By Nathan Rowe | Capacity Development Officer
Over the coming year we will be employing a self-advocate with Down syndrome from Uganda to support our work in Africa. He will be working with us to deliver training on running self-advocacy groups in Nigeria and helping the Africa Down Syndrome Network’s Regional Project Coordinator with its upcoming project supporting national groups with their advocacy efforts.
We recently met with the Rwandan Down Syndrome Organisation to discuss their plans for the next year as an organisation. We are supporting them to develop a strategy for the year focussing on developing their financial sustainability. This includes streamlining some of their activities and focusing on developing their fundraising capabilities.
Earlier in the year we managed to secure life changing heart surgery for two young children with Down syndrome from Uganda through Chain of Hope, a UK based charity specialising in heart operations. Before the surgery could proceed they needed final tests called diagnostic catheters to check it was safe to operate. We fundraised for the tests and the results show that it is safe to operate, so they should be able to have their surgery soon.
Thank you to everyone who has donated to the project and those of you who continue to make regular donations! Your donations enable us to carry on our important work supporting people with Down syndrome in Africa.
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