By Megan Wright | Communications and Fundraising Officer
Sickle Cell disease is a life-long genetic blood condition that affects the shape of red blood cells. It is particularly common in people with an African or Caribbean family background (NHS, 2022). When red blood cells become misshapen or sickle shaped they do not live as long and can block blood vessels. These blockages then lead to higher risk of infections, serious complications and severe pain known as ‘crisis’.
The only known cure for Sickle Cell Disease is a stem cell or bone marrow transplant which is very rarely performed, even in developed countries, due to the associated risks (NHS, 2022). Therefore the treatment options rely heavily on pain managment and infection prevention.
Jacob is a 12yearold boy from Malawi. He was diagnosed with Sickle Cell Disease as a toddler and since then, his childhood has been shaped by frequent hospital admissions for blood transfusions, pain relief, and intravenous fluids. These treatments are essential to keeping him stable.
For Jacob, this condition affects far more than his health, it disrupts his education. Sickle Cell Crises often strike without warning, forcing him to miss school which makes it difficult for him to keep up with lessons. Furthermore his 3 siblings also struggle with the same condition. His parents barely find time to work to raise funds to support their children due to their frequent hospitalization. However the Inter Care donation has relieved this financial pressure and for this, they are very grateful.
During one severe episode of crisis, Jacob and his mother walked for two hours to reach their closest health unit. Thanks to donations from Inter Care, Jacob received the medicines and supplies he needed to manage his condition safely. Pain relief, antibiotics and even adhesive tape to secure his IV lines play a crucial role in his care, especially as he requires transfusions so often.
For children like Jacob, having reliable access to basic medicines, pain relief, and routine followup care can be the difference between a manageable condition and a constant state of crisis.
By Bella Legesse | Program Support Officer
By Bella Legesse | Program Support Officer
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