By Kym Kitching | Head of Fundraising and Partnerships
The journey of a heart parent – by Emma Louise Hart
You got to take your baby home;
We took ours to another hospital.
You got to wake up all hours of the night to do feeds;
We didn’t sleep watching our baby being attached to machines and monitors to keep her alive.
You got to enjoy their first week, introducing your baby to family and friends;
We were introduced to cardiologists, consultants and specialists.
You got to walk your baby in their pram;
We walked our baby into her first heart surgery.
You rocked your baby to sleep;
We held our baby down, whilst she was put to sleep in theatre.
You got to prep bottles and feed your baby;
We have a tube that feeds ours.
The journey of a parent living in a hospital, watching their child go through this, is something no-one can understand unless they themselves are living it, or have lived it.
You can feel such a disconnect from ‘normal life’ but I’m so grateful to all those who have supported us in their own ways since the beginning, and still walk with us on this journey.
The above poem was written by Emma while she was in hospital with her 9-week old heart baby.
From the moment they find out that their child has a heart condition, parents and carers will feel so many emotions - fear, worry, anxiety and anger to name just a few.
Thanks to your support, Tiny Tickers are here to help them face the journey.
We are working hard for babies like Emma's - to improve care, early detection, and treatment. We're working hard to support families, like Emma's, facing a diagnosis; and facing worries and concerns about what the future holds for their little ones with an underlying health condition.
Thanks to support like yours we have seen substantial growth in all areas of our work. In 2014/15 we trained 50 sonographers - almost 9 years later we have trained over 2,290 sonographer, training 334 this year alone. We have reached our initial target of placing more than 500 pulse oximetry machines and, launched in 2021 we have held 223 virtual support groups for parents and carers of a child with CHD.
It's such an exciting time for Tiny Tickers. We're having a greater impact for our beneficiaries than ever before - more sonographer training; more equipment being placed in hospitals; an increasing need for our materials and virtual support groups. We're proud that because of our efforts, more babies with CHD are being detected sooner. However there is so much more we need to do to help babies with CHD and their families. Thank you for helping us to help more.
Links:
By Kym Kitching | Fundraising Manager
By Kym and Gaynor | Team Tiny Tickers
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