Hypersomnia Foundation--Awareness and Education

by Hypersomnia Foundation, Inc.
Hypersomnia Foundation--Awareness and Education
Hypersomnia Foundation--Awareness and Education
Hypersomnia Foundation--Awareness and Education
Hypersomnia Foundation--Awareness and Education

Project Report | Sep 27, 2017
Developing a solid foundation for a research program

By C Rye | Project Leader

Dr. Rye raises IH awareness
Dr. Rye raises IH awareness


The Hypersomnis Foundation's (HF) Medical and Scientific Advisory Boards, otherwise known as the MAB and SAB, are comprised of world experts in their fields of sleep research and clinical work. Questions for the Hf's CoRDS (Coordination of Rare Diseases at Sanford) hypersomnia registry were shaped by the knowledge of these groups, who advised HF on the kinds of information researchers of hypersomnia would find most helpful.  

As of today over 664 people with IH and related disorders have contributed their data to the HF patient registry at CoRDS - data that is vital to research. Your donations to HF help to grow and get the word out about the patient registry and the research program being developed.

Based in Europe and the U.S., the clinical and scientific physicians who comprise the HF's MAB and SAB generously write and vet articles for the SomnusNooze, present at national and internations HF conferences about hypersomnia, advise the HF Board, alerting us to the latest in research, clinical trials, treatments and diagnostics relating to hypersomnia.

We are extremely proud to have the advice of such a distinguished group of professionals.  the Boards are chaired by Dr. Lynn Marie Trotti (MAB) and Dr. David Rye (SAB), and we encourage you to take a moment to read about them and the rest of the MAB/SAB Board members in the "about us" section of our website: www.hypersomniafoundation.org

Dr. Rye presents at a sleep conference
Dr. Rye presents at a sleep conference
Getting the word out about patient registry
Getting the word out about patient registry
Dr. Trotti at #HFconf
Dr. Trotti at #HFconf

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Organization Information

Hypersomnia Foundation, Inc.

Location: Atlanta, GA - USA
Website:
Facebook: Facebook Page
X / Twitter: Profile
Project Leader:
Claire Crisp
Atlanta , GA United States

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