Send family to conference for rare disorder!

by Dup15q Alliance
Play Video
Send family to conference for rare disorder!
Send family to conference for rare disorder!
Send family to conference for rare disorder!

Project Report | Jul 23, 2015
Only a few days until the conference begins!

By Kim Maring | Manager

We are just a few days away from the beginning of our next family conference. Four hundred family members from around the world - as far away as Switzerland and Australia - will be joining us to hear the latest news in dup15q syndrome research and treatment. Your support is what makes conferences like these possible. Thank you!

This year we also have opportunities for those with dup15q syndrome to participate in research studies from UCLA, Geisinger, FaceBase and Coriell Genetic Cell Repository. Bringing the researchers to the families saves the inconvenience and expense of travel.

Our science meeting is also happening adjecent to the family meeting. This gives families the chance to meet those that have dedicated their careers to advancing the science and treatment of chromosome 15q duplications. We are so greatful for the work that they do everyday!

A special thanks to all of you for your generous donations. For more than 20 years, Dup15q Alliance has worked tirelessly to improve the lives of those affected by dup15q syndrome. We couldn't do it without you!!

Links:

Share on Twitter Share on Facebook

About Project Reports

Project reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.

If you donate to this project or have donated to this project, you can receive an email when this project posts a report. You can also subscribe for reports without donating.

Sign up for updates

Organization Information

Dup15q Alliance

Location: Highland Park, IL - USA
Website:
Facebook: Facebook Page
X / Twitter: Profile
Project Leader:
Dup15q Alliance
Fayetteville , NY United States
$6,546 raised of $7,500 goal
 
91 donations
$954 to go
Donate Now

Help raise money!

Support this important cause by creating a personalized fundraising page.

Start a Fundraiser

Learn more about GlobalGiving

Teenage Science Students
Vetting +
Due Diligence

Snorkeler
Our
Impact

Woman Holding a Gift Card
Give
Gift Cards

Young Girl with a Bicycle
GlobalGiving
Guarantee

Get incredible stories, promotions, and matching offers in your inbox

WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.