To improve the diagnosis, treatment and care of individuals worldwide with CACNA1C-related disorders, including Timothy Syndrome and LongQT8, and to support the families of those diagnosed.
Each of GlobalGiving’s nonprofit partners is required to send quarterly donor reports detailing the impact of their work. Here are some of their recent updates:
By Sophie Muir | Chair of Trustees
Teamwork makes the dream work: The importance of Working Together This phrase is about how working as a team can lead to better outcomes than a single person working independently. It is very... Read the full report ›By Sophie Muir | Chair of Trustees
Great to be able to share with you the latest updates on the global CACNA1C Community Registryand our work at Timothy Syndrome Alliance (TSA). Our ‘Connect CACNA1C Global Network... Read the full report ›By Sophie Muir | Chair of Trustees
We are excited to share with you news of our online conference on 23 June 2023, 3pm - 7.30pm BST Our virtual language-accessible ‘Connect CACNA1C Global Network Conference’, kindly hosted... Read the full report ›
