dependent on mobilizing donations, grants to meet the expenditure.

We are indebted to our partners, major donors and other individual donors who have consistently supported us. 

Our Partners

Two Worlds Cancer Collaboration-Canada

Roshini Trust

Sivananda Rehabilitation Home

Hyderabad Pain and Palliative Care Trust

Major Donors

Value Labs Foundation

Ocean Sparkle

Karvy Group

Nvidia Foundation

Infor India

Narandas Lakhani Estate

Family of Late Smt. Lalitha Kumari

And numerous other individual donors both big

As with all charitable institutions we recognize the need to constantly look for new donors and sponsors. In order to become totally self reliant we are in the process of building up a reserve fund to dip into whenever the need arises in future.  

Upcoming Project

We are very pleased to state that one of our nursing aides working in the hospice who hails from Chevella village has donated a piece of land measuring 150 square yards to PRPCS for building of a small 6 bed hospice. We hope to complete this project during the current year and establish the hospice which will be among the first few rural hospices in the country and amenable for replicating in other similar rural setup’s across the country.

Thank you!!

Art and craft work for kids in peads ward
Art and craft work for kids in peads ward
Care givers meeting in Hospice
Care givers meeting in Hospice
Doctor visit in Community program
Doctor visit in Community program
Home visit for abandoned patient
Home visit for abandoned patient
Kids visit to zoo as last wish
Kids visit to zoo as last wish
Memorial Day in Hospice
Memorial Day in Hospice
Physio visit in Chevella
Physio visit in Chevella
Pyschosocial support in Home care
Pyschosocial support in Home care
Story telling
Story telling
Renovated relaxation area in Hospice
Renovated relaxation area in Hospice
Patient getting his last haircut done at Hospice
Patient getting his last haircut done at Hospice

Community Outreach Program in Chevella Mandal, RangaReddy District, Telangana State

Waiting for the exit visa

The small (8 by 8 feet) room has a broken cot, an old television, a few utensils, and an Eastern style toilet.

This is the world of M. Arjun.

Arjun is awake at 8a.m., but he waits, his body resting on its side; he waits for someone from the neighbourhood to come over and set it upright. Once somebody sits him up on the floor, Arjun remains sitting in that same position all day, his back straight and arms and legs half bent in front of his torso, watching television. He cannot flip the channels. If anyone passes by, he calls out to them but sometimes he is stuck watching the same channel all day. This is his day, every day.

Today, he is watching a Telugu news channel. We ask him if he wants it to be changed.

“I am following the developments in the Sasikala story,” he says. “It looks like Palanisami will become chief minister. I am waiting to see what happens in Tamil Nadu.”

To me, Arjun’s life is a life of waiting.

He used to work as a driver. He had a wife. Three years ago, at 32, he developed weakness in his legs and was diagnosed with a rare and incurable condition called limb girdle muscular dystrophy. Doctors told him it would spread to his arms as well.

Soon, everything changed, his life changed. He lost his job. His wife left him a month later. Today he is almost a quadriplegic. The horror is that his mind is unaffected by the disease, making his life a waking nightmare. He has had to watch his body slowly slip into disuse.

“There is no strength in my legs and left arm. But there is still some strength in my right arm. I can’t lift it, but I can press down with my fingers.”

He demonstrates this by pushing buttons on the mobile phone lying in front of him. A call goes to our physiotherapist, Ashok, who is standing nearby. We laugh. Ashok has been seeing him for two years as part of our palliative care rural outreach program.

We are in Antharam village, about 50 kilometres from our base in Hyderabad. Once a week our team (a doctor, nurse, physiotherapist, and counsellor) visits one of the 30 villages in Chevella Mandal that falls under our program. We see patients in the community with cancer, stroke, heart disease, and other diseases that are life-limiting or terminal and we try to improve their quality of life by providing care for their physical, mental, social, and spiritual suffering.

Arjun has developed severe pain in his legs in the past one month and so we have started him on morphine. We have identified and trained a 24-year-old man from the village to visit Arjun every day to help with his care taking, feeding, personal hygiene and other routine chores. We have raised funds to offer the caretaker a small monthly pay for his service.

