The Most Precious Gift for Medical Research

by Facioscapulohumeral Society/FSH Society
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The Most Precious Gift for Medical Research
The Most Precious Gift for Medical Research
The Most Precious Gift for Medical Research

Project Report | Sep 15, 2016
We have launched!

By June Kinoshita | Executive Director

This is me proudly wearing my Doug & Gracie T!
This is me proudly wearing my Doug & Gracie T!

We're thrilled to report that the FSHD tissue donation registry has officially launched. We have registered our first researcher who is requesting biospecimens from FSHD patients, and have initiated arrangements to recover muscle from a patient who is planning a scapular fixation surgery. We have also heard from a biotechnology company that needs muscle specimens from FSHD patients in order to validate its drug screening system. 

In a few weeks, we will send out our brochure by the US postal service to several thousand patients. We hope many will register to make this invaluable contribution to research.

Thank you so much for your support! With the funds raised so far, we will be able to fund a post-mortem recovery as well as several donations resulting from surgical procedures.


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Jun 13, 2016
FSHD tissue donor registry nearing launch date

By June Kinoshita | Executive Director

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Organization Information

Facioscapulohumeral Society/FSH Society

Location: Lexington, MA - USA
Facebook: Facebook Page
Twitter: @FSHSociety
June Kinoshita
Project Leader:
June Kinoshita
Lexington , MA United States

Funded Project!

Combined with other sources of funding, this project raised enough money to fund the outlined activities and is no longer accepting donations.

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