By Karuna Narang | Project Leader
Despite being born with a rare form of congenital muscular dystrophy that took so much from him, Jack radiated love every day of his life.
“Although Jack was unable to walk, or breathe without the help of a ventilator, or speak the words his mind so clearly held, Jack woke up every morning with a smile on his face and eyes that sparkled with the anticipation of a new day,” said his mom, Ann.
During Jack’s many stays at Ryan House, Ann usually stayed with him and enjoyed the quiet time in the family suite. It was a treasured gift for Ann to enjoy a night’s sleep without interruption. The staff and volunteers would read to Jack and play music for him. The Beatles were his favorite. Jack would watch the Beatles on YouTube and Danielle, the harpist, would always play Beatles tunes for him as well.
Jack also liked to dance. “One of the volunteers would take Jack to the music room, turn on the player piano and dance with him in his wheelchair,” Ann said. “He loved that.”
Ann appreciated the love, care and compassion that Ryan House provided her family, as well as the ability to meet other Ryan House families who shared similar journeys.
Jack died at Ryan House at the age of 15 surrounded by those who loved him.
“He had eyes that smiled and stole your heart away,” said his mom, Ann.
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