By Catherine Page-Rye | Treasurer // Board Member
The Scientific Advisory Board (SAB) of the Hypersomnia Foundation (HF) continues to develop a plan that includes raising awareness about hypersomnia among clinical and basic science researchers. Dr. David Rye, Chair of the SAB, for example, recently presented updated information about hypersomnia at the North Carolina Academy of Sleep Medicine Conference in Raleigh, NC., at the Board of Registered Polysomnographic Technologists Symposium in Atlanta, and will be speaking March 25 at the Southern Sleep Society Meeting in Houston, TX.
Aligning with this plan of awareness Dr. Lynn Marie Trotti, Chair of the Hypersomnia Foundation's Medical Advisory Board , discusses advances in diagnostics of, and treatment for, hypersomnia. Dr. Trotti will be presenting this information at the American Academy of Neurology conference in Boston, April 2017.
The HF continues to promote the Hypersomnia Foundation's registry housed at CoRDS (Coordination of Rare Diseases at Sanford). Over 500 people with a central disorder of hypersomnolence (idiopathic hypersomnia, narcolepsy types 1 and 2, and Kleine-Levin syndrome) have successfully completed this registry.
Another key component of this plan is a grants program that will financially support innovative research applications that are most likely to positively impact the hypersomnia community. Announcement of this program to the scientific community will depend upon having funds in hand sufficient to attract the best science as well as sustain this initiative. We continue raising funds to insure a vibrant funded research program.
Links:
Project reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.
If you donate to this project or have donated to this project, you can receive an email when this project posts a report. You can also subscribe for reports without donating.
Support this important cause by creating a personalized fundraising page.
Start a Fundraiser
