Jun 9, 2016

The changing organ donation scenario in India

The last three months have seen various positive developments in the field of organ donation in the country with both the centre as well as some state governments taking some initiatives to boost the organ donation scenario.

The Union Health Ministry has recently prepared guidelines for deceased organ donation in India. The draft guidelines propose a first-ever national registry of patients in the wait-list, and include a point system to prioritize organ supply. This will ensure a fair, transparent and equitable distribution of organs.

In another move, spelling relief for transplant recipients, the National Pharmaceutical Pricing Authority has reduced the rates of essential drugs given after a transplant. For a patient, finding a matching organ donor and undergoing a transplant is only half the battle won. Living with a foreign body is not only difficult but also expensive. Most recipients have to be on medication for a lifetime and the drugs don't come cheap.

Adding to the list of cities like Bangalore and Mumbai, the city of Ahmedabad has now made the option available of pledging to donate organs while applying for driver’s license. The need is for the Centre to adopt this so that many more people are the given the option to sign up.

The State of Kerala launched an air ambulance for promoting organ donation in Kerala. The memorandum of understanding for the air ambulance project was signed between the Kerala Network for Organ Sharing (KNOS) and the state-owned Rajiv Gandhi Aviation Academy where private and government hospitals would be linked to this programme and the aircraft would be used to transport organs from brain-dead patients from one city to the other within the state or from other states.

While the developments have been quite positive and encouraging India still has a long way to go. MOHAN Foundation, of course, continues to do all it can to contribute to creating a more enabling environment towards increasing donations in the country

Donor Action Program for ICU’s at BLK Super Specialty Hospital

Very often the medical personnel have little knowledge on identifying and maintaining a brain dead patient. They especially find it challenging to deal with the family, both to broach the subject of death and organ donation. O April 18, 2016, MOHAN Foundation was invited by BLK Super Specialty Hospital to conduct half day training on the same for ICU consultants, neuro-surgeons & physicians and nurses. The training workshop was done to give the needed push to the ongoing deceased organ donation program in the hospital.

MOHAN Foundation strongly believes that the medical fraternity bears a very big responsibility to make a program on organ donation a success in the hospital. The experience of the family, who has been approached for organ donation, both during the treatment and after the death is declared, makes a huge impact on their decision on donating organs. The need to continue supporting the family even if there is a refusal was stressed upon as that determines the perception of the family towards the hospital as well as how the message would be carried forward outside the hospital.

2nd Transplant Coordinators' Training Program conducted by NOTTO in partnership with MOHAN Foundation at NOTTO Office, New Delhi

NOTTO (National Organ & Tissue Transplant Organization) in partnership with MOHAN Foundation conducted the second Transplant Coordinators' Training Program from March 1-5, 2016 at NOTTO office, Safdarjung Hospital, New Delhi. The first training was also conducted in partnership with the foundation last year in the month of July.

NOTTO, in partnership with MOHAN Foundation, is in the process of creating a national curriculum for the training of Transplant Coordinators.  Transplant Coordinators are an integral part of the success of organ donation and transplantation as it largely depends upon effective counseling and coordination by transplant coordinators.

35 participants of varied profiles like doctors, nurses, medical social workers, psychologists and quality managers from government hospitals of Delhi-NCR attended the training.

The training was held by the trainers of MOHAN Foundation along with the support of other faculty from Safdarjung and other government and private hospitals.

One Week Transplant Coordinators' Training Programme at Fortis Memorial Research Institute, Gurgaon

MOHAN Foundation in partnership with FORT (Fortis Organ Retrieval & Transplant) under the aegis of NOTTO (National Organ & Tissue Transplant Organization) successfully organized a training program for transplant coordinators from April 12-16, 2016 held at Fortis Memorial Research Institute, Gurgaon.

