By Deborah Trott | Volunteer
Prince was born on the 18th of June 2010. It had been a normal delivery and the family was very happy with the news of the new-born baby. The child seemed to be healthy and nothing strange was noticed, except for the fact that he did not cry for around 5 minutes after he was born, but the doctors dismissed it as nothing serious. After a month, one night he started crying suddenly and he twisted his limbs in an awkward manner. But once he stopped crying and appeared alright, his parents did not think much of it. It was at 7 months of age when his family noticed that there was something wrong. Prince was not developing normally. He wasn’t meeting normal developmental milestones, like rolling over from his back to the stomach. This was when he was taken to the doctor and he was diagnosed with Cerebral Palsy.
Cerebral Palsy (CP) is a term used to describe a group of disorders that affect movement and posture. It is caused by trauma to the brain that occurs prenatally, during birth, or before the age of 5. Cerebral Palsy can affect body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. CP may sometimes be accompanied by other impairments, like visual, learning, hearing, speech, epilepsy and intellectual impairments.
Prince joined SAMADHAN at the age of 5. His parents got to know about the NGO through their younger son’s school Principal. At that time, Prince could not play or even move around like other children. He couldn’t support his head as well. He could only lie down on his back. At SAMADHAN, a team of specialists worked with him and his parents. He was given physiotherapy because of which, slowly he was able to support his neck and head. After some time, he was even able to join the special education unit.
It has been 3 years now, since Prince joined SAMADHAN, and there has been a big change in his condition. He greets everyone with a folding of hands to say “Namaste”. His radiant smile can melt anyone’s heart and his eyes sparkle with the mischief and joy of childhood. He is able to communicate to an extent now through gestures and some words, although his speech is not very clear yet. He loves going to school. He is now able to hold a pencil, pick up objects, match items, and he recognizes people by name. His mother, Hema, who works at SAMADHAN now, says, “If I tell him the name of any of his classmates, he immediately points to where they are.” He recognizes his own belongings and is able to differentiate between his things and his brother’s things. He is particular about what he wears and decides what he wants to wear by pointing at it. He is even able to put on loose clothes on his own, with some help from his mother. He has a very good sense of time as well. As his mother is busy doing some work, he calls out to his mother and tells her it is time to pick up his younger brother from school and then go home. Hema smiles and says, “All that Prince is able to do today, all the improvement that I see in his condition, it is all because of SAMADHAN.” Prince smiles and waves goodbye to me, as his mother carries him down the stairs. It is time to pick up his little brother.
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