“Now I can call Ashok,” he says. “But one day this power in my right hand will also go. Then nothing will be left. I used to be able to straighten myself if I leaned forward or sideways. But now if I lean too far I can’t get back up on my own.”

“How do you keep the phone for charging?” I asked.

“The man who comes to take care of me keeps it for charging at night. In the morning he keeps the charged phone near me.”

“Is he coming regularly?”

“Yes, he comes once in the morning to bathe me and give me food and water. And then he comes once more in the evening.”

“Do you want some water now?”

“No, I don’t drink water in between. It will be difficult to go to the toilet. I drink one litre in the morning and one litre at night.”

Arjun cannot take his medicines on his own either. So we only prescribe medication that needs to be taken twice a day. I explain the medication and dosage to Arjun’s helper. He is a graduate and hopes to get into a post graduate program soon. I tell him he is doing a great service by taking care of Arjun. He smiles.

If it weren’t for him, it’s hard to imagine how Arjun would get by.

Oddly, Arjun’s parents live nearby, but they aren’t in talking terms with him. Apparently, Arjun had lived a brash and careless life in his youth and didn’t pay heed to any of his relatives. He regrets it today.

Our counsellor has been sitting on the ground next to him all this while. We provide counselling and spend an hour during every visit just listening to him.

It is time for us to move on. We tell Arjun that we will see him again next month.

As we leave, I think of the three other patients we still have to visit. I think of getting back to Hyderabad, and of the meetings with the paediatric palliative care team.

Then I look back at Arjun, who is still sitting on the floor, his back straight and his arms and legs half bent in front of him. It is almost a meditative posture. He will be waiting in that room every single day of his life ahead… waiting… and waiting… and waiting.

Kumudini Devi Hospice and Palliative Care Centre, Kukatpally, Hyderabad, Telanagana State 

Kumudini Devi Hospice is a full-fledged 24 bedded in-patient facility offering palliative/ end of life care to patients suffering from terminal illnesses like cancer. This facility is run by a charitable registered society, the Pain Relief and Palliative Care Society, Hyderabad. The entire care is provided free of cost which include medical care,medicines, recreation and rehabilitation and food for patients and their care givers, transportation facilities for shuttling the patients between the hospice and the tertiary care centre namely MNJ Government Regional Cancer Centre and transportation of dead bodies from the hospice to their respective homes in the district towns. A dedicated team of trained staff consisting of three doctors, eight nurses, 11 attendants/ cooks, one social worker, 1 physiotherapist and other supporting staff are available 24/7 to provide care and support to such patients. There is a dedicated facility to provide care to children with advanced cancer and their families. 

Pain Relief and Palliative Care Society has cared for 381 new kids and 2763 review childeren with cancer as a part of dedicated pediatric palliative care program in the year 2016.

At the Kumudini Devi Hospice we have admitted and cared for 348 Female, 326 Male and 62 children with advanced cancer in the year 2016 and more than 50% of our patients passed away peacefully and comfortably where we provided free transportaiton of the dead bodies to their respective homes free of cost. 

In the Home based palliative care program, Life at your Door Step we have seen 417 new patients and 2438 review patients depending upon their priority in the year 2016 and keeping in view the increase in number of patients who need palliative and end of life care in the home setting, we have started 4th home care van from 1st February 2017. With this we are also trying to provide continuity of care to our patients abd trying to increase number of visits to provide quality and comnfort care. 

We look forward for your continued support in our endeavor to provide palliative care and end of life care to terminally ill patients and belonging to the poorer sections of our society. 

Patient taken out for sunlight in Hospice premises
Patient taken out for sunlight in Hospice premises
Doctor with patient at hospice
Doctor with patient at hospice
Patient as kid on the swing at hospice
Patient as kid on the swing at hospice
Kids outing to Golkonda Fort on weekend with team
Kids outing to Golkonda Fort on weekend with team
Psycho social support at Home care
Psycho social support at Home care
Child
Child's last wish to become police officer

Links:

 

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Organization Information

PAIN RELIEF AND PALLIATIVE CARE SOCIETY

Location: HYDERABAD - India
Website: http:/​/​www.palliativecarepartners.in
Project Leader:
Pain Relief and Palliative Care Society
HYDERABAD, Telangana India
$31,872 raised of $50,000 goal
 
262 donations
$18,128 to go
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