58 delegates of varied profiles – transplant coordinators, doctors, nurses, medical social workers, senior managers, medical superintendent and counselors from 11 states (Rajasthan, West Bengal, Karnataka, Madhya Pradesh, Gujarat, Tamil Nadu, Haryana, Punjab, Maharashtra, Uttar Pradesh & Kerala) and 2 union territory (Delhi & Chandigarh) of India attended the training.

While the first training focused on government hospital transplant coordinators, this one attracted participants from private hospitals.

 4th ELPAT Congress in Rome

Dr Sunil Shroff, Managing Trustee of the Foundation was invited at the said conference to represent India and given the large experience of the Foundation with training transplant coordinators; he made a presentation on, ‘The role of transplant coordinators in public engagement’.

Training the police

As part of an ongoing training program, 97 Grade I police training cadets   under the Chennai wing of the Police Training College were given training on the “Role of Police in Organ Donation” on March 06, 2016 at the Police Training College. The main focus of the program is to clarify the role of investigation officer in deceased organ donation programme and to enable them to streamline processes.

MOHAN Foundation receives the Golden Mikes Awards for ''Best use of Radio

MOHAN Foundation won the Gold Trophy at the Golden Mikes Radio Advertising Awards for the "Best use of Radio" for its campaign titled "Dil Deke Dekho" with 91.1 Radio City. The campaign was run in Delhi-NCR from February 5, 2015 and leading up to February 14, 2015, it being the Valentine's Day. The campaign aimed to promote the cause of organ donation (more so heart donation) and to encourage listeners to pledge their organs on the Valentine's Day.

Golden Mikes celebrate the very best of radio advertising on stations across India and acknowledge the contribution of advertising agencies, media agencies, clients, radio stations, production houses and others to the growth of the medium in the country through these annual awards. This was the 6th edition of the Golden Mikes Awards.

The campaign itself won 3 awards namely:

Gold for "Best use of Radio"

Silver for "Best On Air promotion by a single radio station"

Silver for "Best Public Service Initiative by a radio station

The campaign attracted many celebrities to endorse organ donation. Honorable Health Minister, Shri J P Nadda also congratulated the efforts of the campaign. Many recipients and donor families shared their experiences on air and there were a large number of sign-ups as a result of the campaign.

The campaign highlights have been captured in this sound byte:

www.soundcloud.com/musicjockeyabhishek/best-use-of-radio-dil-deke-dekho

 

 

Mar 10, 2016

Exciting times for organ donation in India

Dr Sunil Shroff gets the JSPL award
Dr Sunil Shroff gets the JSPL award

This was another exciting quarter both for MOHAN Foundation and for the overall deceased donation scenario in the country. Newer cities such as Indore, Aurangabad and Nagpur made donations happen. These are cities where the Foundation has conducted meetings and training with stakeholders and in some cases have prepared a roadmap to help them take forward the deceased donation program and it is gratifying to see the results of the same.

Many of these cities do not have advanced transplant facilities (and only do renal transplants) and therefore organs were airlifted to other cities performing transplants. As a result of these developments, many state governments are now looking at subsidizing the cost of airlifting so that it becomes affordable to patients.

Chief Minister of Kerala, Mr. Oommen Chandy said, “The government will soon sign a MoU with the Rajiv Gandhi Institute for Civil Aviation to make available air ambulance service to airlift patients to hospitals in critical situations.”

In Maharashtra, the state's Directorate of Health Services and Zonal Transplant Coordination Committee (ZTCC) held the first round of talks with private flight operators for making interstate and intrastate transport of human organs affordable and feasible.

These are thrilling developments and are indicative of times to come where India will soon show an increased donation rate and thereby help many more of those that require an end stage life saving organ.

MOHAN Foundation continues to get recognized for its unique contribution to the field of organ donation

On January 14, 2016 Dr Sunil Shroff ( Managing Trustee & Founder, MOHAN Foundation) was awarded the Rastriya Swayamsiddh Award in the Individual category (Health) by the JSPL (Jindal Steel & Power limited) Foundation. The chief guest for the evening, Mr Rajiv Pratap Rudy (Union Minister of State Skill Development and Entrepreneurship) handed over the awards. 

