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 Children  Uganda Project #36174

Treatment & Therapy for Nodding Syndrome Children

by Hope Center Uganda Vetted since 2017 Top Ranked Effective Nonprofit
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children
Treatment & Therapy for Nodding Syndrome Children

Summary

HCU is staging a special needs intervention at Uganda's care center for youth with life-threatening degenerative neurological disease, Nodding Syndrome (NS). If funding requirements are not met, the center will be forced to turn away its 300+ beneficiaries: the last time the center closed for 6 months, 5 children died in this period. Donate to help affected children, staff, medical researchers, and the surrounding community in the struggle to understand, cope with, and treat Nodding Syndrome.

$14,000
total goal
$10,539
remaining
41
donors
0
monthly donors
27
days

Challenge

NS is a life-threatening degenerative neurological disorder which causes seizures, stunted growth, and brain dysfunction. The Odek Center is the only government-recognized Rehabilitation Center for an estimated 3,000 child-victims of Nodding Syndrome in the entire Northern Uganda, but discontinued funding is forcing the center to close. This would leave hundreds of children without care, forcing them to return home to their families where they face increased risk of injury and death.

Solution

1. Provide psychological and social support to restore for families of children affected by Nodding syndrome. 2. Provide rehabilitation services with occupational, physio, speech, language, and music therapy to improve and restore lost abilities and improve livelihoods. 3. Build the capacity of office duty bearers / leaders to advocate for better health services delivery for children affected by nodding syndrome.

Long-Term Impact

The nature of the aforementioned objectives is to ensure long-term sustainability. We provide the community with the education to understand Nodding Syndrome and how to cope with it. We equip local leaders and center admins with the tools they need to better advocate for themselves for future funding, plus our Agro-business model for nutritious food and a source of revenue. We also provide the children with the rehabilitative care they need to recover and live as normal lives as possible.

Additional Documentation

This project has provided additional documentation in a PDF file (projdoc.pdf).

Resources

https:/​/​www.hopegulu.org
Mini Documentary on Nodding Syndrome
World Health Organization: About Nodding Syndrome
Visit our site & learn about our programs
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Organization Information

Hope Center Uganda

Location: Gulu - Uganda
Website:
Facebook: Facebook Page
Project Leader:
Jamie Stuart
Gulu, Uganda
* This project is competing for bonus prizes
through the 2018 Year-End Campaign. Terms and conditions apply.

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