Support 500 people with rare diseases in Romania

by Asociatia Prader Willi din Romania
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Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Support 500 people with rare diseases in Romania
Jan 6, 2022

Support 500 people with rare diseases in Romania

Therapy at NoRo Center
Therapy at NoRo Center

The goal of our project is to support 500 patients with rare diseases in Romania, providing them with the support to face their daily challenges through face to face and online medical consultation, therapies, counseling and psychological support for patients and families at NoRo Center and NoRo Center online services: www.centrulnoro.ro. 

We have continued to provided online training courses on case management for rare diseases for community nurses in 2 new counties (10 nurses) in order to bridge the gaps between medical and social services and orient patients to the services they need. We have also organized 1 patient group online, 5 days, 3 hours/ day. We had 15 patients in the group that benefited from medical consultation and counseling, psychological intervention, social counseling and online therapies. We continued our therapy F2F with children at NoRo Center and both new therapeutic materials.

With the amount that we raised  we could offer support for 15 patients.  15 families have been supported by the interdisciplinary team and have been offered psychologycal and social  counseling and coaching to change their life style in order to better support their child. 

Therapy at NoRo Center
Therapy at NoRo Center
Speech therapy room
Speech therapy room

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Organization Information

Asociatia Prader Willi din Romania

Location: Zalau, Salaj - Romania
Website:
Facebook: Facebook Page
Twitter: @DanDorica
Project Leader:
Dorica Dan
Zalau, Salaj Romania
$2,273 raised of $50,000 goal
 
60 donations
$47,727 to go
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