By June Kinoshita | Executive Director and Chief Operating Officer
Dear Friends,
I am excited to report that this week, our national FSHD tissue donation registry completed the first recovery of muscle tissue from an individual with FSH muscular dystrophy, who underwent a surgical procedure two days ago. The tissue was delivered immediately to two superb scientists, one working at an academic institution and one at a biotech company. The donated tissue will help these researchers validate their strategies for treating FSHD.
For the donor, the gift was especially meaningful because not only is she affected by FSHD, but so is her child. I know that her donation was motivated by her urgent desire to help find a treatment for her son. Your donations have made it possible for this patient's most precious gift to reach its destination. I thank you from the bottom of my heart!
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