By Jo Sopala | Director of Development
Dear Friend,
Our information service continues to be a valued source of support, and comfort for people living with, and affected by, multiple sclerosis (MS)
More than 100,000 people in the UK have MS and 100 more are diagnosed with the condition each week. MS is a lifelong, debilitating condition with an unpredictable disease course, which also has a profound effect on the families and friends of those affected. A diagnosis often leaves people feeling confused and isolated – unsure and fearful about what the future will hold. They need positive and reliable information that will help them to make sense of what is happening, self-manage their condition and talk confidently to health professionals. This is where our information service comes in.
One of the most important services offered by our charity is our personalised enquiry and research service. Every month, on average, this small team of dedicated experts responds to 250 enquiries which are receive by telephone, e-mail and social media. That team researches and writes our award winning publications. They also search and report on national and international MS news and stories. As a result they are in the unique position of having access to, and knowledge of, the latest information and research on all aspects of MS from all over the world. So people who contact our team are always given the most recent and relevant information, in jargon free language which they can understand. Where the answer to a question is not immediately available, they will undertake research to find answers. There is no equivalent service. Enquiries are received from people with MS, their families, individuals who are worried that their symptoms might be MS, and by health professionals.
This is a small selection of recent feedback:-
“Thank you very much for the fast response and for the insight you have given me, I will look at all the websites and information you have given me in great detail”.
“Thanks for getting back to me and all the helpful information you have passed on. I will look in to it all. I'm determined to help my wife have a hopeful future fighting her MS and maybe beat it one day as new medicine develops. Thanks again”
None of our work would be possible without the support of people like you. With your help, we will continue to do all we can to support people living with and affected by MS, so they are able to live the best life possible. Thank you!!!
With best wishes and thanks from everyone here at the MS Trust.
Yours sincerely,
Jo Sopala
Director of Development
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