Send family to conference for rare disorder!

Meet Morgan. She was recently diagnosed with dup15q syndrome, a rare genetic disorder with symptoms including autism, seizures, and developmental delays. Our family conferences help families affected by dup15q syndrome to learn that they are not alone. While dup15q syndrome is a rare disorder and information is often in short supply in home communities, our international conferences have a great sense of cameraderie and acceptance.

Family conferences are vital for spreading awareness and providing support to families dealing with chromosome15q11.2-13.1 duplication syndrome. As knowledge of chromosome15q duplications increases, this conference gives parents and caregivers a chance to interact with the clinicians and researchers on the forefront of dup15q science. There is still so much to be learned and this connection between families and scientists is vital to increasing our knowledge.

Conferences focus on fun and learning. We have sociallevents and also bring a variety of research opportunities to our families. As we push the science of dup15q syndrome forward, participitation from our families is vital. Unfortunately, travel is especially difficult with special needs children. By bringing researchers from across the nation to one place, we ease the burden on our families.

Your donation helps families, like Morgan's, to attend a conference. Our hope is that all of our member families will be able to attend at least one conference and we help to make this possibly by offering scholarships.

For more information on Dup15q Alliance, and all we do to help families affected by dup15q syndrome, please visit our website at www.dup15q.org.

Thank you for your support!