Tiny Tickers works to improve the early detection, diagnosis and care of babies with heart problems in the UK, and thanks to your support, we have made good progress since our last report in September.
Since the last report, important results have been published, showing the impact of training on improving the detection of heart disease in babies, particularly in Wales where national training started in 2008. In England, national training started in 2010 and ran for 2 years, so it is too soon to see results, but there has been steady improvement nevertheless.
For more information, visit our facebook pages (there is a link at the bottom of our web pages).
Heart Champions in Government
We recently provided information to the All-Party Parliamentary Group on Heart Disease and recommended that there should be a Heart Champion in every screening department. Having sonographers, in local maternity hospitals, with a special interest in improving heart screening would be an important step in increasing detection of heart babies.
For more information, visit our news page on our website: www.tinytickers.org/news
Pulse Oximetry ...
Dr Andy Ewer who is one of our expert medical advisers has been meeting the Newborn and Infant Physical Examination Programme group (NIPE) to make the case for Pulse Oximetry just after birth to detect heart problems.
The good news is that Pulse Oximetry is still on the table and we will probably know more next year when NIPE make an announcement. The introduction of Pulse Oximetry for all newborns would help to detect low oxygen saturation which is linked to certain congenital heart defects.
We are hoping to produce a new film in the new year, thanks to the support of a film company.
Check out our video on YouTube that shares a family’s experience of having a baby with a congenital heart defect: www.youtube.com/tinytickers
If you would like to read more about other families’ experiences of heart problems, their stories they can be found at: www.tinytickers.org/content/experiences
There is also a video for corporate support. Anyone whose company wants to support Tiny Tickers, can find more information, here: www.tinytickers.org/content/get-your-company-involved
Thanks again for your continued support.