By Marc | Effective Help
Reporting Period: September – November
Thank you for your generous donations so far. We wish you a merry christmas and we trust you will receive as much hope, trust, and safety as you have brought into the life of Joy and Queeneva.
We will not sugarcoat it. The last months have been tough. Sickle cell is a very dangerous and volatile condition. Despite consistent medication access and some improvement in living conditions, there were severe crises in November and October. Joy had the most severe crises and had to spend more than a week in the hospital.
Here an update on their condition from our partner the Community Association for Vulnerable Persons:
Period - September to November
1. Beneficiary: Joy
Crisis Episodes Frequency: Almost every week
Severity: Moderate
Hospital Visits due to : Nose bleeding, body pains, body weakness
Duration of hospital stay: almost a week
New Symptoms:
Leg pain (newly observed symptom noted during the period)
Weight: Normal
Hemoglobin levels: 50%
Weight / Hemoglobin Levels: half of levels for girls this age. 10% lower than other girls this age with sickle cell.
2. Beneficiary: Queentiva
Crisis Episodes Frequency: Almost every week
Severity: Mild to Moderate.
Reason for Hospital Visits: Body pains and weakness related to sickle cell crises. Not hospitalized.
New Symptoms: neck pain.
Weight: normal according to age.
Hemoglobin: lower than girls this age but within expected range for girls with sickle cell (lower end)
Azah Queentiva did not have any hospitalization in this period. She relates well with friends and is socially active at school. A good highlight during this period was that she maintained a positive attitude and strong peer relationships despite ongoing health struggles.
Please note that despite their challenges, your support made a difference. Without the monthly economic transfers, Joy would not have received the same medical treatment in the hospital, and Queeneva’s situation may have been as bad as Joy’s, had she not been receiving preventive treatment. The feeding of both girls is normal as their weight shows, if they were underfed their situation would be much worse.
In this report we will only share a picture of Queenva while waiting for Joy to recover more. Next report we will share information about Stephan and Rejoice.
By Marc Serna | Project Leader
By Effective Help | from collected testimonies
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