Turner syndrome awareness in Ecuador

Through zoom videoconferences, talks on psychology have been held, on the Facebook page of Turner psychology, on the Facebook page of the Foundation other topics have been carried out such as image consulting, workshops on disability, in the Association of Municipalities of Ecuador has carried out a program for the 20 years of existence of the Foundation, in which there were recognitions to the Foundation, talent demonstration of the members, also a Christmas program and attendance at a Christmas cantata. Projects have been presented in Conquito and in the Institute for the Promotion of Creativity, although unfortunately they were not approved.

For some months, the Foundation has approached several institutions to achieve agreements with laboratories such as Zurita & Zurita, medical centers such as Fertil, Ecuadorian Red Cross, Osteoporosis Clinic, Sure Diagnosis Center, Kento Plastic Surgery Center and nutrition, which allows members to obtain discounts for their medical treatment, also for the diagnosis of Turner Syndrome through the Medical Genetics Center that is attached to the Ministry of Public Health of Ecuador the new members have been able to perform the karyotype examination that Determines whether or not they have Turner Syndrome, apart from Facebook live they have continued with interesting topics such as Physiotherapy for women with Turner Syndrome.

Fepast has continued to carry out Facebook live in a virtual way, through the Zoom videoconferencing platform. The topic of April 17, 2021 was the Covid-19 Vaccine in Turner syndrome, Dr. Francisco Álvarez and Dr. María Bernarda Estévez answered questions about how vaccines are made, the possible side effects of the Covid-19 vaccine in women with Turner syndrome. The topic of May 8th was Nutrition in girls and women with Turner Syndrome, Dr. Mayrobi Leguisamo advised us on how to carry out good nutrition, considering that most patients with Turner Syndrome have metabolic problems, and they also talked about the importance of keeping a balance in the consumption of proteins, cereals, healthy fats.

An artistic event was held virtually through the zoom platform of women who have Turner syndrome where Syndrome was also talked about to spread it among the attendees, the event showed the talent that seven talented women have the numbers were singing, piano and dance by a luxury jury that were two artists and a director of a dance academy a contest was held, in the photo you can see Natalia Carpio who plays the piano masterfully, she played the song soul heart and life, she was declared winner of the event Fepast has Talent, the first three places were named.

He sent a special thanks to the donors of the Ecuadorian Foundation for the Assistance to Turner Syndrome that allow us to carry out activities that help us spread the Syndrome, one of the activities that are carried out despite the Covid-19 pandemic is Facebook live With the support of the paid zoom platform, various topics have been addressed, such as self-esteem, heart problems, relationships among others, which help our followers to have more information. It has also relied on raising awareness on the day of rare diseases the foundation attended the illumination of the Virgen del Panecillo in Quito to demonstrate that we must be visible, that we exist and can do a lot for our society, any information about the activities and events that we are going to carry out can be communicated to the telephones 0986858353/0990653327