By Elizabeth Elachi | Project Leader
Dear partners,
Daily preventive therapy is one of the most important pillars of sickle cell care. Children rely on routine prophylaxis — folic acid to support healthy blood production, daily penicillin to prevent deadly pneumococcal infections, and hydroxyurea to reduce painful crises and severe complications. When these medications are taken consistently, sickle cell children experience fewer hospitalizations, fewer emergencies, and a dramatically improved quality of life.
But for displaced families living in internally displaced persons (IDP) camps, this continuity is often impossible. Conflict, sudden relocation, and unstable living conditions break the supply lines that keep children healthy. Many families arrive at camps with no medication, no access to pharmacies, and no way to maintain daily therapy. As a result, children who were once stable begin experiencing frequent crises, severe infections, and lifethreatening complications that could have been prevented.
Our project is designed to restore this essential continuity of care. With your support, we are establishing reliable medication pathways for displaced families, ensuring that folic acid, penicillin prophylaxis, and hydroxyurea reach every child who needs them. Through our mobile clinics, we will distribute monthly medication packs, monitor adherence, and provide caregivers with clear guidance on how and when each drug should be taken. We are also partnering with hospitals, laboratories, and pharmacies to rebuild the supply chain that displacement has disrupted.
In the coming days, once GlobalGiving disburses the next round of funds, we will begin a radio advocacy campaign to educate caregivers on the importance of daily prophylaxis. This outreach will help families understand why missing even a few days of medication can lead to severe complications — and how they can maintain treatment even in unstable environments.
Your generosity is helping us restore the daily care that keeps sickle cell children alive. I will return soon with updates from the field so you can see the impact your kindness is making.
Thank you for standing with these children
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