Hello, I am Ivanna and I am a patient at the Dr Valentin Gómez Farias Regional Hospital in the city of Coatzacoalcos. Manos Unidas by Coatzacoalcos AC transfers me from my house very early since we have to be at the laboratory at 7 am before my consultation and subsequent application of my treatment for mucopolysaccharidoses (MPS), a group of rare diseases in which the body lacks or does not have enough of an enzyme needed to break down long chains of sugar molecules called glycosaminoglycans (formerly called mucopolysaccharides).
As a result, these molecules accumulate in different parts of the body and cause various health problems at different levels that lead to certain syndromes, which can damage different organs, there is no cure so we have to go weekly to receive doses of medication administered intravenously in the Oncopediatrics Clinic. With your donation you help me get to the hospital to receive my weekly dose of medication in a timely manner so that they can control the effects of my illness
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