9 individuals and 10 organizations were awarded for their exemplary work. Dr Shroff who was addressed as the 'father of deceased organ donation in India" was one of the individual awardees.

 Exploring New Frontiers’ - Advanced Transplant Coordinators’ Workshop (3rd Consultative Meeting)

Keeping in mind the unique needs of senior transplant coordinators who have been working on ground since some years, MOHAN Foundation conducts an advanced workshop for them. The forum is also a great opportunity for networking, knowledge sharing and providing support to each other given the demanding nature of this work.

The 3rd Consultative meeting of the same was held at the Radha Regent, Chennai on January 29-30, 2016. The meeting’s focus was to explore strategies to improve organ and tissue donation in India through Donation after Circulatory Death (DCD) and tissue banking. Many stakeholders and experts from different parts of the country and from abroad participated in the meeting.

Training workshop in Counseling and Transplant Coordination held in Hyderabad

One week training in Counseling and Transplant Coordination was held from December 14-18, 2015 at Yashoda Hospital, Secunderabad. There were 48 participants from various parts of India such as Telangana, Maharashtra, Karnataka, Kerala and Gujarat.

Apart from the scientific sessions, MOHAN Foundation faculty shared moving donor stories, and a film on grief counseling. Other sessions such as life skills for a transplant coordinator, the legal aspects of organ donation and transplantation, establishment of a deceased donation programme in a hospital, role of public education and social media in organ donation etc were covered.

MOHAN Foundation’s trained transplant coordinator at the forefront of deceased organ donation

The year started on a very positive and encouraging note when one of the Foundation’s trained transplant coordinator trained, placed at a hospital where conversions have a been a huge challenge played a pivotal role in getting consent from two families from rural Haryana for organ donations of their brain dead loved ones.

It is very motivating and encouraging for the Foundation to see how the transplant coordinators trained by the Foundation take on challenging roles and change existing scenarios. Haryana has since long been a challenging state in terms of counseling and getting consent.

The way transplant coordinators deal with the family of a brain dead person is a very influencing factor in getting consent from them for organ donation. MOHAN Foundation strongly believes in setting up a cadre of trained professionals who are sensitive to the timely needs of the family of the brain dead person and the way they should be dealing with family right from coordinating between different teams involved in the process of organ retrieval, billing to handling the body to the family. To be a transplant coordinator one needs the passion, commitment for the cause and skills in the same. MOHAN Foundation can provide the skills but passion cannot be taught or given. 

Heart from Aurangabad transplanted in Delhi
Heart from Aurangabad transplanted in Delhi
Donation in Indore, transplant in Mumbai
Donation in Indore, transplant in Mumbai
Brave parents of a brave 7 year old
Brave parents of a brave 7 year old
Deeyan inspires thousands to pledge
Deeyan inspires thousands to pledge
A transplant coordinator speaks...
A transplant coordinator speaks...

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Dec 9, 2015

MOHAN Foundation gets international recognition

MOHAN Foundation’s work with Transplant Coordinator training gets international recognition

Dr. Sumana Navin (Course Director, MF) represented the Foundation at The Congress of the Asian Society of Transplantation (CAST) in Singapore and her paper on ‘Impact of Trained Transplant Coordinators on the Deceased Donation Transplantation Programme in India’ was conferred the Best Abstract Award. CAST is the region’s largest and longest-running gathering of transplant physicians, surgeons and other health professionals involved in transplantation.

She also presented a paper on Improving the Deceased Donation Transplantation Rate in India. Both these papers showcased the impact of MOHAN Foundation’s training programmes, public advocacy and out-of-the-box strategies as well as best practices in capacity building, which were very relevant to the countries in the region. Keen interest was displayed in the Transplant Coordinators' Training Programme with the audience wanting more details about the training, the composition of the participants (social workers/nurses etc.), and the challenges faced by transplant coordinators. Prof. A. Vathsala, President, CAST 2015 complimented MOHAN Foundation on the work that it was doing.

