By June Kinoshita | Executive Director
We're thrilled to report that the FSHD tissue donation registry has officially launched. We have registered our first researcher who is requesting biospecimens from FSHD patients, and have initiated arrangements to recover muscle from a patient who is planning a scapular fixation surgery. We have also heard from a biotechnology company that needs muscle specimens from FSHD patients in order to validate its drug screening system.
In a few weeks, we will send out our brochure by the US postal service to several thousand patients. We hope many will register to make this invaluable contribution to research.
Thank you so much for your support! With the funds raised so far, we will be able to fund a post-mortem recovery as well as several donations resulting from surgical procedures.
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By June Kinoshita | Executive Director
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