Kleefstra Syndrome Drug Development Research Fund

In 2015, K.I.D.S. IQ Project began raising money to fund scientific research projects aimed at advancing a drug treatment for Kleefstra Syndrome (KS). With the help of our partner organizations, such as GlobalGiving Foundation, we made great progress toward our funding target. Since the launch of our efforts, we raised a total of almost C$300,000 across the world.

Early in 2016, K.I.D.S. IQ Project launched a formal process to solicit research proposals from scientific teams around the world. These teams were screened and identified over the course of the past year to ensure that their experience bases and interests matched the needs of our Kleefstra Syndrome research goals. Since launching our formal research solicitation process, K.I.D.S. IQ Project has received a number of compelling proposals which are now being reviewed by our Scientific Advisory Board (SAB). The SAB is multi-disciplinary team which brings together a mix of research and commercial experience covering drug discovery, epigenetics, genetics, neurodevelopmental disorders, preclinical and clinical trials, venture capital and biotech management. The SAB expects to complete its review and project selection process over the course of March and April of this year. Once complete, K.I.D.S. IQ Project expects to begin funding the first (initial) phases of one or two research projects shortly thereafter.

Our progress to date would not be possible without our donors. We thank for your support and look forward to providing additional details on the project(s) that get funded in the coming months.

Links:

• https://www.kidsiqproject.org