#OneMoreNurse for Neurofibromatosis

by Nerve Tumours UK
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#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
#OneMoreNurse for Neurofibromatosis
Progress report for #OneMoreNurse
Progress report for #OneMoreNurse

We have secured a new Specialist NF Nurse!

Karen Cockburn, Charity Director, has reached an agreement with an NHS Foundation Trust for a new part-time post for an NF Specialist Nurse, to be based in a region of the country where there is no cover at present.

We are awaiting confirmation from the partnered NHS Foundation that the advert has been approved and that it will be posted in the next couple of weeks. We hope to welcome the new Specialist NF Nurse to the team by the end of the summer months. Thanks to donors like you, we will be reaching unsupported families and individuals living with Neurofibromatosis and making a real difference to even more lives.

An anonymous donor has doubled the campaign value!

GlobalGiving presented the #OneMoreNurse campaign to one of their major donors via their Community Grant Scheme. On the merit of the #OneMoreNurse campaign alone, we were granted an extra £10,000 as well as an additional £10,000 of match funding!

This means, that the campaign has achieved in total almost £50,000 without counting Gift Aid, which is absolutely incredible. 

We are so grateful to all of our wonderful donors. Together you have helped us potentially achieve two more nurses!

A successful crowdfunding appeal

In March, Brendan joined Crowdfund360 to present to over 100+ charity sector professionals. Throughout the presentation, he discussed how The Neuro Foundation’s first ever attempt at crowdfunding was deemed a great success by the loyalty and enthusiasm of our incredibly supportive donors.

Thank you, everyone!

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Karen and Sarah pose for Health Awareness UK
Karen and Sarah pose for Health Awareness UK

It's Rare Diseases Day Today! 

In the spirit of raising awareness of NF, we have taken part in Rare Diseases Day 2017. 

The Neuro Foundation has featured an awareness ad in the Rare Diseases supplement available in the Guardian today, as well as the online editorial that discusses the #OneMoreNurse campaign. We are happy to report that due to the success of #OneMoreNurse, Charity Director Karen Cockburn is already in talks with NHS authorities discussing the implementation of the new specialist.

 “We have to find a way to reach more of the country, and we are so grateful to our community and donors for helping us provide this new position. I am already in talks, and look forward to releasing further news later this year. The charity has been profoundly impacted by the reaction to the #OneMoreNurse campaign, and we will be providing further updates as we make progress with the negotiations. We look forward to introducing the new specialist to the team, and our supporters.” - Karen Cockburn, Charity Director

To find out more information about The Neuro Foundation and the work we do, please find us on Facebook, Twitter, and visit our Website

The #OneMoreNurse campaign is still open and receiving donations, all of which will continue to go towards the implementation of the new specialist. 

Our thanks for your continuing support,

Best wishes, 

The Neuro Foundation Team


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Help us try to reach that  1,500 GBP prize!
Help us try to reach that 1,500 GBP prize!

You can help us win an extra £1,500 for #OneMoreNurse!

We are in the last few days of the Global Giving Winter Gateway Challenge, which offers our #OneMoreNurse project the chance to win extra money to go towards our cause!

If each one of our #OneMoreNurse donors asked just one person to make a donation before 19th December, we could potentially take first place, and the extra £1,500 reward with it. Just imagine, their £10 donation might be what takes us up by an additional £1,500.

At the moment we are maintaining our position in 2nd place for ‘Most money raised’. But if we don’t continue receiving donations we may fall into third or even fourth place - and lose the bonus money prizes associated to it! We need one last push to get this extra boost!

However much prize money we win, the truth remains that the closer we get to that ultimate goal,  the more days a week we can employ the new specialist for, and therefore the greater the impact.

Share this link with your friends, and help us reach those prizes!

The deadline for donations is 19th December!


We set an ambitious goal for ourselves - to fund a new NF Nurse, and although our ‘ultimate’ goal was £20,000, I am proud to say we are still on track to significantly fund a new Specialist NF Nurse position in the UK!  This is entirely down to the generosity of our #OneMoreNurse donors. Thank you so much for your support! We will be writing to you periodically in reports, such as this, to keep you updated on the progress of the new specialist in the months to come.

You’ve also helped us become a GlobalGiving Charity Partner. This will allow to us to open up whole new projects and creative fundraising techniques online, helping us to sustain our support service and help those with NF. You’ve already made a huge difference to us this year.  Thank you so much for all the support you've shown us so far, together we can grow support for NF and impact the lives of thousands more by the end of 2017! 

Yours Sincerely,


Brendan Rodgers
Operations & Communications Manager
The Neuro Foundation


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Organization Information

Nerve Tumours UK

Location: London - United Kingdom
Facebook: Facebook Page
Twitter: @NerveTumoursUK
Project Leader:
Markus Bell
London, United Kingdom

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