Self-advocacy group and boy with Down syndrome
There has been more excellent work happening in Rwanda since our last report, with COVID-19 restrictions being lifted and the Rwanda Down Syndrome Organisation (RDSO) able to meet in person again.
RDSO shared a success story of someone who has benefited from their work:
This is Joshua (above right), a 5-year-old boy with Down Syndrome from Kigali, Rwanda. When his mother first brought him to the RDSO office he could not walk and the physiotherapy sessions needed to help him learn were unaffordable. The RDSO team advocated for the local government authority to assist the family and last year he received a month of physiotherapy sessions. Now he can walk independently and RDSO staff are working with the family to find an adequate school and financial assistance to allow him to start attending.
RDSO received a visit from Simon, our Programme Fellow who is based in Uganda. While in Kigali, Simon met with RDSO's self-advocacy group for people with Down syndrome and delivered some training for them, focusing on the right to be included in the community and the right to employment.
Simon also met with RDSO staff and discussed the challenges they are facing as an organisation. One key challenge identified is fundraising, so we are planning to do some training for them and support them to produce a fundraising strategy.
Thank you to everyone who has generously supported this project! We will send you another update soon.