Our mission is to provide comprehensive health care, as well as emotional and spiritual support for patients with Duchenne or Becker muscular dystrophy and their families, improving their quality of life; involving parents, doctors, volunteers and society in our organization. The raised funds will be used for: Medical consultations. Psychological and end-of life counseling services for the patients and their families. Medicines
No private nor public hospital in Mexico provides the specialized care needed by our patients, a care based of a multidisciplinary treatment. Duchenne Muscular Dystrophy is not considered a rare disease in Mexico and therefore there are no treatments for it. Most of the families have a low income which does not allow them to cover their children's medical expenses
Enlace Distrofia Muscular Duchenne Becker AC, a non-profit organization, has been the only organization in Northern Mexico since 2000, tending to the particular needs of Duchenne and Becker patients through our unique model of comprehensive and specialized care based on the methodology of Parent Project MD, USA.
A coordinated interdisciplinary care approach will have positive long term outcome on the health, quality of life and life expectancy of our patients fulfilling our mayor goal to have Duchenne individuals included in society and living as normal and productive a life as possible.
This project has provided additional documentation in a PDF file (projdoc.pdf).