Report (March, April and May, 2018)
Evaluating the various support provided in the months of March, April and May of 2018, we are pleased to have contributed to the successful treatment of children along with the doctors who treat children’s oncological illnesses. Also we are happy to have provided the opportunity for children who have reached the remission of the illness to spend some time in the rehabilitation camp in Mallorca.
According to received requests from families of children with an oncological illnesses, the families received monthly or one-time charity, taking into account the importance of the need indicated in the request. The oncological illness of the child affects the financial situation of the family: there is a significant reduction in income, as one of the parents is staying in the hospital with the child and cannot work for a long period of time; in addition, there is also a significant increase in family’s expenses. Other family members are trying to spend as much time as they can with the seriously ill child, and therefore, in cases where the family lives far away from the city where the hospital is located, a lot of money is spent on travel expenses. The Fund provided families with 5150.00 Eur for their needs and 2226.00 Eur by buying food and nursing equipment.
D.T. contacted the Fund with a request to pay for her son’s genetic research, done by the Caris Molecular Profiling Institute. The Fund was aware of the importance and necessity of these studies and provided 6000.00 Eur.
During the months of March, April and May of 2018, the Fund has faced the growing need for medication. Doctors are more and more confident in prescribing advanced, up-to-date treatment protocols that are not State-covered or not supplied in Lithuania at all, but are known for the success in treatment of children in other countries. In order to help the patient U. T., the Fund bought the Temozolomide 100 mg and Temozolomide 20 mg for 1590.38 Eur.
For the past nine years, the Fund has been ensuring that, in case of need, children with oncological illnesses have a long-term central vein catheters inserted, which significantly improves the psychological well-being of young patients during the treatment and prevents pain and multiple intravenous peritoneal catheter insertions. During these past few months, 9 units of long-term central vein catheters, and 380 units of suitable needles for these catheters were bought for 2690.19 Eur.
In 2015, the Fund launched a continuous project "Genetic Research for More Targeted and Effective Treatment for Each Little Patient". During the biomedical research in one of Europe's most modern laboratories, the study of biomedical molecular tumour markers is being conducted. Genetic tumour studies will allow to refine the histology of the tumour, predict the course of the illness and the risk of recurrence more precisely, and, once the tumour cells’ sensitivity or resistance to the medication is identified, individualize the treatment. For the genetic research of 2 children the Fund paid 6050.00 Eur.
After the diagnosis of remission of the illness, children often suffer from various complications of treatment, which does not allow to forget hospital and its environment. At the beginning of 2015, the Fund happily accepted the offer, made by Jurga and Fredrik Gotlund, to give children a week-long rest in the magnificent Can Fanals villa in Mallorca twice a year, and started a continuing project "Rehabilitation Camp for Children after Oncological Diseases in Mallorca". The aim of this project is to provide high-quality rehabilitation for children who have reached the remission of oncological illness. From April 21 to 28 of 2018, six children, who had oncological illnesses, accompanied by their loved ones enjoyed the warm Mediterranean Sea and admired the spectacular nature. Rehabilitation in Mallorca brings enormous benefits to children's emotional well-being. The flight tickets for 13 people, car rentals, fuel, meals, tourist attractions, insurance and other expenses etc. were 5288.00 Eur.
The Fund has donated 3000.00 Eur to the Lithuanian Children's oncology and Haematology Therapists Fellowship. During the treatment of oncological diseases, psychological help and rehabilitation care for the child is very important. At the request of the rehabilitation centre of children's onco-haematology centre, the Fund provided educational equipment for 1550.89 Eur.
The fund also is continuing the project of Rugute’s Home. It is rented premises (200 m2) located near the Vilnius Children’s Hospital, with a small yard, two bedrooms, a kitchen, bathroom, a cosy area for games, resting and meetings. The aim of this project is to provide a temporary, free of charge accommodation to the children with cancer and their family members. Having found shelter in these premises, children with oncological diseases are able to have a break from their treatment and from being in the hospital. Also, Rugute’s Home allows their family members to get a temporary accommodation while visiting children in the hospital and spend a day or few with a child. The total maintenance cost of Rugute's Home in the months of March, April and May was 4795.09 Eur.
We especially appreciate the fact that through joint activities and ongoing projects you have contributed to the more advanced treatment of little patients, thus giving children the opportunity to grow, study, and love - to live. We are sincerely thankful for your support.