MOHAN Foundation Awarded the prestigious British Medical Journal South Asia Award 2015

MOHAN Foundation has been awarded the prestigious British Medical Journal South Asia Award 2015 famously known as “Oscars of Healthcare/Medicine” under Healthcare Advocacy category for its relentless efforts using every tool, methodology, process and technology to promote organ donation in India and South Asia for the past two decades.

MOHAN Foundation has emerged a WINNER among 900 nominations and 36 finalists with 12 winners in different categories. The award was received by Mrs. Lalitha Raghuram (Country Director, MF) at the awards ceremony organized on October 30, 2015, at The Leela, Mumbai.

We at MOHAN Foundation feel that it is extremely important to share the recognition of the excellent work by MOHAN Foundation team that has set standards of excellence in deceased organ donation in India. We have consistently and professionally delivered the very best for organ donation to the people of India and this award is a testimony to our efforts.

''Beginning of the New Dawn'' - A Two Days Conference Of The National Association Of Transplant Coordinators

The two days conference of the National Association of Transplant Coordinators (NATCO) saw 120 enthusiastic delegates from all corners of India.  As this conference was held in conjunction with the Indian Society of Organ Transplantation (ISOT) Conference, the delegates had the rare opportunity of listening to some of the finest speakers from all over the world.

The NATCO conference was formally inaugurated by Dr. Jagdish Prasad, Director General of Health Services, Ministry of Health & Family Welfare, Government of India.  He lauded the work done by transplant coordinators, and urged them to continue to do the good work of saving the life of patients that are suffering with end stage organ failure.

Jaipur, Rajasthan continues to make strides

This quarter saw the first liver and heart transplant in Jaipur. This is a significant development in the history of transplantation in Rajasthan, which was so far only performing kidney transplants. MOHAN Foundation began work in Jaipur in partnership with Jaipur Citizen Forum under the MFJCF banner less than 2 years ago, setting up the state’s deceased donation program.

http://timesofindia.indiatimes.com/city/jaipur/Raasthans-first-successful-heart-transplant-patient-leaves-for-home/articleshow/48967198.cms

http://www.hindustantimes.com/jaipur/first-cadaver-heart-transplant-performed-at-mg-hospital/story-0xXRaq3IZ5A76VP6WWUP6N.html

From organ commerce hub to organ donation – The Hindu, November 19, 2015

MOHAN Foundation’s efforts were recognized by The Hindu, a leading newspaper in our country. It mentioned how MOHAN Foundation played a pivotal role to train large numbers of people as grief counsellors and has evolved a fine data management system for co-ordinating voluminous information on transplants and keeping it secure, but transparent. MOHAN Foundation started in 1997 is now seen as an organisation that is now the go-to unit for clarity on aspects of cadaver donation formed by Dr. Sunil Shroff, a urologist, with like-minded folks.

The role of the grief counsellor, speaking to families of brain dead people urging them to consider organ donation at a time of great trial is crucial. The ultimate act of sacrifice by a family agreeing to donate the organs, remains at the heart of the success of the cadaver transplant programme. If there are no donors, there are no recipients, and there is no programme.

Presently Tamil Nadu, a state in southern India has a well-developed program where registries of recipients are maintained. In the case of a brain death the person who is first in the waitlist is entitled to receive an organ. This avoids all the mal practices around organ donation. The Tamil Nadu programme is more committed, transparent, accountable, and all states would do well to follow this model.

All these efforts have tremendously helped in controlling the organ commerce, especially in southern India.

http://www.thehindu.com/opinion/tamil-nadus-transformation-from-organ-commerce-hub-to-organ-donation/article7878618.ece

                                                                                                                                                            

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