Mar 21, 2018

2018 Quarter 1 Report

"Life Education Session" at Schools (1)
"Life Education Session" at Schools (1)

‘Life Education Session’ at Schools

The Association continued with our mission to conduct ‘Life Education Sessions’ at Tung Chung Catholic School, Tin Shui Wai Government Secondary School and Lingnan Dr. Chung Wing Kwong Memorial Secondary School.  The education session consists of two parts, firstly a brief introduction of our association, our services, cleft lip and palate; secondly sharing by a patient or parent telling the surgeries undergone, their difficulties and feelings.  We aim to let students understand about cleft deformities, and to enable them to develop care and compassion to CLP patients.  We also hope that through the ‘Life Education Sessions’, it will help reducing any teasing or bullying of CLP patients in schools and to foster social inclusion in the community. 

Provision of Nasal Splints

Cleft lip patients suffer from a split between the lip and nose and this would lead to the collapse in the nasal cartilage and eventually nose flattening.  This condition greatly affects the facial appearance of the patients.   To newborn CLP babies, the Nasal Splint can help support and mould the collapsed nasal cartilage before cleft lip surgical repair.  To CLP adults, the Nasal Retainer can help during rehabilitation period to maintain the shape of nose after rhinoplasty.  It also improves the appearance and self-confidence of the patients, which are of enormous help to them.  

In co-operation with a former government hospital maxillofacial prosthetic technician, the Association carry out the project for the provision of nasal splint at half of the fee to our members of different ages.  The technician also holds “Nasal Splint Workshop” at our centre once a month to fit the right size of nasal splints for patients, follow up their application and tailor-made appropriate sizes of nasal splints for our members during different stages of their growth.  Comments from our members that the results after application of nasal splints are positive and effective. 

In addition, a newly designed nasal elevator, which is more comfortable to wear, has been produced to suit CLP newborn babies to adult patients.  They can wear the nasal elevator before lip repair and also after nose revision surgery which can help to correct nasal asymmetry.  

Social Education & Promotional Activities

The Association was invited by Wong Tai Sin Fire Station during its Annual Open day and Carnival to join other non-profit organizations in running one of the booths.  Though this community activity, we provide information about cleft lip and palate, with an aim to enhance general public’s understanding of cleft deformity and their acceptance of the patients.  Our patient and parent volunteers helped in operating the games, giving away colourful balloons, distributing promotional leaflets and answering enquiries.  The event was held on 7 January and our booth was very successful in attracting a large number of people that day.

"Life Education Session" at Schools (2)
"Life Education Session" at Schools (2)
Provision of Nasal Splints (1)
Provision of Nasal Splints (1)
Provision of Nasal Splints (2)
Provision of Nasal Splints (2)
Social Education & Promotional Activities (1)
Social Education & Promotional Activities (1)
Social Education & Promotional Activities (2)
Social Education & Promotional Activities (2)
Dec 21, 2017

2017 Quarter 4 Report

Father's Day Sharing (1)
Father's Day Sharing (1)

Sharing by a Father of Cleft Lip & Palate Child on Father’s Day

Mr. Ho, father of a cleft lip and palate child whose is one of the members of HKACLP, was invited to attend ‘Father’s Day Sharing and Recognition Ceremony’ on 2017 Father’s Day at APM Millennium City.  Mr. Ho appeared as a guest to share publicly his bittersweet experience for caretaking and upbringing his 11-year old daughter who is born with complete unilateral cleft lip and palate.  During the sharing, Mr. Ho unfolded the difficulties and challenges faced by the parents of cleft lip and palate patients, and also disclosed the future treatments of his daughter for secondary deformities.  Mr. Ho encouraged the parents that they should not easily give up, he believed that any hardship could be overcome if the whole family would face it together.  Mr. Ho’s sharing received great applaud of encouragement and recognition.  The subsequent mass media’s reports of the sharing helped to enhance the understanding and acceptance of the general public towards CLP patients.

Academic and Talent Awards to Childrenwith Cleft Lip & Palate

Patients with cleft palate/lip are at an elevated risk for developing psychosocial problems especially those relating to self-concept and appearance.  It is our hope to help the children tap into their passions and their talents because there is no greater self-esteem booster than to know who they are, and be passionate about.  Therefore, at the Annual General Meeting & Dinner Gathering of HKACLP, we present awards to young members with outstanding academic and talent accomplishments.  Our young members also performed talent shows during the dinner gathering, including playing harmonica and violin, singing, dancing and plate-spinning (traditional acrobatics).  Through the awards presentation and the chance of performing, we aim to encourage the children’s all-round development and foster positive life values and attitudes.

