By Ruth Nakalembe | Program Officer
Empowering Families Through Home-Based Rehabilitation: Quarterly Report on Occupational Therapy Support for Children with Cerebral Palsy"
1. Introduction
This quarter, our program prioritized home-based rehabilitation for children with cerebral palsy (CP), emphasizing functional skills development and caregiver support in the home setting. This approach aimed to enhance caregiver knowledge and skills for daily care while addressing the individual rehabilitation needs of each child. Our occupational therapist (OT) led this component, conducting assessments and training sessions within family homes, ensuring that each child's unique challenges and needs were met with tailored, practical interventions.
2. Key Objectives and Activities
Individualized Home Assessments:
Conducted thorough in-home evaluations of 20 children with CP, assessing motor skills, adaptive abilities, and the home environment.
Identified specific needs for each child, including positioning, mobility aids, feeding support, and communication tools.
Caregiver Training and Skill-Building Sessions:
Provided hands-on training for caregivers in daily routines, positioning techniques, and adaptive skills to promote each child’s independence and comfort.
Demonstrated therapy exercises caregivers could incorporate into their daily activities, such as play-based exercises to enhance fine and gross motor skills.
Addressed specific concerns, such as preventing contractures, improving feeding techniques, and managing behavioral challenges.
Home Adaptations and Environmental Modifications:
Recommended modifications to optimize each home’s environment for therapy and safe mobility, including suggestions for low-cost aids and adjustments to common areas to prevent falls and improve accessibility.
Introduced creative ways to use household items for therapeutic activities, reducing the need for specialized equipment that may be financially out of reach.
Follow-Up and Progress Monitoring:
Conducted follow-up visits for 15 children to monitor progress, troubleshoot issues with therapy adherence, and adjust treatment plans as necessary.
Held feedback sessions with caregivers to understand challenges, review progress, and provide additional support or adjustments to home exercises.
3. Achievements and Outcomes
Improved Caregiver Confidence: Training sessions increased caregiver understanding of CP and enhanced their ability to manage daily activities and exercises with confidence.
Enhanced Child Participation in Activities of Daily Living: Children displayed improvements in functional skills, such as sitting posture, self-feeding, and interactive play, resulting from structured home exercises.
Positive Behavioral Changes: Caregivers reported decreased frustration and improved mood in children due to increased engagement in daily routines and purposeful activities.
Successful Environmental Adjustments: Homes were modified to support safer and more accessible environments, leading to a reduction in child injuries related to mobility challenges.
4. Challenges Encountered
Resource Limitations: A lack of access to specialized equipment, such as standing frames and adaptive feeding tools, limited some interventions. Families often had to use improvised alternatives.
Caregiver Availability and Fatigue: Some caregivers found it challenging to consistently implement exercises due to work schedules or caregiving fatigue, impacting the continuity of certain therapy exercises.
Transportation Barriers for Follow-Up Visits: Due to limited transportation options, follow-up visits for remote families posed logistical challenges, which impacted the frequency of check-ins for some participants.
5. Lessons Learned
Flexibility in Intervention Delivery: Customizing interventions with low-cost solutions and everyday household items increased caregiver compliance and minimized costs.
Importance of Support Networks: Engaging extended family members and local support groups improved caregiver resilience and promoted a shared responsibility for the child's care.
Need for Emotional and Mental Health Support for Caregivers: Caregiver stress is a significant factor; incorporating occasional mental health check-ins or support resources would be beneficial in future quarters.
6. Recommendations and Next Steps
Expand Access to Low-Cost Adaptive Equipment: Seek partnerships with local organizations or donors to provide affordable or donated mobility aids and other necessary equipment.
Develop a Remote Follow-Up Option: Create a remote follow-up system (e.g., phone or video consultations) to support families in hard-to-reach areas and ensure ongoing guidance in implementing therapy activities.
7. Conclusion
This quarter’s focus on home-based care for children with cerebral palsy, led by our occupational therapist, made a positive impact on caregiver capabilities and children’s daily functioning. By equipping families with knowledge, skills, and home-modification strategies, we helped foster a supportive and sustainable environment for children with CP. Moving forward, we will address identified challenges by pursuing low-cost equipment solutions, enhancing caregiver support, and refining our follow-up methods.
By Nakalembe Ruth | Development officer
By Harriet Babikako | project lead
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