Supporting Children with Disabilities in Uganda

by MAITS - Multi-Agency International Training and Support
Supporting Children with Disabilities in Uganda
Supporting Children with Disabilities in Uganda
Supporting Children with Disabilities in Uganda
Supporting Children with Disabilities in Uganda
Supporting Children with Disabilities in Uganda
Supporting Children with Disabilities in Uganda

We have decided to cease crowd-funding for this project due to a lack of donations, however, we will continue to fundraise through other means to ensure that our vital work in Uganda can continue.

The problem facing children with disabilities such as cerebral palsy or autism in Uganda is complex. Children with developmental disabilities struggle with feeding difficulties and a range of issues that impede their everyday progress. They need support with feeding, toileting, building muscle strength, improving motor function and speech and language support, all of which will significantly improve the quality of their lives. Many families otherwise face stigma and social isolation.

We will continue to deliver our intended Community Health Worker (CHW) Empowerment Programme through fundraising from alternative sources. We intend to train 60 Community Healthworkers based at two centres in rural Uganda, Kyaninga Chlldren's Centre in Karabole and Kasole. Our programme will support 240 children with developmental disabilities, from cerebral palsy to autism, and 240 caregivers in resource-poor districts where there is little access to therapeutic intervention. Our training will improve children's quality of life and independence, as well as parents/carers' wellbeing.

We would like to take this opportunity to thank you for your donation to this project, and to let you know that our work continues to improve the lives of children with disabilites, and their families, within low-resource countries around the world. Our work would not be possible without the generous support of people like you.

With Graditude,

MAITS Team

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Dear Readers,

 

At the end of October last year, KCDC completed part 2 of the Community Health Worker training programme (the practical phase), training 60 Village Health Works (VHTs) in 4 training cohorts. KCDC was very happy with how the training went, with apparently great engagement from the participants. At that time there were still local lock downs happening and schools were still shut. However, this January the therapists are able to start visiting families again, as even though Covid cases remain high, cases do seem to be milder, so visits are possible. In addition, healthcare workers have been encouraged to get a Covid booster so hopefully things are opening up for these communities.  KCDC plan to follow up with the VHTs on a monthly basis.

The good news is that the parent guide has been translated into the local language of Rutooro and the translation of the Lhukhonzo version is in the process of being finalised 

 

Thanks for your support!

MAITS Team

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We are pleased to annouce that after the ease in the lockdown in Uganda. Our partner, Kyaninga Child Development Centre has complete the training of 60 VHTs on Part 2 of the programme. The training went really well with some great engagement. We are now moving into the mentoring stage, the VHT's are armed with their child profile forms and we plan to follow up with them monthly.

After the training 60 VHTs early this year in Uganda on part 1 of the programme, the training was paused due to the curfew in the region. We worked with our partner throughout this time to ensure ways of resuming the training as soon as the situation improves.

During this time, KCDC managed to see families with children with special needs but the numbers were reduced, they prioritised the most vulnerable and malnourished children. 

KCDC planned on starting phase 2 training (How to work with Children with Developmental Disabilities) on 30th September in Fort Portal. They resumed the training with 15-20 Village Health Workers to understand how the plans progressed with COVID and restrictions.

Our partners in Uganda have identified the need to get the training resources translated into Rutooro and Lukonzo which has already started.

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Dear Supporter

We are delighted to share with you the progress of our work in Uganda, which we've undertaken in difficult circumstances of a pandemic, making huge progress in partnership with Kyaninga Child Development Centre (KDC).

The problem facing children with disabilities such as cerebral plasy or autism in Uganda is complex. Whilst 34.8% of children have a developmental delay (aged 36-59 months), only 5% children diagnosed attend schools, meaning the vast majority are severely disadvantaged from the outset.

MAIT's Community Healthworker Programme works to address this. Our expert therapists provide significant training expertise, whilst KDC provides an extensive network of social workers, home visitors and health workers who are linked into the community. This ensures we address the critical support needs of isolated families who live in some of more remote parts of Uganda.

Rachel Lassman, an occupational therapist at KDC tells us 'Community healthworkers often don't know how to recognise signs. A child may attend an immunisation and not be holding their head properly - or be able to feed in the right way.''

Our recent training at Kyaninga has trained 61 health workers on part one of MAITS's Manual. This has been helpful in improving understanding of early diagnosis for children with special needs, critical in improving the child's participation in life but also building confidence with caregivers to improve the quality of lives for families. 

’The training has gone extremely well, with excellent participation from all the trainees creating great discussion and sharing of knowledge. ‘’ MAITS Trainer

'' I never had hope in these children. I used to think they were already wasted children but now I understand that they can improve and it also gives us mothers hope.'' Recent Participant, Health worker

MAITS are now excited to embark on Phase 2 of our training, which will see our Master Trainers deliver face to face training with Community Healthworkers in some of more remote areas from September - teaching hands on practical skills and therapeutic interventions. 

Your support is making a huge difference for these families, by increasing knowledge, skills and ultimately health care provision for children wtih special needs.  It's incredibly humbling. Thank you.

Warm wishes,

 

MAITS Team

Sadia, Kamila, Edwina and Emma

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Organization Information

MAITS - Multi-Agency International Training and Support

Location: London - United Kingdom
Website:
Facebook: Facebook Page
Twitter: @Maits_Charity
Project Leader:
Emma Richards
London, United Kingdom

Funded Project!

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.
   

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