The goal of our project is to support 500 patients with rare diseases in Romania, providing them with the support to face their daily challenges through face to face and online medical consultation, therapies, counseling and psychological support for patients and families at NoRo Center and NoRo Center online services: www.centrulnoro.ro.
Since October we have provided online training courses on case management for rare diseases for community nurses in order to bridge the gaps between medical and social services and orient patients to the services they need.
With the amount that we raised we coul offer support for 70 families. From January 2021 we have improved our services by introducing online training on healthy life style for prople affected by rare diseases. 10 families have been consulted by the nutritionist and have been offered nutrition counseling and coaching to change their life style in order to better support their child. Also, 60 parents have participated in online training on healthy life style.
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