Community Educational Activities

As teasing and bullying is common across the lifespan to individuals with cleft lip and palate,HKACLP, as a patients’ organization for facial clefts, held a Charity Gala Premiere of the film ‘Wonder’ at Golden Harvest Whampoa on 19 November.  We hope to take this event to draw the public’s awareness to cleft deformities and enhance them to give care and compassion to the patients, helping them to blend in the society.  To promote this event, we posted broadview banner advertisements at Mass Transit Railway and sent out more than 3,000 invitations to various people, including medical partitioners, caring companies, donors and members. 

‘Wonder’, based on the New York Times bestseller, tells the incredibly inspiring and heartwarming story of a 10-year old boy born with Treacher Collins syndrome and a cleft palate, who has been in and out of hospitals for years and now he tries to fit in at a new school.  With his parents’ encouragement, he shows everyone that he is just an ordinary kid, no different than the rest of the world.  He strives to teach others that beauty is not just on the outside (quoted from Wikipedia).

Father's Day Sharing (2)
Father's Day Sharing (2)
Award Presentation
Award Presentation
Talent Show
Talent Show
Wonder (1)
Wonder (1)
Wonder (2)
Wonder (2)
Sep 21, 2017

2017 Quarter 3 Report

Speech Therapy
Speech Therapy

Speech Therapy Service

Children with cleft lip and palate (CLP) typically have a variety of speech problems. 

It is because there is less tissue on the roof of the mouth for the tongue to touch, and the soft palate is not long enough to close off the mouth from the nose that will bring about nasal speech.  Besides, it is common that agilityof palate after surgical repair is far from ideal.

 These problems can make it difficult for the child to learn how to make some sounds and thus some children may have problems with their speech as follows:

Delay with speech development;

Poor movement of upper lip and palate, abnormal tongue and tongue-palate contact, lack of co-ordination with breathing while speaking;

Velopharyngeal incompetence causing air leakage from the nose and heavy nasal sounds while speaking;

Obstacles to speech due to inflexibility of oral muscles;

Development of bad compensatory speech habits due to insufficiency of speech organs.

Cleft lip and palate children need to have speech assessments from 18 months, and it is necessary for children to take speech therapy as soon as possible in order to prevent any speech problem, otherwise the correction will become more laborious and time consuming. 

However, there is constant long queue for public speech therapy service, and even your turn come eventually, the appointments are relatively scattered that may not be able to meet the needs of cleft lip and palate children.  Though private service is an alternative, however, the fee is too expensive for most of the families.

In view of cleft lip and palate children's urgent needs for speech therapy and the insufficiency of public service for the patients, HKACLP provides resident speech therapy service, which is especially designed to correct common speech problems of cleft lip and palate children with adequate follow-ups according to individual's need so as to help them catch up with their counterparts in studies during 2-6 years old "the golden period for learning".

 

Along the Way with You - Support Service to Families with CLP Patients

Born with congenital cleft lip and palate, the affected babies have abnormal appearances and feeding problems. They also need to undergo primary surgeries during the first year of birth and may need secondary revisions in early adulthood depending on individual's condition. In different stages of growth, veteran parents' support will help the patients and their families to go through every treatment process positively and confidently. 

Sponsored by "Ng Teng Fong Charitable Foundation", HKACLP has formed District Support Service Team in June 2012 to provide district-based supportive service to new born babies and their parents, mothers bearing affected babies, and patients who will undergo surgeries.

The objectives of establishing the service team are to strengthen the parents' caretaking knowledge and capabilities to ensure that the babies are in good care; enhance mutual help among parents; develop volunteer service to give chance for experienced parents to help those of the new born; and to keep the parents abreast of the latest treatments of clefts so as to facilitate rehabilitation of patients.

At present, there are 16 members in District Support Service Team.  The trained team members will be delegated to take care of new parents by frequent follow-ups, sharing their experience and giving guidance to them. The modes of service includes: appointment interview, hospital visits, home visits, telephone contacts and group meetings in the districts.

 

Community Education Activities

HKACLP arranges "Care for Cleft Lip and Palate" exhibition in different places in Hong Kong; organizes community education activities in cooperation with community centres and youth centres; and publishes information like booklets, leaflets and Member's Newsletter. The aim is to enhance general public's understanding of cleft deformity and their acceptance of the patients.

Tools for Speech Therapy
Tools for Speech Therapy
Along the Way with You_Training
Along the Way with You_Training
Along the Way with You_Visit
Along the Way with You_Visit
2017 Community Education Activities_1
2017 Community Education Activities_1
2017 Community Education Activities_2
2017 Community Education Activities_2
 
WARNING: Javascript is currently disabled or is not available in your browser. GlobalGiving makes extensive use of Javascript and will not function properly with Javascript disabled. Please enable Javascript and refresh this page.