By Moza Adilen | Communications and Fundraising Officer
For 9-year old Kayla* and her parents, hospital visits have become a constant part of life.
It began almost a year ago with little Kayla complaining about a persistent headache that refused to go away; that in 4 months progressed to affecting her eyes, rendering her gait unstable.
And finally, the shocking diagnosis of an aggressive brain tumour - midline diffuse glioma grade 4 - being delivered.
The only child of young parents, Kayla bravely faced radiation therapy that her oncologist had hoped would slow the progression of the tumour that was beginning to impinge on her spinal cord. Tragically, 3 months ago, the tumour that has dealt a heavy toll on her body robbed her of her mobility and her speech.
Kayla now spends most of her days in bed with limited mobility. Though she cannot talk, Kayla remains alert and responsive, using gentle nods or small gestures to communicate with her loving family. Even sitting upright - something that most children do effortlessly - is a daily struggle.
Yet, travel to the hospital is unavoidable. They continue to have to navigate a relentless schedule of appointments with oncology, neurosurgery, and neurology specialists as her hospital medical team manages her symptoms and treatment plans. For her parents, every trip is a complex operation. “How will Kayla sit? How long will she have to wait? How can they protect her from pain throughout the journey?” A standard wheelchair is no longer sufficient; her body was simply too weak to remain upright for long journeys and endless waiting room delays. The poor girl who used to be a ray of sunshine in everyone’s lives is now grumpy and moody from pain and discomfort. The type of pain that would linger and affect her sleep, making life intolerable.
Thanks to the kindness of donors, Rachel House was able to provide Kayla with a specialized reclining wheelchair, when she was admitted to Rachel House’s service in June this year. It has transformed her hospital visits.
Now, Kayla can lie back and rest comfortably while waiting for doctors, rather than fighting to support her own weight. For her father, who accompanies her to every appointment while working as a night security guard, and her mother, who balances full-time caregiving with running a small snack stall, the reclining wheelchair brings profound relief. It eases the constant worry that they are not doing enough to protect their daughter from discomfort.
For a family already facing financial pressures alongside the demands of caring for a seriously ill child, practical support - such as a reclining wheelchair that reduces discomfort during long hospital visits - can make a meaningful difference.
While a specialised wheelchair cannot cure Kayla’s diagnosis, it dramatically changes how she experiences her days. It gives her comfort, protects her dignity, and eases the burden on her devoted parents.
Every day, we encounter seriously ill children like Kayla whose lives can be tremendously improved with access to specialized medical equipment. Your generosity can bring greater ease and comfort to these children, with essential medical equipment like reclining wheelchairs, oxygen units, and hospital beds.
When families are already carrying so much, these gifts that restore comfort and dignity can mean the world.
*Name changed for privacy
By Moza Adilen | Communications and Fundraising Officer
Project reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.
If you donate to this project or have donated to this project, you can receive an email when this project posts a report. You can also subscribe for reports without donating.
Support this important cause by creating a personalized fundraising page.
Start a Fundraiser