There is a wise proverb stated in many cultures that reminds us,"Save One Person and You Save the World." That attitude can especially be applied to the partnership between Asia America Initiative, Global Giving and the Philippine Society for Orphan Disorders [PSOD] in Manila. What began in 2008 as a small spontaneous act of kindness to save the lives of 20 children and 30 impoverished women from cancer has grown into a model for supporting the medical treament of hundreds of children born with rare genetic illnesses. This heartfelt partnership includes medical professionals, pharmaceutical companies, parent and student volunteers and a wonderful over-worked PSOD coordination staff who helped to shape a sucessful campaign to create a first-ever "Persons with Disability Act" authored by the Philippine Congress. It was signed into law by the Executive Branch in March 2016. This law may assist thousands of adults and children with disabilities to have access to medicines previously beyond their families' budgets. AAI, through our Global Giving donors maintains essential support for nutritional supplements, donated clinical supplies and the cost of required medical tests.
"We thank AAI and your donors for your continuous support," says Janet Fransisco a PSOD coodinator. "The law has been signed, but there is still a lot of work to do before the rules are fully implemented. We still are raising funds for the supportive care for the children, such as the milk, vitamins and essential medical devices such as ventilators, suction machines, wheelchairs and diagnostic monitoring of the children."
Each child we assist to overcome a life threatening disease is a symbol of hope to their communities in a country where 36 percent of the people struggle below the poverty line and an equal number barely earn a living wage. One of our newest children is 3 year old "Baby Brielle" who was born with a rare disease called "Alagille Syndrome" which can damage the heart,kidney or liver. Brielle desperately needs a liver transplant within the next three months in order to survive. She has found a matching donor -- her mother -- who will share part of her own liver to save her daughter. As always, the cost of the surgery and pre and post operative care is far more than her family can afford. AAI will start a micro-project to save"Baby Brielle" by reaching out to our Global Giving donors. We are in a partnership with other charitable organizations to cover the costs and other essential needs to complete this process. Dr. Tom Stern, MD in San Francisco says, "Alagille Syndrome is one of the most difficult conditions a child can have. Many charitable medical centers do not have the precious resources [due to being overwhelmed with many children who have urgent needs]."
AAI believes that making every possible effort to save this one child's life can "help save the world." We invite you to contribute whatever you can afford to our "Baby Brielle" micro-project campaign. You have our sincere gratitude for your payers and your contributions.
Persons with Disabilities Act celebrated
PSOD staff briefing government health officials
child of psod care with her mother