By Phil Harrington, MD | Human Health Project Founder/CEO
Many thanks for donating to HHP's "Volunteer Patient Advocacy Fund."
Your financial support is helping us to launch the Peer-Led Patient Navigation & Advocacy Program in 2019 in Belfast, Northern Ireland and Los Angeles, California with more cities planned from 2020.
The Peer-Led Patient Navigation & Advocacy research phase started in earnest in October 2018 with the first focus group in Belfast with experts knowledgeable in relation to patient advocacy and related subjects in Northern Ireland.
A second focus group took place in Belfast on February 6th with patients with “invisible illnesses” (Crohn’s, Lupus and Lyme Disease), where we explored the needs of patients and their condition community organizations.
In parallel, we have conducted 1on1 meetings with potential partners in LA and plan to conduct a focus group in LA with volunteer patient advocates and patients this April/May.
Out of the focus groups and 1on1 meeting with patients and potential partners in Belfast and LA, we have developed an MVP (minimum viable product) for the delivery of patient navigation, advocacy and education, integrated with Real World Data (already live on the HHP website for migraine and lupus). We have given this product the name “IMPACT”.
Our target pilot launch date for IMPACT in Belfast Northern Ireland is September 1st 2019. Work is underway on developing IMPACT as well as Navigator and Advocate education. We are also researching and developing operational and budgeting for the launch of the program as well as identifying and starting communication with potential foundations that might fund the patient advocacy program going forward.
We are now actively recruiting patient navigators and advocates in LA and Belfast. Do you know anyone that might be interested? They can be local or remote working virtually, please visit https://humanhealthproject.org/hhp-pa/
For more information about how HHP is helping to make a difference in the lives of people around the world, we invite you to visit our website at https://humanhealthproject.org/
Please consider making another donation to our Volunteer Patient Advocacy Fund to help us continue our development of the program. https://www.globalgiving.org/projects/hhp2019/
Yours sincerely,
Phil Harrington
Project reports on GlobalGiving are posted directly to globalgiving.org by Project Leaders as they are completed, generally every 3-4 months. To protect the integrity of these documents, GlobalGiving does not alter them; therefore you may find some language or formatting issues.
If you donate to this project or have donated to this project, you can receive an email when this project posts a report. You can also subscribe for reports without donating.
