Prescribe Joy to Seriously Ill Kids and Teens

Like many 12-year-old girls, Zoa has pictures of her favorite band, Panic! At The Disco, plastered across her walls. But unlike many girls, Zoa is also battling Myelodysplastic Syndrome (MDS), pre-leukemia bone marrow failure.

When Zoa learned that Panic! At The Disco would be coming to Portland for a concert, she told her parents that more than anything, she wanted to see them live. Of course, her parents couldn’t say no. With Zoa’s birthday coming up it was the perfect time to surprise her with front row tickets to her very first concert!

However, Zoa’s condition took a turn for the worse, and she was admitted to the hospital for a bone marrow transplant, meaning that due to the high risk of infection from large crowds, she would miss her first concert. Zoa was understandably upset, but her dream of going to the concert didn’t end there. With the help of our Link and MyMuisicRx Programs, CCA gave her a 13^th birthday she will never forget! Zoa and her mom were given exclusive access to a Panic! At The Disco soundcheck at the Moda Center and even visited with lead singer Brendon Urie who hooked her up with band merchandise, an autograph, and some great photos.

• Link, a community network of caring people and organizations that provides wishes and unites local families with essential needs and connections to resources
• The Alexandra Ellis Caring Cabin™, a secluded home along the Pacific Coast nestled in 24 acres of surrounding woods with plentiful wildlife and a serene lake, provides an essential health connection with nature and an extraordinary place for families to relax and create once-in-a-lifetime memories
• Chemo Pal Mentor® Program, an award-winning program that matches children and teens with trained adult mentors
• MyMusicRx®, a one-of-a-kind music medicine program that lets “kids prescribe” the music experience that feels right to them. The in-hospital program, led by MyMusicRx Specialists, includes bedside music and provides access to CCA’s digital music medicine program, MyMusicRx.org, which enables kids to play free music games, explore digital instruments and watch exclusive video song prescriptions from their favorite artists – whenever and wherever, 24/7.

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