Building upon the successful training of lead mothers in the last quarter, this report details the progress and achievements of the rehabilitation program for children with cerebral palsy in this quarter
1. Lead Mother Facilitation:
Established Support Groups: 5 new support groups were established, reaching 40 additional caregivers.
Frequency and Attendance: Groups met weekly, with an average attendance of 8 caregivers per meeting.
Topics Covered and Feedback: Lead mothers facilitated sessions on positioning, communication strategies, and accessing community resources. Caregivers reported increased knowledge and confidence in caring for their children (85% satisfaction rate).
2. Child Interventions:
Active Participants: 70 children continued to actively participate in the program.
Progress in Development:
- Motor Skills: 70% of children showed improvement in gross motor skills, as measured by standardized assessments.
- Communication: 60% of children demonstrated progress in communication skills, such as using gestures and vocalizations.
- Other Areas: All children showed improvements in social interaction and participation in daily activities.
Adherence and Adaptations: 85% of children adhered to intervention plans. Minor adaptations were made based on individual needs and progress.
Challenges and Solutions: Some children faced challenges with accessing specialized equipment. The program partnered with local organizations to provide essential equipment loans.
3. Community Engagement:
Awareness Campaigns and Outreach: Conducted educational workshops for 100 community members, reaching parents, teachers, and healthcare workers.
Community Collaborations: Partnered with local schools to promote inclusion and provide accessibility modifications.
Impact on Awareness and Inclusion: Increased community understanding and acceptance of children with CP, as evidenced by positive media coverage and invitations to community events.
4. Results and Impact:
Caregiver knowledge scores increased by an average of 20 points after participating in support groups.
90% of caregivers reported feeling more confident in caring for their children.
Child development assessments showed an overall improvement of 15% in motor and communication skills.
Sarah, a mother of a child with CP, stated, "The support group has given me hope and practical tools to help my child thrive."
5. Sustainability and Future Plans:
Funding Strategies: Exploring grant opportunities and partnerships with corporate sponsors to secure long-term funding.
Expansion Plans: Aiming to train 10 additional lead mothers and reach 50 more children in the next year.
Research and Knowledge Sharing: Collaborating with universities to conduct research on the program's effectiveness and share best practices with other organizations.
This quarter saw significant progress in the rehabilitation program for children with CP. The lead mother initiative proved successful, fostering peer support and empowering caregivers. Children demonstrated improvements in development and inclusion within their communities. We are confident that by building upon these achievements, the program will continue to have a positive and lasting impact on the lives of children with CP and their families.
This report provides an overview of what transpired in the last quarter at CFU. This report provides an overview of the training of lead mothers to be facilitators of formed groups of caregivers of children with cerebral palsy. CFU conducted five days training of lead mothers/expert mothers and VHTs on cerebral palsy targeting Caregivers, Village health teams, community leaders, and staff. The training commenced on the 26th of June and ended on the 30th of June, in attendance were 15 participants (14F/1M) conducted in CFU space.
The training was conducted by Child and Family Foundation Uganda (CFU) in partnership with Baby UBUNTU.
The objectives of the training were to:
To increase the knowledge and confidence of caregivers regarding their children’s condition and their needs
To encourage positive attitudes toward having a child with a disability within the family
To improve problem-solving and peer support amongst caregivers
To promote the inclusion of children within the family and community
To equip participants with skills to care for their children and promote optimum development and reduce further disability eg contracture, limb, deformities
To enable early identification and management of malnutrition
To support parents in identifying common health problems seizures and pain and assist them to treat them quickly.
Empower lead mothers to facilitate groups of caregivers of children with cerebral palsy.
Promote peer support and information sharing among caregivers of children with cerebral palsy.
The training was attended by 10 lead mothers, 2 trainers and 4 CFU staff. The lead mothers were selected by their communities based on their leadership skills and their experience in caring for children with cerebral palsy.
During the training, several modules were disseminated including Getting started (About the program, running session, conducting a home visit), Know your child, Positioning and carrying, Eating and drinking, learning to move, Communicating, Play and stimulation, Everyday activities, Togetherness and belonging Our community. Training Methods
The training was conducted using a variety of methods, including lectures, discussions, role-playing exercises, and group activities. The training was also highly interactive, with lead mothers having the opportunity to share their own experiences and learn from each other.
Number of Children Assessed and Enrolled in the Project
During the third quarter of 2023, a total of 50 children with cerebral palsy were assessed, 30 were enrolled in the project, including 19 males and 11 females.
The training of lead mothers to be facilitators of formed groups of caregivers of children with cerebral palsy is a valuable initiative. The training provides lead mothers with the knowledge and skills they need to support other caregivers and to promote peer support and information sharing.
This report provides an overview of what transpired in the last quarter at CFU. The caregiver that is enrolled in the program were trained on the proper feeding of their children. The training was done in the family care groups that were formed and each family care group consists of 5 to 8 members The main objective of the training was to teach caregivers how to feed their children with cerebral palsy safely and effectively.
Objectives for the Training
The following objectives were intended to be attained through the training:
Increase caregivers' understanding of the common feeding challenges faced by children with CP and provide carers with solutions to these challenges.
Enhance caregivers' confidence in their ability to feed their children with CP
Lectures, food demonstrations, and hands-on exercises were used to offer the training. With their children, caregivers were able to put the techniques they had acquired in the training to use. The training was more practical.
The mothers were taught how to prepare the common foods in the area. They were taught how to position the babies during feeding to prevent choking.
The children also face the problem of constipation and we trained them about the homemade remedies to manage constipation The training was more practical.
The caregivers responded favorably to the training. They stated that they learned a lot about the typical feeding issues that children with Cerebral palsy have and that they were given a lot of practical techniques for dealing with these issues. After the training, caregivers said they felt more confident in their capacity to feed their children with Cerebral palsy.
The training of caregivers on proper feeding for their children with Cerebral palsy is an important intervention that can help to improve the nutritional status of these children and reduce the stress that caregivers experience during mealtimes. The training was well-received by caregivers and resulted in increased knowledge, skills, and confidence.
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